Post-Exertional Mayonnaise

Second part of Dan's road trip. Keep listening to the end to hear me a little drunk! Be aware that there's background noise in the last minute and 26 seconds. In this episode Dan talks about cancelled trains, the experience of seeing old friends from a different world and reflections on Palestinian and very severe ME suffering. Keep singing people. I talk briefly about a go fund me page fo...

Hi, Dan here. Sorry it's been a while since we've made any content. I've been going through some stuff and Dov's running on low energy. Anyway. I've seen a level of improvement over the last year and particularly over the last six weeks. So for the next week and a half I'm off on a road trip to meet old friends, meet good friends for the first time and maybe get drunk if I get the opportunity! I'l...

In this episode of Post-Exertional Mayonnaise, Dov Zeller, Litsa Dremousis and Daniel Moore discuss the challenges of living with ME and chronic illness, focusing on the fluctuations in health and the emotional costs associated with these ups and downs. They share personal experiences, listener contributions, and coping strategies, emphasizing the importance of community support and understanding...

In this episode of Post-Exertional Mayonnaise, the hosts, Daniel Moore, Litsa Dremousis and Dov Zeller delve into the intersection of chronic illness and toxic religion, exploring the emotional and spiritual harm that can arise from religious beliefs. They discuss Kate Bowler's book, 'Everything Happens for a Reason and Other Lies I've Loved,' which addresses the imposition of reas...

In this episode, Daniel Moore, Litsa Dremousis and Dov Zeller discuss the complexities of living with ME and the role of social media in building community and relationships. They explore the impact of isolation, the significance of online friendships, and the challenges of navigating medical misinformation. The conversation emphasizes the importance of finding balance in online interactions and t...

In this episode of the Post-Exertional Mayonnaise podcast, Daniel Moore, Litsa Dremousis, and Dov Zeller discuss the challenges of living with ME and chronic illness, the impact of recent losses in the community, and the importance of navigating personal and political changes. They reflect on coping mechanisms, the significance of community support, and the role of media in providing comfort. The...

In this episode of the Post-Exertional Mayonnaise podcast, host Daniel Moore speaks with Merel van der Noop, the music director of the Long COVID Choir and Long COVID Kids Choir. They discuss Merel's personal journey with Long COVID, the challenges of navigating healthcare, and the transformative power of music in coping with chronic illness. The conversation highlights the importance of community...

In this episode of Post-Exertional Mayonnaise, hosts Dov and Daniel explore the themes of social isolation and sensory overload experienced by those living with ME and chronic illness. They discuss the impact of these conditions on social lives, the challenges of navigating social interactions, and the absurdity of medical care. The conversation highlights the emotional toll of social deconditioni...

In this episode of the Post-Exertional Mayonnaise podcast, Daniel Moore speaks with Lisanne Jacobs, a songwriter and chronic illness advocate, about her journey with ME and the role of creativity in coping with chronic illness. Lisanne shares her personal story, including her diagnosis, struggles with healthcare, and the importance of music as a form of expression and healing. They discuss the cha...

In this episode, our third and final part of our chronic illness and cancer mini-series, Oonagh Carr talks to Daniel about her profound journey living with long COVID and a subsequent breast cancer diagnosis. She discusses the drastic changes in her life, the challenges of navigating the healthcare system, and the importance of community support. Oonagh emphasizes the need for better understanding...

Catherine Hale shares her chronic illness story and the journey of founding the Chronic Illness Inclusion Project. She discusses the challenges of living with ME and the impact it has had on her life, including the loss of being a parent and the realization that her future may be cut short. She also talks about the difficulties of finding flexible work opportunities and the lack of representation...

This episode of the Post-Exertional Mayonnaise podcast features a conversation about living with ME and cancer. Jennifer Smith shares her experience of being diagnosed with ME in 2020 and later being diagnosed with breast cancer. She discusses the challenges of navigating medical appointments and treatments while dealing with severe ME symptoms. Litsa Dremousis also shares her experience of being...

Anneke Vliegen, author of Recognise ME, shares her memoir about medical gaslighting and living with chronic illness. She discusses her journey from childhood to adulthood, experiencing various symptoms and misdiagnoses along the way. Anneke emphasizes the importance of open and honest communication in her relationships. She reflects on the challenges of losing friendships and offers advice to othe...

Jessica Dove London, founder of the Turnto app, joins Daniel to discuss her journey and the purpose of the app. The app aims to bridge the knowledge translation gap in healthcare by providing people with ME and Long Covid with curated research, lived experiences, tips, and insights related to their specific health conditions. The app delivers personalized updates on a daily basis, allowing users t...

In memory of Maeve Boothby O'Neill, we re-release this episode from 2023 whereby Sarah Boothby reads excerpts from Maeve's unpublished novel, The Alchemists; or Economic Consequences of the peace. In a small Dartmoor village, the postman goes missing and is found unconscious in a hedge. The villagers speculate about what could have happened, but the truth remains a mystery. The story explo...

In Which Daniel Tries a Smoothie and Learns that GET was sold for $20,000: Rachel Riggs, also known as the food phenom on Instagram, joins Daniel to discuss her journey living with ME and her passion for food and nutrition. Rachel shares how Jason Mraz came to endorse her upcoming book, All in Good Taste, and the challenges she faced in the publishing industry as a disabled cookbook author. She al...

Dan and Dov catch up to launch our new patreon service. Patreon is a website and app which enables you to give regularly to support the podcast. We will also sporadically be posting exclusive shorter episodes directly to Patreon for members. If you choose a paid support level of $5 per month or more, we'll send you a podcast tote bag or mug as our gift to you! Once you've signed up to our...

Apologies for initial sound problems. We had some technical difficulties at first and needed to try and clean up the sound. Please do stick with us though! In this conversation, Dan, Dov, and Jeremy Jeffs discuss Jeremy's project of photographing people with ME. Jeremy shares his own experience with ME and how he got into filmmaking and photography. They explore the different challenges and re...

Content Warning: Discussion includes end of life care and Medical Assistance In Dying. Jeffery Smith shares his experience living with ME and cancer. He discusses the challenges he faced as a queer individual growing up in a small town and the impact of societal stigma on his self-perception. Jeffery talks about his journey with ME, starting with a bout of Mono (Glandular Fever) that eventually le...

Daniel meets Oonagh Cousins, a research fellow studying Long Covid at Oxford University. Oonagh is also a former professional rower with team GB. We talk about her personal experience of long covid, processing chronic illness guilt and grief, and her brief engagement with the Lightning Process, a programme which claims to treat ME and Long Covid through a form of brain retraining. https://www.bbc....

Dan meets rapper and hip hop artist, Mama Chill, A.K.A, Stacy Hart to discuss her recently released track, 'The ME Scandal' as part of ME awareness month. Stacy shares with great openness about her love of hip hop, as well as her ME story and how she was gaslit and neglected by medical professionals. She explains how she waited many years for diagnosis and support. After two years of waiti...

Dov and Dan get together to review the first year of the podcast, looking back to how it all started and looking ahead to what we hope to achieve going forwards. It's been quite a year. If you have been with us since the beginning. Thanks for sticking with us. If you've just found us, welcome!  We had technical issues on this episode, so backup video was used for the first five minutes and...

Daniel meets with Steve Topple and Nicola Jeffrey from The Chronic Collaboration. Here, they discuss how they met, their own personal values around campaigning in the areas of disability and chronic illness and the need for change with regard to how campaigning is undertaken for people with ME and other intersecting chronic illness conditions. Whilst we talk in this episode about mainly UK issues...

Ahead of world ME day 2024 Daniel spoke to Australian Actress and Activist Eliza Charley. Eliza tells her own very personal Myalgic Encephalomyelitis story and reflects on her experiences of Graded Exercise and Brain re-training programmes and stresses how ultimately these left her more ill and questioning her sense of self. We also talked about finding language to express ourselves and the import...

Daniel speaks in this episode to Lia Pas, a multi-disciplinary artist and composer from Saskatoon, Canada. In this wide ranging discussion we talk about whether its possible to flourish whilst living with ME. The Hum on ko-fi: https://ko-fi.com/s/872acbb154 Modern Stoicism Stoic Week info: https://modernstoicism.com/stoic-week/ Instagram (piano improvs and embroidery work): https://www.instagram.c...