RealTalk MS

Eating well is an important part of a wellness plan. At first glance, making healthy food choices seems simple. But with so much conflicting information and opinion masquerading as fact on websites and in social media, what do you believe and where do you begin? Joining me to separate fact from fiction and share smart strategies that will get you started on solid nutritional footing is my guest, M...

Before the availability of MRI technology in the 1980s, MS was frequently misdiagnosed or even missed completely. Today, an MRI exam is a valuable tool in diagnosing MS, following disease progression, and evaluating someone's response to their MS treatment. Recently, a team of international experts updated the MRI recommendations for people living with MS. Dr. Scott Newsome, a member of that exper...

We met Dr. AJ Joshi, Chief Medical Officer at Atara Biotherapeutics, at ECTRMS 2019, when he gave us our first update on ATA 188, Atara's investigational cell therapy for MS. This is the third year in a row that we've connected with Dr. Joshi during ECTRIMS for an update on the progress of ATA 188. This year, he's also sharing news about an unexpected discovery that investigators encountered durin...

Just a couple of weeks ago, 9,000 MS research scientists and clinicians from 100 countries gathered virtually for the annual meeting of the European Committee for Treatment and Research in Multiple Sclerosis, otherwise known as ECTRIMS. The largest MS research conference in the world lived up to its name, featuring 200 speakers and 1,700 research abstracts. In what has become an annual RealTalk MS...

Research shows that more than 50% of the people living with MS will experience another chronic health condition in their lifetime. These additional health conditions, known as comorbidities , have been shown to negatively affect disability progression and health-related quality of life. In other words, living with comorbidities makes living with MS more challenging than it has to be. Joining me to...

The annual health insurance open enrollment period has begun! And a lot of people tend to get through open enrollment on autopilot, assuming that the health insurance that they had last year will continue to serve them well next year. But policies change. Physician networks change. And prescription drug formularies change. If you're living with MS, you can't afford to be on autopilot when it comes...

After reviewing evidence on the use of autologous hematopoietic stem cell transplantation (aHSCT) for the treatment of multiple sclerosis, the National MS Society has concluded that aHSCT is a good treatment option for some people living with MS.  Dr. Jeffrey Cohen, the Director of the Cleveland Clinic's Mellen Center for Multiple Sclerosis Treatment and Research, joins me this week to share all t...

Getting a good night's sleep is often easier said than done.  About half of the people living with MS experience sleep disorders. Dr. Abbey Hughes is joining me to talk about how sleep and lack of sleep affects MS, and she'll share some specific strategies that you can use to better manage sleep difficulties and get the rest that your mind and body require. We're also sharing a very encouraging up...

This special episode of RealTalk MS is sponsored by EMD Serono and  MS in the 21st Century . It's often said that MS doesn't just affect individuals, it affects families. And in this special episode of RealTalk MS, we're talking about family involvement in MS care with Dr. Alice Laroni and Trishna Bharadia. Dr. Laroni is a neurologist with over 18 years of experience providing clinical care to MS...

If you're on an MS disease-modifying therapy and you're concerned about how effective your COVID-19 vaccination might be, or you aren't sure whether having MS qualifies you as being immunocompromised and cleared to receive a third dose of the COVID-19 vaccine, or you can't begin to figure out whether you qualify to receive a COVID-19 booster, then this podcast episode is for you. Joining me to hel...

Early in your MS journey, it's not uncommon to experience minor walking and gait issues. And people living with advanced MS often face more serious mobility challenges. The good news is that rehabilitation can help people on either end of the "mobility spectrum" improve. But different mobility challenges require different approaches to rehabilitation. Joining me to talk about mobility rehabilitati...

Having a job matters. Most obviously, employment provides the economic resources that people need to more easily manage every other aspect of their lives. Perhaps less obviously, we tend to define ourselves through our work. And without work, we not only face potential economic hardship, we sometimes lose that inner sense of purpose or identity...of understanding who we are. The majority of people...

Cognitive issues affect a majority of people living with MS and experts often recommend a cognitive assessment as the first step in managing cognitive dysfunction. But what's that cognitive assessment all about? Patient advocate Cathy Chester has been living with MS since 1986 and she just recently underwent her own 3-hour cognitive assessment. Cathy is joining me to walk us through her experience...

Madison Copot was diagnosed with MS about 9 years ago, just before turning 13. And when she received her diagnosis, Madison was also told that she was too young to be seen by an MS specialist. Today, Madison is a 21-year old young woman, and if you want to hear what a real-life superhero sounds like, you won't want to miss my conversation with Madison. While we're on the subject of superheroes, we...

The FDA has authorized a third dose of the COVID-19 mRNA vaccines. What does this mean for people living with MS? Are you eligible for a third dose now? Are you eligible in September? How will your disease-modifying therapy effect that third dose? What if you received the Johnson & Johnson vaccine? And who is that Regeneron monoclonal antibody cocktail for? Dr. Nancy Sicotte joins me with an updat...

Imagine being able to see improvement in cognition, motor function, and self-esteem, while enhancing neurological functions like walking and speech without taking another pill or even breaking a sweat. Joining me to talk about the evidence-based benefits that people living with MS can gain through music and art therapy are Dr. Meera Rastogi, Veronica DeNoma, and Betsy Hartman. We're also talking a...

If you've ever wondered about whether MS advocacy makes a real difference, please consider that last year alone, MS Activists helped to bring about these changes: $10 Million increase in funding for the Congressionally-Directed MS Research Program $3 Billion increase in funding for the National Institutes of Health Sustained funding for the CDC's National Neurological Conditions Surveillance Syste...

Just a few weeks ago, life sciences company Abata Therapeutics came out of stealth mode, unveiling a $95 million dollar investment in a novel cell therapy to treat progressive MS. Joining me to talk about this potentially transformational treatment for progressive MS are the President and CEO of Abata Therapeutics, Samantha Singer, and Dr. Richard Ransohoff, one of the company's co-founders as wel...

Research shows that members of minority communities often experience MS differently. And by differently, we mean worse. -- more severe symptoms, shorter time to disability, and greater levels of disability. That's why ensuring greater diversity in clinical research is of urgent importance. At the same time, the conversation about putting the patient at the center of MS research has grown louder an...

Summertime traditionally means getting out of the house, enjoying outdoor activities, and being active. But if you're living with MS, outdoor activity and summertime temperatures can raise red flags when it comes to your day-to-day quality of life. My guest is Dr. Colin Lenington, an Occupational Therapist and Clinical Specialist at the VA Long Beach Healthcare System and we're talking about getti...

In medicine, a prodrome is a set of signs or symptoms that can appear years before the major symptoms of an illness develop. Recognizing the prodromal phase of MS could mean that, one day, someone who is highly likely to be diagnosed with multiple sclerosis could receive proactive treatment years in advance and, perhaps, never develop any MS symptoms. Dr. Helen Tremlett, a professor, and the Canad...

Every two years, the MS International Federation awards the Charcot Award, recognizing lifetime achievement in outstanding research into the understanding and treatment of MS. My special guest is this year's recipient of the Charcot Award, Professor Alan Thompson, who is being honored for what is truly a remarkable body of work. We'll also share some encouraging news from the FDA about a biomarker...

We're celebrating the 200th episode of RealTalk MS by sitting down with Cyndi Zagieboylo, the President and CEO of the National Multiple Sclerosis Society, and looking at some of the most vital initiatives ever undertaken by the National MS Society, including the launch of the International Progressive MS Alliance, the MS Society's efforts to support diversity, equity, and inclusion throughout the...

Receiving an MS diagnosis can be frightening. And receiving that diagnosis as a young adult can feel like your whole world just got flipped upside down. When Matoaka Kipp (she/her/hers) received her MS diagnosis at the age of 21, she not only had to come to terms with how that diagnosis would change her life but as a member of the LGBTQ+ community, Matoaka also had to confront some of the systemic...

At some point, about 50% of the people living with MS will experience clinical depression. This goes beyond simply feeling sad. Left unchecked, MS-related depression can sometimes lead to tragic consequences. As it relates to multiple sclerosis, mental health must be de-stigmatized, studied more rigorously, and discussed more often. Returning to the podcast to talk about managing the mood-related...