Patient from Hell

When we think of a cancer diagnosis, we focus on the physical ramifications of the disease. But a cancer diagnosis also leads to major financial costs. Today we are speaking with Rosie Cunningham, COO of Family Reach, about financial toxicity , health inequities and tips for patients and caregivers on how to navigate the financial landscape of a cancer diagnosis . Key highlights: 1. Financial toxi...

We are kicking off 2023 with the fabulous cancer survivor, healthcare entrepreneur and thought leader, Jennifer Hinkel. As a survivor of Stage III Hodgkin Lymphoma, Jennifer has a special interest in oncology innovation as a cancer survivor. She is passionate about using data to improve the lives of cancer patients, and also making sure that patients are aware and compensated for the use of their...

Key highlights: The art and science of personalized cancer treatment. What are tumor boards, how do they work, and why are they important for cancer treatment decision-making? Team-based oncology care delivery, understanding patient preferences, and providing appropriate care. The business of oncology and how reimbursement influences patient care decisions. About our guest:  Dr. Gabriel A. Brooks...

In this episode, we cover: Intersectional experience as a cancer survivor across sex, sexuality, and dating. Nuances of cancer stigma in South Asia and how to navigate it.  The need for creating resources specific to the South Asian Young Adult community. About the guest: Sanjay is a Learning Designer who currently leads L&D at Pride Circle. He has previously worked as a part of the Founding T...

In this podcast we cover - How to live a life with an incurable cancer Using creativity in moments of darkness Creating a cancer support community for South Asians About Sanjay Deshpande : Sanjay is a Learning Designer who currently leads L&D at Pride Circle. He has previously worked as a part of the Founding Team of Harappa Education and the skilling team of NASSCOM Foundation. He is passiona...

Key takeaways: The changing role of the Oncologist - Starting as the Sherpa, transitioning to a mentor, and then breaking up! Awareness of barriers the LGBTQ community faces in accessing healthcare The distinction between addressing reproductive health and sexual health in cancer care About Dr. Don Dizon: Don S. Dizon, MD, FACP, FASCO, is an oncologist who specializes in women's cancers. He is...

In this podcast, we cover - Jessica Fishman’s journey dealing with her mother’s death and inheriting the BRCA1 mutation Living, while knowing you will get cancer.  Navigating survivorship, finding a way back into the society and enhancing meaning through giving back to the community Jessica Fisherman is the Founder of a Non-Profit called, Soulful Sunflower. Jessica was 34 when she was diagnosed wi...

Insights from this podcast episode: Experiencing breast cancer as an AYA (adolescent and young adult)  Self-care, the role of journaling and mental health as a cancer patient The role and impact of community for supporting young cancer survivors and patients Yvonne had been working in healthcare for over 9 years when she felt a tightness in her left chest. At first she thought it was from doing to...

Key Takeaways:  1. Overview of ovarian cancer.  2. Karen’s journey and experience of building the National Ovarian Cancer Coalition (NOCC) and the power of the community 3. The science and symptoms of ovarian cancer; building awareness and education resources for women About Karen Young and the National Ovarian Cancer Coalition Karen Young has been working in the nonprofit sector for more than 35...

In this podcast we cover: 1. Personal experience and reflections from being a caregiver 2. Understanding the survival early-stage oncology investing ecosystem 3. Emerging themes and trends in oncology innovation and patient care About our guest: Mark Mendel is the Managing Director of Mendel Consulting LLC. They advise fund managers and scientific and technical founders, and guide company-building...

In this podcast we cover - 1. Nuances of understanding value-based care and the invisible care-giver economy 2. The importance of caring for caregivers 3. Insights on who the caregivers are and their experience with COVID Nirav R. Shah, MD, MPH, is Senior Scholar at Stanford University’s Clinical Excellence Research Center. He is a leader in patient safety and quality, innovation and digital healt...

In this podcast, we cover -  1. Taking PanCan global and multicultural insights on cancer 2. The art of translating a movement into a sustainable organization 3. Importance of doing the hard and obvious things As the Chair and Chief Executive Officer of Translating Research Across Communities (TRAC), Paula Kim brings more than 30 years of executive and entrepreneurial leadership in business and no...

In this podcast we cover - 1. Learnings and insights from the early days of setting up PanCan 2. Art and science of community building 3. Nuances of interdisciplinary collaboration and personal learning and upskilling in the face of complexity As the Chair and Chief Executive Officer of Translating Research Across Communities (TRAC), Paula Kim brings more than 30 years of executive and entrepreneu...

In this podcast, we cover -  1. Insights on the evolution of medical science, public policy and funding for cancer care in the US 2. The importance supportive care, guidelines and resources, and the role of NCCN and the NCCN Foundation 3. Framework for understanding life-span and quality of life for patients and caregivers Patrick Delaney is the Executive Director of the NCCN Foundation. Pat joine...

In this podcast, we discuss -  1. Is a chess analogy really appropriate for cancer 2. Pros and cons of thinking of cancer in the form of infinite games 3. Nurturing ambiguity and taking high stake decisions Disclaimer:  This podcast is for general informational purposes only and does not constitute the practice of medicine, nursing or other professional health care services, including the giving o...

In this podcast, you will learn about -  1. Are metaphors like “infinite games” valid for approaching cancer care?  2. How to develop your strategy when everything seems uncertain and unclear  3. The importance of rethinking assumptions Show notes: https://pubmed.ncbi.nlm.nih.gov/23892559/ https://link.springer.com/article/10.1007/s11764-021-01085-9?utm_source=xmol&utm_medium=affiliate&utm...

In this episode, you’ll hear about -  1. What does the caregiver ecosystem really mean 2. Second order effects of being diagnosed with cancer 3. Exploring different strategies to grapple with the crisis Manta Maps are coming! Step-by-step subway maps that guide you through the entire cancer experience. Learn more here! Disclaimer:  This podcast is for general informational purposes only and does n...

Meet Samira, founder of Manta Cares and here about her breast cancer story. Manta Maps are coming! Step-by-step subway maps that guide you through the entire cancer experience. Learn more here!⁠ In this episode you will learn -  1. Emotional, psychological and financial cost of being diagnosed with cancer  2. Principles of building a community  of cancer survivors and caregivers  3. Processing suf...