Retina UK

Retina UK Information and Support Manager Denise Rawden speaks to Georgina Hall, Consultant Genetic Counsellor at the Manchester Centre for Genomic Medicine. Whole genome sequencing is now routine for genetic testing for inherited retinal conditions (March 2022).

This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2021 (Issue 173)

A written article based on this recorded interview is available in the Spring 2021 edition of our Newsletter, Look Forward: https://retinauk.org.uk/information-support/publications/

A PDF copy is available here: https://retinauk.org.uk/information-support/publications/

Latest Retina UK Podcast features Luxturna treatment Retina UK Annual Conference The Big Give Christmas Challenge Charles Bonnet Syndrome Patient Information Event Local groups Christmas Raffle Tech tip Sight Village news 10 for 10 Virtual Challenge

Retina UK Research Development Manager Kate Arkell speaks to three of the first people to receive the Luxturna (voretigene neparvovec) treatment in the UK. Jake, Lee and Matt all received the Luxturna gene therapy at the start of 2020. They all have two faulty copies of the RPE65 gene and are living with Leber congenital amaurosis type 2 (LCA2) and severe early-onset RP.

This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2020 (Issue 172)

This edition includes details about: The Retina UK Christmas raffle Usher Kids UK family Zoom calls Charles Bonnet syndrome patient information event The difference we made in 2019 Virgin Money London Marathon 2021 Volunteers needed to test new memory stick project

Retina UK Research Manager, Kate Arkell, speaks to Professor Andrew Webster, Professor of Molecular Ophthalmology at University College London and Consultant Ophthalmologist at Moorfields Eye Hospital; Dr Nikolas Pontikos, Computational Scientist, currently a Eye Moorfields Charity career development Fellow at University College London and Nick Nettleton, Founder and CEO at Loft Digital. The MyEye...

Thanks to you ... The impact we made in 2019

This E-Newsletter includes information about: Our BBC Lifeline appeal Virtual local group meetings Research funding Royal Parks half marathon Volunteers needed to test new app Christmas raffle Audio material Feedback

This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2020 (Issue 171)

This is a voice recording of an article posted on the Retina UK website: https://retinauk.org.uk/general-news/retina-uk-covid-19-response/

This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2020 (Issue 170)

This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2019 (Issue 169)

Listen to the audio recordings from the Retina UK Annual Conference on 28 September 2019 in Milton Keynes.

Listen to the audio recordings from the Retina UK Professionals' Conference on Friday 27 September 2019 in Milton Keynes

The latest newsletter from Retina UK containing updates from all areas of the charity; the latest research news; our Annual Conference and other events; the information and support we provide and the difference this makes. None of this would be possible without your support and we also celebrate the many ways you get involved.

National sight loss charity Retina UK has published its unique insight into the experiences of those living inherited retinal conditions. Almost 1,000 people completed a survey earlier this year to help the charity understand the real-life experiences, challenges and expectations of those living with these conditions. Tina Houlihan, Chief Executive, said: “We are an organisation entirely focussed...

Our printed Newsletter, Look Forward, is produced three times per year. It is available in print, on audio, in digital format and also in Braille. For more information and to subscribe to Look Forward, please visit:   https://retinauk.org.uk/  

This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2018 (Issue 166)

This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2018 (Issue 165)

Below are recordings from the RP Fighting Blindness (now Retina UK) Annual Conference held on 23 June 2018. Welcome & Intro Dr Stephen Hicks presentation Victoria Claire presentation Dr Laura Brady presentation Voice Control presentation Dr Mariya Moosajee presentation Prof Susie Downes presentation & Prof John Marshall Award OxSight Workshop RP Question time & Conference Close Annual...

This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2018 (Issue 164)

Below are recordings and copies of the presentations from the RP Fighting Blindness (now Retina UK) London Information Day held on 07 December 2017. London Information Day – Part 1 London Information Day – Part 2 London Information Day – Part 3