Post-Exertional Mayonnaise

In this episode Rachel aka Squiggle shares her own personal CFS/ME journey and the impact of grieving through this process. You can join Rachel's online communities through discord and twitch here: Discord: https://t.co/1wZGDoAo4B Twitch: https://t.co/uSsk1Hgyy4 Contact the podcast at: pempodcast23@gmail.com Website: pempod.com

In this episode we hear six unique voices of individuals living with Chronic Illness: Laura, Steph, Katie, Jo, Joy and Paul. Each reflects on the topic of grief and how Chronic Illness has impacted them in different way with regard to living grief. The song, 'Nobody Knows', used throughout, is by Laura Vitale (who shares her own experience). Her music can be found here: https://www.youtube...

In this episode we talk to Jessica Taylor-Bearman who spent her teenage and young adult years living with very severe ME/CFS. We talk about her life as portrayed through her first two autobiographical books and look forward to the release of her third book, A Girl Beyond Closed Doors. A Girl Beyond Closed Doors is released on the 19th October 2023 and can be ordered here along with Jessica's p...

In this episode Dov and Dan catch up and 'chew the cud' over a range of issues relating to life with ME. We review recent interview episodes, chat about how we can involve people with severe ME in the podcast, navigating hospital visits, talk about decision-making and how this impacts quality of life, and go where the conversation takes us! Memes/articles mentioned by Dov: https://www.tumb...

In this episode Sarah Boothby reads from the unpublished novel of her daughter, Maeve Owen who died from ME in 2021. The novel is titled (as yet unpublished): The Alchemists; or Economic Consequences of the Peace. Character list and excerpts are available for viewing from www.pempod.com. If you haven't read part 1, we'd suggest you start there! Artwork for the thumbnail by Amy Koller Ander...

In this episode we talk to Sarah Boothby, who's daughter Maeve Owen died from ME in 2021. Sarah and Dan talk about Maeve and her writing. In part 2, Sarah reads from Maeve's novel: The Alchemists; or Economic Consequences of the Peace. Artwork for thumbnail by Amy Koller Anderson. Please e-mail us with any weird symptoms or ideas for Exhaustion Enterprises you'd like to share! We'r...

In this episode we talk to Alison Larkman, an artist living with ME in Bristol, UK. Alison is planning a significant roaming art installation project next summer called I Would Be Here If I Could. You can learn more and take part at: https://www.iwouldbehereificould.com/ Alison's other work can be seen at: www. Alisonlarkman.com To listen to Michael Brooks' podcast on Decode ME, search for...

In this episode, we talk to Sally Callow who is organising a significant music event in the summer of 2024 to raise awareness of ME and to fund ME research. You can learn more and get involved at: redefininggravity.co.uk Follow ME Foggy Dog at: www.mefoggydog.org Please e-mail us with any weird symptoms you'd like to share! We're also accepting poetry submissions. Also, let us know what it...

In this episode Dov and Dan talk about trying to find a sense of self whilst living with ME and chronic illness. Apologies for the background noise. Will try and sort for next time! Poems are provided by Lizzy Horn and Maija Haavisto. You can listen to Maija reading her poem and talking about chronic illness here: https://poets.org/poem/shipplum You can listen to more of Ramy's music on twitte...

In this long form discussion, Dan meets Vlad Vexler, philosopher in politics and musical aesthetics to discuss his ME journey and his successful YouTube career. We talk about challenging persisting psychologisation narratives around ME, as well as Beethoven, and transhumanism. You can find Vlad's YouTube Channels here: ME diary:    / @ucf3qsb15b2_wzbx...   Main channel:    / @vladvexler   Chat...

In this episode Dov and Dan discuss the pitfalls of magical thinking when living with ME and chronic illness. This is a longer episode and covers some heavy themes, so please listen at your own pace. The clip we played by Carrie Poppy on retrospective bias and trauma hunting is part of a talk she gave to the Skeptics in the Pub channel on Mental Health Pseudoscience on Social Media and can be foun...

We talk about time and how we process time and manage it while living with ME. Also, Dov interviews Dan about his creative songwriting process. Please e-mail us with any weird symptoms you'd like to share! We're also accepting poetry submissions. Also, let us know what item you love that really helps you live with chronic illness! Email us at pempodcast23@gmail.com Twitter: @pempodcast23 D...

Anna Wood tells us about her book, 25 Birds, and her ME story. You can contact Anna via twitter @Annakwood or contact our podcast e-mail below if you would like her to send you the audio for her book and we'll pass details on. Anna's book, 25 Birds can be purchased on Amazon here: https://www.amazon.co.uk/25-Birds-Anna-K-Wood/dp/1739139100 If you're interested in taking part in the ME/...

Listen to Daniel tell his ME story. Cog fog corner returns and we have a poignant poem by Jo Bruce (@therealmecfs on twitter). Exhaustion enterprises attempt to sell us a new service! Note from Dan: Dan here. I just wanted to clarify my comment about ME not being degenerative. While many of us experience ebbs and flows with our illness, for some with severe ME, the condition very much can be progr...

Get to know Dov as he tells a little of his ME story. We talk about the challenges of cognitive dysfunction, hear from our new questionable 'sponsor' Exhaustion Enterprises and finish with a poem. This episode is 40 minutes long. Please feel free to watch in stages as your health allows! Email us at pempodcast23@gmail.com Twitter: @pempodcast23 Dov can be found on Instagram: dovshlomo Art...

Introduction to our podcast about living with ME/CFS, creativity and making meaning with Dov Zeller and Daniel Moore. E-mail us at pempodcast23@gmail.com Find us on social media (coming soon!)