PodcastDX

On today's show we are talking once again with Kathy Reagan Young!  Kathy is a strong patient advocate in the MS world and hosts a website called FUMSnow and has her own podcast.  She recently began teaching a course called "Patients Getting Paid" and is here to talk about that today.  If you would like to find out more about Patients Getting Paid, you can check out Kathy's Facebook Page Here! And...

A cataract develops when the lens in your eye, which is normally clear, becomes foggy. For your eye to see, light passes through a clear lens. The lens is behind your iris (colored part of your eye). The lens focuses the light so that your brain and eye can work together to process information into a picture. When a cataract clouds over the lens, your eye can't focus light in the same way. This le...

Winter storms and cold temperatures can be dangerous. Stay safe and healthy by planning ahead. Prepare your home and vehicles. Prepare for power outages and outdoor activity. Check on older adults. Although winter comes as no surprise, many of us may not be ready for its arrival. If you are prepared for the hazards of winter, you are more likely to stay safe and healthy when temperatures start to...

On today's show we are speaking once again with Sheila Ames.  As you may recall, Sheila is a Registered Nurse and the founder of "Ames Alchemy Coaching" which can be found on Facebook and Instagram.  Today she joins us to discus her life-long struggles with migraines.  A migraine is a headache that can cause severe throbbing pain or a pulsing sensation, usually on one side of the head. It's often...

According to Mayo Clinic Psoriasis is a skin disease that causes red, itchy scaly patches, most commonly on the knees, elbows, trunk and scalp. Psoriasis is a common, long-term (chronic) disease with no cure. It tends to go through cycles, flaring for a few weeks or months, then subsiding for a while or going into remission. Treatments are available to help you manage symptoms. And you can incorpo...

Patients with Sickle Cell Disease (SCD), often have underlying cardiopulmonary co-morbidities that may predispose them to poor outcomes if they become infected with SARS-CoV-2. ​ Our returning guest today is Agnes Nsofwa RN,MsN,BBA Founder and Executive Director Australian Sickle Cell Advocacy Inc.  

In this episode we will discuss Myasthenia Gravis, an Autoimmune Disease affecting the neuromuscular system of the body with Tasha White.  We spoke with Tasha a few years back and wanted to touch base and see how she is doing in the midst of the pandemic. Tasha White, Director of a new Non-profit organization called "My Walk with MG" located in St. Louis, MO.   The CDC has announced authorization...

Your  immune system  is your body's main defense against germs and illnesses. When you have  lupus , you're more prone to infections because your immune system works differently than most people's. It becomes overactive and attacks your body itself. Our guest on today's show is another repeat guest,  Amber Blackburn.  Amber is a Registered Nurse turned blogger and patient advocate for those with c...

  Narcolepsy is a chronic sleep disorder characterized by overwhelming daytime drowsiness and sudden attacks of sleep. People with narcolepsy often find it difficult to stay awake for long periods of time, regardless of the circumstances. Narcolepsy can cause serious disruptions in your daily routine.  Our guest today is Lindsey who will discuss her life post-covid with narcolepsy.   ​ Lindsey gre...

A hiatal hernia occurs when the upper part of your stomach bulges through the large muscle separating your abdomen and chest (diaphragm). Your diaphragm has a small opening (hiatus) through which your food tube (esophagus) passes before connecting to your stomach. In a hiatal hernia, the stomach pushes up through that opening and into your chest. A small hiatal hernia usually doesn't cause problem...

Squeeze a world of passion, goal driven problem solver and an adventurous triathlete into 5 feet of fun and you get Faith Louise Cooper. Faith Louise grew up in a family of 5 with 2 younger sisters.  At the 12 she was diagnosed with Juvenile Rheumatoid Arthritis, now known as Juvenile Idiopathic Arthritis.  In 2017 she was diagnosed with hypermobility syndrome and was recently changed to Hypermobi...

Hepatitis means inflammation of the liver. The liver is a vital organ that processes nutrients, filters the blood, and fights infections. When the liver is inflamed or damaged, its function can be affected. Heavy alcohol use, toxins, some medications, and certain medical conditions can cause hepatitis. However, hepatitis is often caused by a virus. In the United States, the most common types of vi...

Gina Rapacz is a 48 year old mother of 2 teenage daughters living in the Chicago suburbs.  She recently had a liver transplant after hers failed and she lingered on the transplant list in Chicago for just over a year.  Gina is a powerful woman who has endured a variety of personal tragedies.  There is not a challenge she can't handle.  It is this strength that has allowed her to get through the se...

On this week's show we are speaking once again with Kristine Hoestermann, the founder of " FindYourRare " and she will be explaining how difficult it has been to get a diagnosis for Ehlers Danlos Syndrome and where that diagnosis took her (Brittle Cornea Syndrome & the BRCA Gene for Breast Cancer are the latest two)  Heeeeere's Kristine!   Allow me to introduce myself🦓My name is Kristine (kk). I...

In this episode we will discuss not just continuing life after a horrific injury, but excelling and living life to it's fullest, minus two arms and two legs.  United States Army Staff Sergeant Travis Mills of the 82nd Airborne was critically injured on his third tour of duty in Afghanistan by an IED (improvised explosive device) while on patrol, losing portions of both legs and both arms.   

For our very first Throwback Thursday episode we celebrate the bravery of our men and women that have served in the United States Armed Services!   In this episode we will discuss not just continuing life after a horrific injury, but excelling and living life to it's fullest, minus two arms and two legs.  On April 10, 2012, United States Army Staff Sergeant Travis Mills of the 82nd Airborne was cr...

We are welcoming back Myisha Malone-KING.  As you may recall Myisha spoke with us in season 7 about Crohn's Disease and just last week about her daughter's severe asthma.  Myisha is a passionate dedicated advocate she's received proclamations from states for recognition of her advocacy and IBD awareness.  Besides her challenges with Crohn's, she ended up catching COVID last year!! ​ Having  Crohn'...

As you may recall Myisha spoke with us in season 7 about Crohns Disease.   Myisha is a passionate dedicated advocate she's received proclamations from states for recognition of her advocacy and IBD awareness.  Besides her challenges with Crohns, Myisha has a duaghter with severe asthma and is here today to discuss her daughters' journey. ​ Patients with severe asthma use the highest dose of inhale...

COVID is a rough disease no matter how you look at it, however COVID when you already have a rare disease?  That has to be extra hard!  Barby Ingle joins us once again to discuss the ramifications in these trying times. ​ To reach Barby you can email: Barby@InternationalPain.com Barby Ingle, BSc Psyc, President, Editor-in-Chief International Pain Foundation, iPain Living Magazine

In this episode we will discuss Halloween Safety during COVID   ​ Fall celebrations like Halloween and Harvest Day are fun times for children, who at one time could dress up in costumes, enjoy parties, and eat yummy treats. These celebrations also provide a chance to give out healthy snacks, get physical activity, and focus on safety. ​ Check out these tips to help make the festivities fun and saf...

Jenny was diagnosed as a child with the rare diseases Familial Adenomatous Polyposis (FAP) and Short Bowel Syndrome. She lived with an ileostomy for 6 years before having it reversed into a straight pull thru. In her spare time, Jenny shares about life with rare disease on Life's a Polyp blog and Youtube channel. She raises funds for NORD FAP Research Fund through Life's a Polyp Shop and is writin...

Marci Bene, is a health coach from Hungary with a focus on the human nervous system and after he suffered through Covid a couple months back he created a protocol to bounce back from the after-effects of this virus. Thanks to it he recovered quickly.  He is trying to reach out to as many as he can to educate on the functions and workings of the nervous system. The protocol was designed so that any...

"The Desire to Serve, The Ability to Perform, The Courage to Act" ​ Nicholas Palczer host of the new podcast: Bottom Line Nursing! He has his Bachelors in Nursing, Associates in Nursing, &  Associates in Fire Science He is currently an Active Duty Air Force Nurse, which he has been for 9 years and was an Enlisted Firefighter/EMT before he got commissioned!  He has been stationed at overseas and st...

Dr. Mafee is dual board certified in Neurology and Integrative Medicine.  As such, she is passionate about using functional and integrative philosophies to prevent & reverse a host of chronic conditions.  Dr. Mafee is particularly focused on helping patients work through neurodegenerative disorders.   Dr. Mafee joined the Case Integrative Health team in March 2020. ​ Neurodegenerative disease is a...

This week we have the pleasure of speaking once again with Lauren Ryan.  She joined our show previously and was more than happy to join us again to discuss a dizzying diagnosis: VERTIGO!    Vertigo is a symptom, rather than a condition itself. It's the sensation that you, or the environment around you, is moving or spinning. This feeling may be barely noticeable, or it may be so severe that you fi...