PeDRA Pearls

Join Jennifer Schoch, MD as she discusses the successes of the research program at the University of Florida Dermatology and the importance of funding. This program originally aired in July of 2020. To view the original webinar, please click here .

Listen as Dr. Jen Schoch moderates a podcast discussion on the pros and cons of sunscreen use in children under the age of 6 months. Joined by two esteemed guests, Dr. Irene Lara-Corrales, and Dr. Jeannette Jakus, this conversation identifies not only the pros and cons, but offers sunscreen alternatives, and discusses future potential research projects. This program originally aired in December of...

Season three concludes with an interview featuring Sonal Shah, MD. Dr. Shah is the Director of Pediatric Dermatology at University Hospitals Rainbow Babies & Children’s Hospital and holds the position of Associate Professor of Dermatology at Case Western Reserve University School of Medicine. Alongside Dr. Leah Lalor, she is a co-founder and co-leader of PeDRA’s newest Focused Study Group (FSG...

This is part two of a two-part miniseries about the importance and value of patient partners. Learn how to engage patients as research and data strategy partners with Suz Schrandt. This program originally aired as a webinar in the spring of 2020. To view the webinar, click here .

The group discusses the current research and what the next steps are to better define these lesions, and when and how to treat them. They also answer questions from our live studio audience. To learn more about current PeDRA studies, please click here .

Dr. Berrebi discusses her parameters for monitoring vs. excision and Dr. Gerami discusses how to uncover the true nature of the lesion through a variety of testing options.

The group discusses the ever-changing terminology and why it matters. Listen as episode one lays the foundation for a great discussion on genomics.

We are rounding out EB Awareness Week with this Monday’s Podcast Rerelease. Originally airing in April of 2021, this Abeona Sponsored Webinar, Gene Therapy for Large Chronic Wounds in Recessive Dystrophic Epidermolysis Bullosa, was presented by Jean Tang, MD, PhD. Dr. Tang provided an update on the EB-101 pivotal Phase 3 VIITAL study and answered questions from the audience. To view the original w...

In honor of Epidermolysis Bullosa (EB) awareness week starting today, we are re-releasing an audio version of an Amryt Pharma-sponsored webinar that originally aired in December of 2021. Listen as Dr. John Browning from Baylor College of Medicine and Dr. Lara Wine-Lee from the Medical University of South Carolina discuss a promising new treatment for wound healing in EB patients. Click here to vie...

PeDRA member, Colleen Cotton, MD, recently presented at the 2023 Symposium on Hidradenitis Suppurativa Advances (SHSA). In this episode, Dr. Colleen Cotton sits down with PeDRA to give a quick summary of the SHSA meeting and make a special announcement about an upcoming PeDRA educational initiative. SHSA is an annual meeting organized by the Hidradenitis Suppurativa Foundation (HSF) to bring exper...

PeDRA had the privilege of attending the Symposium on Hidradenitis Suppurativa Advances (SHSA) in Phoenix, AZ in October 2023. During the meeting, PeDRA’s Associate Director of Educational Programs interviewed three amazing presenters to discuss the incredible work being done in this space. First up is Lynn Petukhova, PhD, discussing her ground-breaking work in Hidradenitis Suppurativa (HS) geneti...

Get to know Cristy Garza-Mayers, MD, PhD. Dr. Garza-Mayers is an Instructor at Harvard Medical School and a pediatric dermatologist at Mass General Brigham with an interest in vitiligo. In addition to her work on PeDRA's Early Investigator Committee, she also serves as a mentor through the PeDRA Mentorship Program and has received funding for her research projects through two grant programs. Learn...

Join Dr. Dawn Davis from the Mayo Clinic for a conversation with two patient advocates as they discuss the patient experience with new and traditional AD therapies and share thoughts on how patients and providers can best work together. This program originally aired in December of 2020.

Monday Re-release continues with the first of two podcasts from the Emerging Therapies for Moderate to Severe Atopic Dermatitis in Children series. Listen as distinguished faculty in pediatric dermatology and allergy/immunology talk about new and emerging treatments and important research issues for moderate-to-severe atopic dermatitis in children. This program originally aired in November of 2020...

Industry 101 is back with Episode 3 – Working with Large and Small Pharma. In this episode, Dr. Harper Price discusses the differences between companies with special guests Dr. Michael Howell and Dr. Jim Lee. Listen to discover insightful strategies for networking with both large and small companies and learn how the differences between companies are not so vast after all. Click here to listen to...

It’s Eczema Awareness Month, so this Monday Re-release is PeDRA’s first multi-episode educational series - Emerging Therapies for Moderate to Severe Atopic Dermatitis in Children. Listen to two programs originally aired as webinars in the fall of 2020. This episode features presentations about biologics, JAK inhibitors, and allergy perspectives for the treatment of pediatric atopic dermatitis. To...

Monday Re-release continues with the second webinar in the Emerging Therapies for Moderate to Severe Atopic Dermatitis in Children series – Pediatric Atopic Dermatitis: Algorithms for the Future. Featured guests offer presentations and discussions on emerging topical therapies, new and traditional systemics, considerations when choosing the right treatment for the right patient, and hot research t...

Today’s Monday Re-Release is PeDRA’s three-part series on survey writing. Originally airing in the spring of 2021 as a webinar series, this three-part program provides a high-level overview of the design, execution, and analysis of an online research survey. Covering everything from building a survey team to sampling techniques to data collection and preparation for publication, this series will p...

Continuing the Building a Research Survey series with part two – Designing an Online Survey. To view the original webinars, please click here .

The final installment of the Building a Research Survey series is Preparing a Survey and Gathering Data. To view the original webinars, please click here .

This special episode is part of the Eczema Counts game, a collaborative education initiative between the National Eczema Association (NEA) and PeDRA . In this episode, you’ll hear from two leaders of the Eczema Counts project: Dr. Joy Wan, assistant professor of dermatology at Johns Hopkins University, and Silena Gaines, a caregiver for a child with eczema. Learn about how Dr. Wan and Silena have...

Get to know the 11th PeDRA Annual Conference with special guests, Conference co-chairs Lisa Arkin, MD, and Esteban Fernandez Faith, MD. Learn more about the philosophy behind the PeDRA meetings, how to make the most of the meeting, and how patients are at the heart of our community collaboration. The PeDRA Conference is taking place in Atlanta, GA, November 9-11, 2023. Register Today !

Dr. Britt Craiglow interviews a patient family living with alopecia areata. Gracie, a 13-year-old, 8th grader shares her own alopecia areata experience with her rapid hair loss right before beginning middle school, and the importance of being involved in a clinical trial. Her inspiring story offers comfort to other children with alopecia areata and reminds us all why research is so important. Plea...

Two of our dedicated PeDRA members, Amy Paller, MD and Andrea Rustad, a fourth-year medical student at Northwestern University Feinberg School of Medicine, recently published a children’s book, Skin-Vincible, in collaboration with the Foundation for Ichthyosis & Related Skin Types. Through the experiences of its main character, Cece, this book addresses skin differences and how to cope with bu...

In part two of our Community Spotlight podcast featuring the Foundation for Ichthyosis and Related Skin Types (FIRST) you’ll hear from the Cina Family as they discuss the important role patient advocacy organizations play in supporting families. Sean and Jolie Cina have two children with ichthyosis – Portia (16) and Miles (12), and found FIRST shortly after Portia was born and diagnosed. Now, 16 y...