SPEAK YOUR MND

#speakurmnd365 The latest and last episode of season 1 of the speak your MND podcast with me @mummybarrow is a little different, its just me hosting, when we started the speak your MND Podcast there were a few goals that @mbarrow1 and I had in mind, I wanted to host the show using my eye gaze and cloned voice. We wanted our guests to be from all walks of life from living with MND, Carers to Fundra...

Welcome to the Midnight Debrief Steph and I are joined tonight by Joe DeBoise, a friend of Steph and Marks, a friendship brought together through MND. I asked Steph, Let’s get a guest on, last episode before the break, and there was only one person Steph wanted on the podcast or Poddy-C as Joe calls it. Joe has sacrificed his body and time to ensure the MNDefiance trust got up and running, and the...

This Week Anna and I chat with Stacey Kirkpatrick Stacey lost her dear mum Gerry back in 2005 and as you will hear in this weeks episode its as still as raw and upsetting as it was 21 years ago. In this weeks episode we talk about Stacey’s mums MND journey, loss, and the years that followed, with Stacey taking on numerous challenges raising awareness and funds for MND Scotland and the MNDA, we als...

This Weeks Episode, Steph and I catch up on what is always a busy previous two weeks A lot to catch up on from latest to show, what’s for tea and we talk all things feeding when living alongside MND, from feeding tubes, to what is on the menu that’s manageable. we talk about the highs and the not so highs of the previous two weeks, as always with a bit of laughter thrown in the mix. We promise tha...

This weeks Episode, Martyn and I chat with Lynn, A truly inspiring women who Martyn and I have had the pleasure to know on our own personal MND journey, and someone who we call a dear friend. Lynn openly talks about the darkest of days, from her beloved Mel's MND diagnosis, Losing her soulmate Mel, but how this anger has fuelled her to drive and determination to help others 'Her MND family' to one...

This Week Steph and Martyn talk all things caring. What's been happening the past 2 weeks, the highs the lows, the challenges, the wins. They chat about the rugby team coming for hot dogs and rugby, the road trips that cause nothing but stress and uncomfortableness, the impromptu eBay buys and near misses. the midnight debrief is taking the daily chats to podcast to share with you the real world o...

On this weeks Episode Martyn and I, Chat to Wife, Mum and Carer, An Amazing, strong woman who is navigating her way through life alongside MND Nicola Minor gives her time for talk about her personal journey, her husband Paul's Diagnosis, the challenges, the upheaval and the love and support from friends and family. Nicola shares light on The dark days, the good days, the challenging days and her '...

Welcome to the ‘The Midnight Debrief’ A new kind of episode featuring a new Host, Steph Williams, the midnight debrief spin off series focuses on the role of caring alongside MND, Like myself Steph is a ‘carer’ Steph cares for her husband Mark, she is a Mum, Wife, MND advocate supporting families through Steph and Mark’s foundation the MNDefiance Trust. Steph and I have become close friends as we...

In the latest episode Anna and I chat with James Smith, Husband, Dad, MND Warrior and MND Advocate. James spends his time in front of the camera showing the world what living alongside MND is truly like. but today he's behind the Mic as James 'Speaks His MND' We talk about 'life before the shift, the impact on family, parenting alongside MND and what keeps him up at night? Thank you, James And tha...

On this weeks Episode Anna and I had the privilege of speaking with Abbie Pilkington, Abbie sadly lost her younger brother Jordan 'Jord' 'Jordie' Pilkington in August 2024 after a 5 year battle alongside MND. Our conversation with Abbie focuses on grief and celebrates Jordan's legacy. We would like to Thank Abbie for her time, honesty and her continued dedication to the fight against MND We send o...

On this weeks episode Martyn and I chat with Rob Hasler, Rob was diagnosed with MND in October 2024, This episode is emotional, raw, honest, with plenty of tears and laughter. We talk about Robs life before MND, the early days, the impact on his family, the heartbreak in telling his children. we talk about why 'everyday matters' is so important, the generosity of his friends and family and his loc...

On this weeks episode Anna and I chat with An Actor across, Tv, Film and Theatre, an MNDA ambassador for 24 years, Probably best known for his role in coronation street playing 'Billy' husband of Paul, during one of coronation streets most impactful story lines in recent years. The Amazing Daniel Brocklebank We talk about life alongside MND and his beloved Grandfather, Daniel's Advocacy work for t...

Welcome to SpeakUrMND podcast a Foreword by Anna, SpeakUrMND has evolved, SpeakUrMND was a place for me to share my family's experience living alongside MND, but what I've always known is that everyone's journey is unique, everyone has a different 'Why', everyone has a story to tell, I've been so inspired by the individuals I have met on this journey and would like them to SpeakTheirMND What makes...