SCI Care: What Really Matters

Send us Fan Mail As anticipation builds for the 63rd Annual Meeting of the International Spinal Cord Society, Professor Micheal Fehlings shares his excitement with Dr Stolwijk-Swuste, a Rehabilitation specialist and Associate Professor at De Hoogstraat Revalidatie.  Our hosts invite the spinal cord community to this unique event, located in a charming and inspiring venue: A Room with a Zoo at Flan...

Send us Fan Mail The Vison of ISCoS is to "facilitate healthy and inclusive lives for people with spinal cord injury or dysfunction globally". Partnership and collaboration is key in helping us to realise this vision. We are delighted that we have been able to partner with Wellspect to deliver, in addition to a number of webinars and podcasts, educational support for the ISCoS Internatio...

Send us Fan Mail Welcome to the future of Spinal Cord .  In this episode, our hosts Dr. Fehlings and Professor Anthony S. Burns welcome us to a new era of ISCoS’s flagship journal, Spinal Cord .  Conceptualised in 1963, Spinal Cord is a specialised, international journal that publishes peer-reviewed manuscripts, to showcase powerful medicinal insights and support those within the SCI community.  A...

Send us Fan Mail Managing bladder and bowel health is a critical, yet often overlooked aspect of patient care, especially for those with spinal cord injuries (SCI).  In a recent podcast episode host, Tracey Tattam, a Nurse Educator at the Spinal Injuries Unit Queensland, Australia is joined by Josefin Oja, a nurse and urotherapist at the spinal cord injury department Umeå, Sweden and Maria Moschov...

Send us Fan Mail In this episode, guest host Dr Kimberley Monden explores the world of SCI clinical research and rehabilitation medicine, exploring patient perspectives and life before, during, and after participation in SCI clinical research with Dr Trumbower, an associate professor in the Department of Physical Medicine and Rehabilitation at Harvard Medical School and Director of the spinal cord...

Send us Fan Mail This webinar, in partnership with Wellspect, aims to raise awareness of these issues. Originally recorded as a webinar, we decided to release it as a podcast as well. We hope you enjoy listening. This episode will cover bladder and bowel management during the different stages of a woman's life, overcoming barriers to break the taboo in discussing such issues, the challenges a...

Send us Fan Mail This episode follows on from our previous webinar "Exploring Sexual Dysfunction," hosted by Francescapaola Polli, Enterology Product Manager for Wellspect in Italy. Returning guests Dr Marcalee Alexander and Dr Gianluca Sampogna provide invaluable guidance on overcoming sexual challenges and achieving fulfilling sexual lives after spinal cord injury. From discussing the...

Send us Fan Mail In this episode of the podcast, in partnership with Wellspect, host Lisa Beauchemin talks to her colleagues Katherine Fernandez and Dr Lawrence (Larry) Vogel about bladder and bowel management in paediatric spinal cord dysfunction. They discuss physical health alongside social health and lifestyle factors that need to be considered, especially when working with children and teenag...

Send us Fan Mail In this bonus episode, we talk to an SCI grant recipient, Kamrunnaher Koly, from Bangladesh, about her work as a researcher, the new work-care rehabilitation pathway for spinal cord patients in Bangladesh, and how she found her first experience at the ISCoS conference. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given produc...

Send us Fan Mail In this bonus episode, we sit down for a conversation with Kathy Zebracki, a clinical psychologist from Shriners Children's, Chicago, and Julian Taylor from Toledo's National Paraplegic Hospital in Spain to learn all about the first-ever paediatric spinal cord injury Special Interest Group (SIG) for ISCoS. Kathy and Julian reveal their ambitions of gathering an internati...

Send us Fan Mail In this bonus episode, we spoke with Bill Barrable, Vanessa Noonan, John Chernesky and Barry Monroe of Praxis as they discuss the 62nd ISCoS scientific meeting and the role of their organisation in setting best practices for managing spinal cord injury and rehabilitation.  They also discuss the challenges and strategies of involving those with lived experience in planning and part...

Send us Fan Mail In this episode,  Christine Hendry, CEO of the Spinal Research Institute, chats with two standout grant recipients for ISCoS 2023, Jacob Schoffl and Kiera Tranter to discuss their research.  Jacob discusses research on the effects of spinal cord injury on autonomic and psychosocial health. Meanwhile, Kiera, a physiotherapist shares her invaluable insights on clinical practice guid...

Send us Fan Mail In this bonus episode, Eric Weertz and Geraldine Jacquemin discuss the work of the ISCOS Disaster Committee and the unique difficulties faced in conflict settings that they support, including developing the ISCoS SCI toolkit.  The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.  You can follow us on Twit...

Send us Fan Mail In this episode, Spinal Research Institute CEO, Kristine Hendry interviews grant awardee Dr. Haleluya Moshi from Tanzania.  Dr Moshi discusses his research on traumatic spinal cord injury in rural areas. Listen as he shares his experience at ISCoS 2023. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies....

Send us Fan Mail In this episode, Dr Samford Wong, Chair of the newly formed nutrition special interest group, is joined by fellow group members Sharon Lee, Firas Sarhan and Hanne Bjorg Slettahjell as they discuss the plans and developments for this  SIG.  There will also be a Nutrition SIG workshop to be held in ISCoS 2024, more details to come.   The opinions of our host and guests are their own...

Send us Fan Mail In this bonus episode, Kristine Hendry, CEO of The Spinal Research Institute, interviews Robert Buren, a researcher studying at the University of British Columbia, Canada and SRI grant awardee, on his research highlighting the effectiveness of cognitive behavioural therapy in managing neuropathic pain and attending benefits of ISCoS 2023.  The opinions of our host and guests are t...

Send us Fan Mail In this episode, Candice Care-Unger is a renowned psychosexual therapist and specialist social worker from Sydney. Candice shares her insights on attending the pre-conference psychosocial day. The opinions of our host and guests are their own; ISCoS does not endorse any individual viewpoints, given products or companies.  You can follow us on Twitter and LinkedIn Contact us direct...

Send us Fan Mail In this bonus episode, Beth Collins, a clinical lead at Wellspect Healthcare, interviews colleague and friend Sallyanne Haigh on her recent surgery experience in a non-spinal setting. They discuss the significant gaps in SCI care and the lack of training and knowledge within these settings.  Sallyanne shares that despite the successful surgery, the post-op care she received was in...

Send us Fan Mail In this bonus episode, we talk about a new federally funded research project that involves ISCoS members Professors Allen Heinemann, Jane Duff, Marcel Post, and Ashley Craig.  They are working on an international comparative study of rehabilitation length of stay for people living with spinal cord injuries. What's the ultimate balance between prolonged stays and swift dischar...

Send us Fan Mail Claire Lomas MBE welcomed over 900 participants to the recent 62nd ISCoS meeting in Edinburgh. She shared her moving story from her life before a spinal cord injury to the difficulties she faced immediately after to the triumphs she enjoys since she grieved the life she lost and accepted the life she now has, ultimately changing her future. In this episode. Rober Buren shares his...

Send us Fan Mail In this bonus episode, we caught up with Mohit Arora, Senior Research Fellow and Senior Lecturer at the University of Sydney talking with student and colleague PhD student Jacob Shoffl at the Psychosocial pre-conference day on the 8th Oct during ISCoS 2023. They discuss their biggest takeaways of the day and why they are ISCoS members.  We hope you enjoy it.  The opinions of our h...

Send us Fan Mail Welcome to  SCI Care: What really Matters, Edinburgh conversations. This is a series of discussions recorded live during the #ISCoS2023 meeting.  Our guests include Debbie Green, the Chair of the Nurse Special Interest Group, Tracey Tattam, a renowned nurse educator, Veronika Geng from Germany, and Letitia Graves from Houston share valuable insights and their involvement in the In...

Send us Fan Mail In this episode, Dr Ali Jamous talks to Claire Lomas MBE taking us through Claire's remarkable journey from a devastating accident to finding a new purpose in life. Claire shares her experiences from before her accident and the difficult early years of recovering from her injury and when hope seemed lost. She will discuss the little steps that made the biggest impact on her r...

Send us Fan Mail Dr Abayomi Salawu is a neuro-rehabilitation consultant at Hull University Teaching Hospital NHS Trust who is pioneering the use of virtual reality (VR) in rehabilitation. Dr Ram Hariharan is a consultant in spinal injuries at the Princess Royal Spinal Injuries and Rehabilitation Centre in Sheffield and the chair of the UK SCI Research Network. Dr Hariharan and Dr Salawu got togeth...

Send us Fan Mail In this enlightening discussion, host Dr Ram Hariharan, a consultant at the Princess Royal Spinal Cord Surgery Centre in Sheffield and Chair of the UK Spinal Cord Surgery Research Network, speaks with Mr Nigel Henderson, a former consultant at Stoke Mandeville Hospital and later the clinical director of the National Spinal Injury Centre. He was appointed Clinical Director of the N...