Mogil's Mobcast-A Scleroderma Chat

Today I talk with Michelle Morgan, she is a registered dietician nutritionist. Michelle had so much to share about nutrition that this will be a 2 part episode! In part 1, we cover the foundations of nutrition. The 2nd part will be geared towards general nutritional ideas for the gastrointestinal manifestations that occur in systemic scleroderma warriors.  Disclosure: The information and any opini...

Welcome to episode 47 of Mogil’s Mobcast. Today’s guest is Dr. Tracy Frech. Dr. Frech is a rheumatologist. Her primary research and clinical care goals are to increase early diagnosis and improve health care delivery to the systemic sclerosis (SSc) patient population. Today we talk about the digestive tract in which 95% of systemic scleroderma patients have issues with. We discuss all the gastroin...

In today's episode I talk with Dr. Aly Cohen, Rheumatologist, Integrative Medical Specialist and Environmental Health Expert about the brain gut connection. One of my favorite topics.     This episode was recorded last October for the National Scleroderma Foundation Minnesota Chapter Health conference. Dr. Cohen was guest, episode #7. To learn more about her please listen to episode #7. Her b...

Today’s guest is another fabulous Scleroderma warrior, Tameka Nelson. As I interview more and more Scleroderma warriors, I find it intriguing how differently the same disease affects us. For Tameka, the disease attacked her lungs. Let’s learn about her journey! Her clothing store on Instagram is: polish_me_boutiques Her podcast is Apple Podcast at: it could be worse podcast

 Dr. Virginia D. Steen is a Professor of Medicine and Chief of the Division of  Rheumatology at Medstar Georgetown University Hospital. Today, our topic is the lungs. An issue that affects many Scleroderma warriors. We discuss in detail pulmonary arterial hypertension and pulmonary fibrosis. By the time we are done talking, you will be well better informed on this topic!

Today I talk with Patricia Fennell. Patricia is the CEO of Albany Health Management Associates Inc:.  She is an advanced clinical social worker. She is also a scientist and author specializing in chronic illness, trauma, forensics, and hospice care. We talk about her chronic illness, the interesting occupations she has had, and finally we discuss the Fennell Four Phase Treatment (FFPT™) approach....

Today we hear the journey of another scleroderma warrior, Kimberly Gonzalez. Kim had her first symptom at the age of 8 and was finally diagnosed at the age of 12. Through all of her journey Kim has kept a positive attitude and is grateful for every day. Meet Kim and hear her story. 

In today's episode I talk with Nancy O'Brien and Deanna Hokanson about the The Happiness Practice ™(THP).  Nancy is the co-creator of the Happiness Practice and Deanna is a facilitator for the program. In this episode we learn the 5 principles of the Happiness Practice. Deanna also gives examples of how she has applied those 5 principles in her own life .  To learn more about the practic...

In this episode I talk with Susan Murphy, professor and Mary Alore,  Peer Mentor and RENEW Health Coach. Both are part of the amazing University of Michigan Scleroderma Program. We discuss different programs being implemented at the university. Those include the mentor program, the Backers, and some of the research the university is doing. Finally, we discuss the RENEW program and their registry p...

Today I talk with Dr. Michael Hughes, he is a consultant rheumatologist at Salford Royal Hospital, which is a national UK referral center for SSc, and Honorary Senior Clinical Lecturer at The University of Manchester. He has emerged as a leading national and international investigator in SSc and Raynaud’s phenomenon, with a focus on novel clinical assessment of vascular biology and function, inclu...

In this episode I talk with Dr. Saketkoo, she is director and founder of New Orleans Scleroderma and Sarcoidosis Patient Care and Research Center. She is a clinical researcher recognized for her work in clinical trial design, in identifying patients' priorities in life-threatening autoimmune illness including pulmonary hypertension and pulmonary fibrosis, and developing research tools with pa...

In this episode, I talk with Greg Cohen. Greg is a scleroderma warrior. He is a nationally board certified health and wellness coach and a marathon runner. Greg Cohen shares his story on how he chose to spread awareness and raise money for scleroderma. Greg’s positive energy is contagious and uplifting.

Today, I talk with Erin Raber.  Erin is a board certified Music Therapist, clinical mental health counselor, and certified sound healing practitioner. She teaches us the importance of music for our health and how to use music in our everyday routines. To read her bio, go to my webpage mogilsmobcast.com "If you are interested in scheduling an individual or group music therapy session with Erin...

In today's episode I talk with Dr. Lee Shapiro. Dr. Shapiro is a Professor of Medicine in the Division of Rheumatology at Albany Medical College in Albany, NY and directs the scleroderma center there. He is also founder and chief medical officer of the Steffens Scleroderma Foundation.  He has been on the medical advisory board of the Scleroderma Foundation TriState for more than 30 years. Tod...

 Today's episode is with another fabulous scleroderma warrior, her name is Amy Gietzen. Amy was diagnosed with scleroderma at the early age of 19. She has been a strong advocate of sharing her story with the scleroderma world. Amy started a group called Scleroderma Super Stars for patients ages 18-40, which you can now find on Inspire, Inspire is the world's largest and fastest growing o...

 Today's episode is with Celeste Freeman. Celeste is an occupational therapist, certified hand therapist, and has been working with scleroderma patients for around 15 years. She was recently awarded the Paul Brand Award through the American Society of Hand Therapists. You can learn more about this prestigious award in Celeste’s bio. In this episode, we talk about the anatomy of a scleroderma...

Today's guest is Rachel Lando. She is a Scleroderma Warrior with a great sense of humor and has started an organization that offers free fitness for Scleroderma patients and people with chronic conditions. She knows how important movement is, regardless of the condition you’re in. 

Today’s episode is with  Dr. John Pauling. Dr. Pauling is a consultant rheumatologist at North Bristol NHS Trust and an Honorary Senior Lecturer at the University of Bristol Medical School. In today’s podcast, we talk about antibodies and their connection to scleroderma. We define what antibodies are, different types of antibodies found in scleroderma patients, and what those antibodies tell us ab...

In today's episode, I talk with Eileen Laird. Eileen is both inspiring and motivating. She shares her journey with rheumatoid arthritis, which started with her being immobilized and in excruciating pain but is now living a life almost pain free. We talk about how diet, lifestyle, and mindset helped her on her journey to better health. These tenets led her to writing her book: Healing Mindset:...

Today’s episode is with Dr. Antonia Valenzuela, she is a rheumatologist and an assistant professor at the Pontificia Universidad Católica de Chile in Santiago, Chile, where she carries out clinical, academic, and research work with a focus on the study of scleroderma. She is currently working on validation of the Mawdsley Questionnaire, a patient reported outcome for calcinosis in patients with sc...

Today's episode is with Helene Golston, she is a scleroderma warrior. She shares with me what she has endured over the past 26 years. Helene has the cup full attitude as you will be able to hear throughout our conversation.

In today’s episode, I talk with Amy DeMaria. She is the Senior Vice President of Marketing of Inspire. Inspire is the world’s largest social network for health. Inspire brings together people across hundreds of disease communities to connect, share information, and provide support. It is an online community for individuals struggling with their disease. It is a safe, secure, and anonymous website...

In this episode I talk with Physical Therapist Sandy Vojik. One of her philosophies is if you give the body the right stimulation it can improve or heal. She also uses Joseph Pilates philosophy  that if you don't breath well you don't move well. With those 2 ideas she provides breathing techniques, fascia work, and posture exercises. 

In this episode I talk with Sharon Dobie. She is on the board of the Scleroderma Research Foundation, a Family Medicine physician, and Professor Emeritus at the University of Washington School of Medicine. Sharon’s son died of complications from Scleroderma in 2017. Today we talk about the Scleroderma Research Foundation's mission, some of the projects the foundation is working on, Sharon’s s...

Today's episode is a solo episode. I talk about Scleroderma Awareness Month and World Scleroderma Day. Then, I share 2 stories that a lot of people can relate to: health insurance and difficulties with a doctor. I hope you enjoy it!