Passing for Normal

In this episode we talk about self care, how ridiculous a lot of the messaging around it is and what we have found to be helpful. We also give a little update on what we have learned about the Australian high(er) school situation and talk about how awesome ASCEND, the upcoming conference hosted by the International Rett Syndrome Foundation.

We talk about how music has played a role in many of our more challenging times and how weird it is to be in a fairly normal little groove.

In this episode we discuss learning a whole new school system, which moves graduation up by two years and how Colleen can't cry so she's incredibly overwhelmed by dress shopping, which should be a fairly simple and straight forward process. We also talk about learning how to podcast and not delete 8 minutes of a show. So much to learn, thank you for being here.

We've had a lot of coffee over the years. Maybe we had too much before we recorded this. Apologies that the microphones aren't more balanced and the conversation wondered, we are learning as we go.

In this episode we discuss our typical daughter Chloe, yet in reality she is anything but typical. She is excellent and has shown us parts of life we would have missed without her. This discussion ended up being a bit more about the wild years when we decided to grow the family and chaos that we managed to survive with two young girls. We also touch on a bit of her perspective with her sisters dea...

A lighthearted discussion about Colleen's disdain for contrived Hallmark holidays like Mother's Day and now the addition of Bereaved Mother's Day.

In this episode we discuss a recent trip Tasmania along with the difference between traveling around Australia, Europe and the US. We also discuss how travel changes in light of our previous experience, with Claire and some of the things we learned getting to go places with her.

Take two! Colleen here. You may have listened to one of the few episodes on the podcast I had recorded, Rare and Unfiltered. I've decided to take this project in a different direction, one that I hope you enjoy. This is a new introduction that included my fabulous partner in crime, Jared. In this episode we talk about the death of our daughter and how that influenced some significant decisions, th...

Chloe joins me as the first guest to the podcast in this episode. We talk about handling awkward questions and grief as a surviving sibling. She is wise beyond her years and it is an honor to share this episode.

This episode addresses my thoughts on how mothers to complex kids are often expected to be Martyrs, how we worked around it and some ideas for realistic self care. If you are interested in my favorite self care tip of breathing, this article is a great place to start.   https://www.seasons.com/breathing-coach-tips-for-caregiver-stress/2675053/

First episode! The production isn't pretty and I am still finding my voice, but this is a start. In this episode I talk about how I wish I had a more complete understanding of grief, including how beautiful life can be. I would love to hear your feedback, I am on Instagram @rareandunfiltered

Hello and welcome! This episode is just a quick bit of background on why I have decided to start the podcast.   Over the last two and a half years I have noticed that there aren't a lot of people in the grief space talking about loosing a child that was multiply disabled. In my case, I am the mom to Claire, who lived with Rett Syndrome for 15 years. When she was first diagnosed there was little in...