Stories of Vision Loss

Lisa shares her story of the unbearable loss of a child and how she came to grieve her vision loss through learning to grieve the loss of her son.  She gracefully gives practical advice for anyone struggling with any type of loss.  We invite you into a community of people learning to live fully and build lives worth living. Facebook: Dalton's Difference Crisis Hotline: Text TALK to 741741 Call or...

Jason "Duck" Barber is an 8th generation farmer in Tennessee.  He shares his discovery of AI and ChatGPT, and how he uses tech as a solo farmer with Retinitis Pigmentosa (RP).  Check out his YouTube channel: Farming Blind with Duck to learn more! Record an Audio Message! Check out a list of our guests: www.storiesofvisionloss.com/guests https://buymeacoffee.com/storiesofvisionloss Become a support...

Today, we share the heartbreaking news of Qusay Hussein’s passing with heavy hearts and deep reverence for the extraordinary life he lived. Qusay was more than a guest on Stories of Vision Loss —he was a beacon of resilience, a storyteller whose wisdom transcended his blindness, and a man who carried himself with unwavering dignity.  Qusay’s legacy lives on in countless ways—through the Qusay Huss...

Lisa is a Diabetes Care and Education Specialist passionate about helping others, which started with helping her mother with diabetes.  She shares her experience developing diabetes, diabetic retinopathy, and strokes.  She has a wealth of professional and personal experience with diabetes, and she hopes that sharing her experience will allow others not to feel so alone on their parallel journey. L...

Nazanin shares her journey as a research professor studying health disparities and equity in various populations (including diabetic retinopathy).  She describes her visual experience as always legally blind, but not a label that defines her life.  Though, it has helped make her an excellent problem solver!  She talks about parenting and learning to ride a bicycle again as an adult. Record an Audi...

Mary Tyler Moore is a cherished figure in the hearts of many with her enduring joy for life.  She was a graceful and talented award-winning actress, producer, author, media executive, and advocate for diabetes research.  Her husband, Dr. Robert Levine, shares information about the Mary Tyler Moore Vision Initiative that was created in her honor along with some personal moments they shared. https:/...

Debra shares her vision for The Blind Kitchen after learning about RP at the age of 28 as a single mother of two small children. Record an Audio Message! Website: The Blind Kitchen YouTube: @theblindkitchen Check out a list of our guests: www.storiesofvisionloss.com/guests https://buymeacoffee.com/storiesofvisionloss Become a supporter of this podcast: https://www.spreaker.com/podcast/stories-of-v...

Veteran, Steve Baskis, shares his experience turning his focus to outdoor adventures after losing his vision while serving in the military.  He shares techniques for sailing, biathlon (skiing and shooting), climbing, and how to prepare for an adventure through gathering a good team. Record an Audio Message! www.stevebaskis.com www.blindendeavors.org Check out a list of our guests: www.storiesofvis...

Qusay Salih Hussein Al-Mamari shares his memoir and story of becoming a refugee from Iraq to the USA after a suicide bomber took his vision and changed the course of his life as a teenager while playing a volleyball match in a stadium with his brothers. Despite incredible challenges and physical trauma that resulted in more than 70 reconstructive surgeries, Qusay shares his story with unforgettabl...

Jeanne shares her story of healing her trauma through truth as we discuss her memoir Good Eye, Bad Eye. She has lived her life as a monocular since the age of two, and has worked as a journalist and psychotherapist.  Her insights into her personal healing journey are valuable for anyone. Record an Audio Message! Stay connected and share your story: storiesofvisionloss@gmail.com Check out a list of...

Wayne Tuttle "The Blind Guy" and Titanic historian, shares his experience adjusting to RP, reclaiming his enjoyment for scuba diving, and the difficult decision to stop driving while continuing to love his hobby of snowmobiling. www.thatblindguy.ca Stay connected and share your story: storiesofvisionloss@gmail.com Check out a list of our guests: www.storiesofvisionloss.com/guests Join Supporter's...

Introducing MJ Jefferson, Exectutive Producer and Creative Director of Stories of Vision Loss podcast. Record an Audio Message! Stay connected and share your story: storiesofvisionloss@gmail.com Check out a list of our guests: www.storiesofvisionloss.com/guests Join Supporter's Club - $5/month

Brianna "Nana" Hnilo shares her love of birds and animals, and tells us about being born with Fraser Syndrome.  She also shares how she got into writing ghosts stories through her love of Braille. Stay connected and share your story: storiesofvisionloss@gmail.com Check out a list of our guests: www.storiesofvisionloss.com/guests Join Supporter's Club - $5/month Record an Audio Message!

Judge David S. Tatel shares his RP journey throughout a lifetime of accomplishments.  He served nearly 30 years on America's second highest court, the United States Court of Appeals for the D.C. Circuit, where many of our most crucial cases are resolved—or teed up for the Supreme Court.  His story of fighting for justice over many decades, with and without eyesight, is an inspiration to us all - a...

Happy New Year!   Stay connected and share your story: storiesofvisionloss@gmail.com Check out a list of our guests: www.storiesofvisionloss.com/guests Join Supporter's Club - $5/month Record an Audio Message for us

Ashley King shares her story of International travel, methanol poisoning, building her acting career, and producing a play with a companion podcast, Static: A Party Girl's Memoir. Apple Podcast: Static - A Party Girl's Memoir YouTube: Static Stay connected and share your story: storiesofvisionloss@gmail.com Check out a list of our guests: www.storiesofvisionloss.com/guests Join Supporter's Club -...

Prabath Wickramanayake takes us through his RP journey growing up in Sri Lanka, going to school in New Zealand, and living in Australia.  He encourages everyone to get out and do the things they love. Stay connected and share your story: storiesofvisionloss@gmail.com Check out a list of our guests: www.storiesofvisionloss.com/guests Join Supporter's Club - $5/month Record an Audio Message!

Sara shares her story of being a blind nomad traveling throughout the USA, her passion for astrology, reiki, and self improvement. Stay connected and share your story: storiesofvisionloss@gmail.com Check out a list of our guests: www.storiesofvisionloss.com/guests Join Supporter's Club - $5/month Record an Audio Message!

Michael shares his experience growing up as a ham radio operator, studying physics at university, assisting with the development of Kurzweil's assistive tech devices, and escaping the twin towers on September 11th with his guide dog, Roselle. Apple Podcast: Unstoppable Mindset Stay connected and share your story: storiesofvisionloss@gmail.com Check out a list of our guests: www.storiesofvisionloss...

Bonnie shares her experiences with guide dogs, moving to New Zealand, writing romance novels, and her love of horses, history, and culture. Stay connected and share your story: storiesofvisionloss@gmail.com Check out a list of our guests: www.storiesofvisionloss.com/guests Join Supporter's Club - $5/month Record an Audio Message!

Sam shares his experience developing The Blind Life YouTube channel, podcast, TikTok and social media presence.  His family plays a central role in his life, and he gracefully walks the line between artist and techie as a cake decorator, comic book artist, and assitive technology trainer. YouTube: The Blind Life by Sam Seavey Stay connected and share your story: storiesofvisionloss@gmail.com Check...

Hoby Wedler shares his experience building businesses as a successful entrepreneur in the Food & Beverage industry after earning his PhD in Chemistry.  He was born blind with microphthalmia, and developed his palate and love for cooking through growing up in a family who supported him through high expectations.  His curiosity and thirst for knowledge will hopefully pair well with your day and...

Josh Schneider from The Dented Puck (podcast and foundation) shares his story about losing his vision in his 30s, rediscovering ice hockey as a blind player, and building a foundation and team to promote the sport he loves. Apple Podcast: The Dented Puck Stay connected and share your story: storiesofvisionloss@gmail.com Check out a list of our guests: www.storiesofvisionloss.com/guests Join Suppor...

This episode features Hoby Wedler interviewing Charlotte about the podcast and how it came to be. Send questions to storiesofvisionloss@gmail.com Thank you for listening Hoby's podcast: https://heardandempowered.org Stay connected and share your story: storiesofvisionloss@gmail.com Check out a list of our guests: www.storiesofvisionloss.com/guests Join Supporter's Club - $5/month Record an Audio M...

Jerry shares his experience through decades of participating in positive change and mending his San Francisco community through the Vietnam War, saving housing from the clear cutting of the landscape to remodeling an Edwardian house, and being on the front row of watching technology grow and shift through time. He now mentors people through art and woodworking, and his walking tour business called...