Mind Over MRKH

This episode is sponsored by mirecare.com get 20% off by using code MINDOVERMRKH. Ellamae and Natalia Follow us @mindovermrkh @kiska115 @ellamaefullalove Join Ellamae and Natalia on this special International Women’s Day episode as they celebrate womanhood beyond diagnosis. They share personal stories of resilience, creativity, and the power of giving within the MRKH community. Discover how advoca...

Welcome to this podcast episode with Molly McGlynn, with host Ellamae from Mind Over MRKH! Follow us on Instagram and TikTok for bonus Qs on camera! This episode is sponsored by Mira which is a hormone tracking device using urine samples which links to an app, where you can obtain detailed knowledge of your hormones throughout any day. Keep an eye on our Instagram where we'll be telling you lo...

We are so excited to be sharing this exciting event for this pre-launch episode ⁠Get your tickets now⁠ and ⁠read all about it!⁠ We are relaunching our ⁠podcast ⁠ with a special invite to a global event that we are proud to be co-creating, along with multiple other organisations, MRKH One.19th February is Carl Rokitansky's Birthday and today we are celebrating the birthday of him, and the birth...

THE POD IS BACK! With some older episodes that I have never got round to editing! Elsie is an amazing advocate of MRKH, having gone viral on TikTok talking all things vaginal dilation! Due to some tech difficulties last year when recording this episode, we will be re-recording some of the later questions and answers. I am in so much awe of Elsie's advocacy journey online, she will be helping s...

WE ARE BACK WITH AN MRKH POWER HOUSE! A big welcome to Frost! During her youth, she performed opera at Carnegie Hall, Lincoln Center, Sydney Opera House, and others, as the youngest member in the concert ensemble of Grammy Award winning Choir, Brooklyn Youth Chorus. Now, she lives in Brooklyn, New York, as a second year student at PRATT Institute, obtaining her Film BFA and minor in entrepreneursh...

Elizabeth is an MRKH advocate in Nigeria, one of the first women with MRKH in Nigeria to raise awareness and form a support network. Elizabeth is 26 and was only officially diagnosed with MRKH last year. Read a short blog from Elizabeth she did for MRKH Connect here and listen to the full episode to hear her story! This Podcast is sponsored by our wonderful friends @MRKHCONNECT who are raise...

Sorry about my intro, issue with the sound and will resolve ASAP! An extra special long episode because Marianne has a big story to tell. On this episode we cover: Marianne's diagnosis in the USA and in actual fact, not getting a diagnosis! Being part of the Dallas Womb Transplant trial Being pregnant and giving birth, after growing up without a womb.  Redefining Womanhood throughout the proc...

Archana AKA Purbi is an MRKH warrior from India. She is the founder of Indian MRKHers Corner and MRKH India Facebook group. She is also a BYMRKH Ambassador representing India Globally. For a living she works at PepsiCo and has 13 years experience in social media analytics, consumer insights and strategic consulting with different companies and industries.  Find out more about Purbi over on In...

Trigger warning: we discuss consent and sexual assault.   "Consider Evie your sexual pleasure fairy godmother" - Zoella  Excited to be speaking to our friend Evangeline (Evie) Plumb, she is a Digital & Creative Strategist + Sex Educator. She has a keen interest in all things pleasure,  sex ed  and illustration and is qualified in teaching RSE (sex education) through&nb...

Episode 12: Joaneva is a woman with MRKH and the founder of MRKH Africa Foundation. She grew up in Kenya and this is a little about her lift with MRKH. After being diagnosed with MRKH as a 23 year old woman, Joaneva began to research MRKH and not long after diagnosis' she was helping others in Kenya to form connections and built her foundation, MRKH Africa.  Joaneva talks about how she felt u...

DSD stands for differences in sex development. MRKH is one type of DSD, but there are hundreds of other variations and people with different DSD (AKA Intersex) traits. Listen in to learn a bit about different types of DSD's and check out the resources below to learn more.  On this episode Ellamae speaks to Gabs and Esme who manage the Instagram community and support page for all types of DSD'...

 Anri Labuschagne is 23 years old from South Africa and was diagnosed with MRKH in 2018! She is the founder of @mrkhsouthafrica and co-founder of @mrkhpartners! She is currently in her last year of her legal studies while still running the MRKH SA page! Anri is a coffee addict and her  favourite show is friends! Support our Podcast here mindovermrkh.org - subscribe to our news letter, ch...

Welcome to the MRKH Podcast, Mind Over MRKH. MRKH affects 1 in 5000 female births, listen in to learn, connect, and be comforted by the MRKH warriors and community supporters we'll be joined by. We are a creative, resourceful, story telling and self explorative hub for all things Mayer Rokitansky Küster Hauser Syndrome.  Those with this condition have varying underdevelopment of the reproductive s...

Sofie Rask Jensen is an MRKH advocate from Denmark on TikTok . Here she hopes to share all aspects of what it’s like to live with MRKH, while also trying to educate people on what MRKH is. She started posting during march of last year and already in may she had two tiktoks go viral. Ever since, she has grown a following of almost 80.000  people wanting to learn more about MRKH. Besides her Ti...

Tech note- Apologies from Ellamae my sound was quite overbearing and we couldn't figure out how to ensure we could increase the volume of the wonderful Janay - so feel free to turn down the volume when I talk and get it as loud as you can for Janay! We will definitely be recording more together. Insightful, strong-willed, and free spirited are just a few words to describe our next guest, Janay Coo...

Wow, 7 episodes! Rest assured when we get to 10, you'll have a chance to feedback on the future of the Pod/Zine! Click here to shop with us and support FRIENDS ARE JUST LIKE STARS, YOU DON'T ALWAYS SEE THEM BUT THEY'RE ALWAYS THERE!  Check out our newest episode with the lovely Vics & TK who run @mrkhstars <<< FOLLOW THEM! Vics is a second year university student, English tu...

TRIGGER WARNING- SELF HARM/SWEARING. I loved speaking to my good friend (who I've only met in the flesh once!) because we prefer to just wing it and take away the filter from our MRKH stories with a truly candid chat. Be prepared to hear the word vagina 100 times or more and get the secret to protecting your story. Ally talks about the ingredients to turning pain into Power and tells us why sharin...

Listen to the full episode to hear Rima, founder of coaching platform Sumaavi and the Trusted Circle , flip the questions onto Ellamae in true coaching style!  Rima delves into her teenage years and the feeling of disconnecting from her body, after medical professionals deemed her as research over a human being, a young 16 year old girl needing emotional support but instead being pressured to...

A candid conversation with friend and encourager, Badia. We talk real life events with MRKH (from bleeding during sex to burying feelings!), a diagnosis story which didn't include the letters "MRKH", being a young black woman with MRKH and Badia's road to joining the Beautiful You MRKH foundation on the board for Diversity and Inclusion, amongst her world of encouraging and cheerleading those arou...

Ellamae interviews the wonderful Charlie Bishop . Charlie took over as Director of charity MRKH Connect in 2019 building on their strong foundation she, and the team work on numerous activities and initiatives to help connect, raise awareness and work to improve care for all.  Day to day she works as project manager analysing images of the earth taken from space, transferring many of those sk...

Mind Over MRKH , The MRKH Podcast bought to you by Ellamae Fullalove  Amy co-founded the Beautiful You MRKH Foundation and The Global MRKH Consortium. She earned a PhD in Human Genetics, channeling this expertise to transform health and wellbeing for the MRKH Community through partnering with clinicians and scientists to drive research and improve care. She also loves snorkeling in blue water...

Hey! The Podcast is back, and back in MRKH style! Bought to you by Ellamae at Mind Over MRKH and Va Va Womb. The first episode is just Ellamae practicing talking without notes about her journey and how to support others- this stuff is nerve-wracking! There's a little around how to support people with MRKH, what not to say, some journal prompts and a Podcast version of the presentation Ellamae did...