Katie Wright

Staying Connected

Health EN ↓ 127 episodes

Katie Wright started this podcast in 2018 to talk to other people about their stories with Vascular Ehlers-Danlos syndrome (VEDS), which she was diagnosed with in 2017. Over the years, this podcast grew to include people affected by related conditions, like Marfan, Loeys-Dietz, and variants of unknown significance (VUSs). Over 127 episodes, Katie talks with others about their stories and to researchers about their work. This show concluded in 2026.

Author

Katie Wright

Episodes

Deborah and Soren 27.05.2018 28:06

In this episode I talk to Deborah, whose 9 year old son was diagnosed with Vascular Ehlers Danlos Syndrome (vEDS) at the age of five. We hear about the road to diagnosis, changes they’ve made to his daily life, and coping strategies. To learn more about Deborah’s books and to get one, visit http://www.amazon.com/author/daroach

Bridgette 29.04.2018 33:27

Welcome to the first episode of Staying Connected! I started Staying Connected as way to connect with other people diagnosed or impacted by vascular Ehlers Danlos Syndrome (vEDS). In today’s episode, I talk to Bridgette, who was diagnosed in her early twenties following an angiogram that went terribly wrong. She needed twelve surgeries to save her life from the angiogram, which was intended to get...