PeDRA Pearls

In our final Industry 101 episode we explore the vital role of Key Opinion Leaders (KOLs) in shaping industry trends, innovations, and healthcare practices. In this podcast we delve deep into the qualities industry is looking for in a KOL, why they are important, how to resolve conflicts when they arise, and what early investigators can do now to position themselves to become KOLS. Whether you’re...

In episode three of Getting to Know Your Research, Dr. Joyce Teng and fourth-year medical student Austin Johnson discuss their 2022 PeDRA Research Fellowship, focusing on Epidermolysis Bullosa Simplex Disease Activity and Response Tool (EBSdart): Scoring Clinical Severity and Outcomes in Epidermolysis Bullosa Simplex . Learn more about their mentorship relationship and discover the process behind...

In episode two, PeDRA Pub Club host, Donglin Zhang and guest panelists, Christina Boull, MD, Diana Reusch, MD, and Cristina Foschi, MD, discuss a recent PeDRA publication, Assessing Pain Catastrophizing and Functional Disability in Pediatric Epidermolysis Bullosa Patients . This study was originally published in May 2023 in Pediatric Dermatology. Whether you’re a longtime pediatric dermatologist,...

April 20, 2023 Irene Lara-Corrales, MD is an associate professor of dermatology at the University of Toronto and a pediatric dermatologist at The Hospital for Sick Children (SickKids) in Toronto, Canada. She always knew she wanted to be a pediatric dermatologist, and her interest in epidermolysis bullosa (EB) grew deeper after treating a young baby with EB during her residency in Costa Rica. Most...

In Episode Two of Getting to Know Your Research, Dr. Kristen Berrebi discusses her 2020 PeDRA Research Grant, A Multi-Center Retrospective Cohort Study on the Utility of Ancillary Studies in the Risk Assessment and Management of Spitz Nevi, Atypical Spitzoid Tumors, and Spitzoid Melanoma in the Pediatric Population . Learn more about this project and the pivotal contributions of medical students a...

Dr. Yvonne Chiu discusses the findings of her collaborative study – Body site distribution of pediatric-onset morphea and association with extracutaneous manifestations. Learn about the different morphea categories, and whether or not certain locations of linear morphea are risk factors for extracutaneous involvement. This webinar originally aired in 2021. To view the video version of this present...

Dr. Streicher is an Assistant Professor at Indiana University School of Medicine. She’s currently co-chairing PeDRA’s Birthmarks Focused Study Group*. She became interested in pediatric dermatology while in medical school at Indiana University after completing a peds derm rotation with Dr. Anita Haggstrom. Her training took her to Georgia and Pennsylvania, and she’s come full circle back to Indian...

Hidradenitis Suppurativa (HS) expert, Haley Naik, MD of the University of California, San Fransisco joins Drs. Cotton and Lara-Corrales for a comprehensive discussion about diagnosis and treating early onset HS in the clinic and highlights the specific research taking place globally to help change outcomes for pediatric patients suffering from this devastating condition.

In this episode, PeDRA Pub Club host, Donglin Zhang and guest panelists, Christina Boull, MD, Diana Reusch, MD, and Cristina Foschi, MD discuss a recent PeDRA publication, Clinical Characteristics of Infantile Hemangiomas with Aggressive, Persistent, and Destructive Ulceration . This collaborative, multi-site, retrospective study was originally published on October 16, 2023, in Pediatric Dermatolo...

Welcome to "How We Made it Count," a special podcast that takes you behind the scenes of the Eczema Counts project. This collaborative effort, fueled by an engagement award from the Patient Centered Outcomes Research Institute also known as PCORI, aimed to educate and inspire caregivers, patients, and researchers alike. Through a series of virtual games and in-person sessions, Eczema Counts went b...

In case you missed it, PeDRA produced two sponsored webinars with Novan in the Spring of 2023. If you would like to view the video versions of these presentations, please click here . For more resources about molluscum, please click here .

As we gear up to release the first episode of our new Hidradenitis Suppurativa Podcast series, we dipping into the archives for a publication presentation from Dr. Irene Lara-Corrales about this international, multicenter, retrospective, cross-sectional study of 481 pediatric patients revealed a gap in diagnosis, and that HS patients are likely to suffer from other comorbidities. Learn more about...

Dr. Markus Boos discusses the influence of gender and sexual identity in adolescent skin health. His findings reiterate the importance of recognizing implicit bias and ensuring sexual/gender minority (SGM) children are being treated with the same holistic, respectful care as non-SGM children. Watch to learn more. To view the video presentation of this program, please click here .

Season four of Getting to Know You shakes up our format with a new twist. This season, we are getting to know the amazing research that PeDRA members are doing. In our first episode, nurse practitioner, Emily Croce, PhD, MSN, APRN, CPNP-PC talks us through her 2022 Childhood Eczema Challenge grant, The Role of Outdoor Air Pollution on Disease Burden and Racial Ethnic Disparities. Learn how this pr...

Lisa Arkin, MD presents the findings of a PeDRA study: Clinical and Histologic Presentation of Pediatric Reactive Granulomatous Dermatitis. This program originally aired in May of 2020. To view the video version of this presentation, please click here .

In this mini Community Spotlight, PeDRA shines a light on The Association of Hidradenitis Suppurativa and Inflammatory Diseases (AHSID). Learn about the work  AHSID  does for the patient and provider communities in an interview with founder and CEO Jasmine Espy. AHSID has volunteer opportunities! If you are interested in volunteering, please  click here  to apply. To view the v...

Olivia Davies, MD discusses the findings of a recent publication – Hamartomas and midline anomalies in association with infantile hemangiomas, PHACE, and LUMBAR syndromes. To view the video version of this program, please click here . This program originally aired in June of 2020.

Listen now to a special PeDRA Publication Presentation about a recent collaborative publication in the British Journal of Dermatology. Alexis Sokoloff is a young woman living with Down syndrome and hidradenitis suppurativa (HS), and together with Dr. Jillian Rork, Morgan Dykman, and Gwen Sokoloff, she discusses the publication and shares what she wants providers to know about treating HS in the Do...

The Drugs and Bugs Focused Study Group presents a spirited conversation on whether Reactive Infectious Mucocutaneous Eruption (RIME) should be a separate condition from Stevens-Johnson Syndrome (SJS). Moderated by Dr. Michele Ramien, Dr. Erin Mathes, and Dr. Yvonne Chiu debate RIME, SJS, and other blistering severe cutaneous adverse reactions. In this three-part miniseries, episode one presents th...

Past PeDRA Research Fellowship Grant recipient, Angel D. Pagan Gonzalez, MD, presents this single-site research study about the success of Dupilumab in children and adolescents.  Dupilumab Improves Clinical Scores in Children and Adolescents with Moderate to Severe Atopic Dermatitis . To view the video version of this presentation, please click here .

Blistering severe cutaneous adverse reaction in children: proposal for pediatric-focused clinical criteria. Dr. Michele Ramien summarizes a collaborative study on blistering severe cutaneous adverse reactions (SCAR) in children. It’s very important to diagnose these reactions early and accurately as they can be life-threatening. The study created categories that are more appropriate for diagnosing...

In episode four, Dr. Harper Price facilitates a dynamic conversation alongside Beth Drolet, MD, and Michael Howell, PhD, exploring the significance of investigator-initiated studies. They delve into the reasons behind its importance and provide insights on when and how to initiate such studies. The discussion emphasizes that collaborating with industry and spearheading a study can be a manageable...

Presented by the Acne and Hidradenitis Focused Study Group and moderated by Dr. Irene Lara-Corrales, Drs. A. Yasmine Kirkorian, and Izzy Andrews discuss the treatment options for pediatric hidradenitis suppurativa and highlight the research that is still needed to understand and treat this devasting disease effectively. Listen to learn more. The program originally aired in May of 2022.

The Down syndrome sub-group presents a discussion on the use of immune modulators in children with Down syndrome. Moderated by Dr. Jillian Rork, Drs. Emily Gurnee, Kristen Holland, and Kishore Vellody take a deep dive into skin conditions and treatments for children with Down syndrome and highlight exciting new research on the horizon. This program originally aired in February of 2022.

So you’ve got the funding, now how do you make the research happen? Hear from three funded PeDRA investigators and learn how they assembled their teams, tackled the paperwork, and got their projects off the ground. Don’t miss this great opportunity to learn from their experiences! This program originally aired in April of 2021. View the video version of this presentation here .