Love Doesn't Pay The Bills: Highlighting the Value of Family Caregiving

When we move away from specifying the care recipient's disease to focus on the caregiver, we find that different ways of talking about care experiences are very useful and descriptive.  The Rosalynn Carter Institute for Caregivers together with Duke University created a system to describe various caregiver experiences called Caregiver Profiles:  Are you learning about a new diagnosis for your fami...

A heartfelt wish for your holiday season from Lisa. May your coming month be full of moments that you genuinely enjoy!  Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills-highlighting-the-value-of-family-caregiving--5692861/support . Follow us on Facebook or Bluesky .  Subscribe to Lisa's newsletter on Substack .

This is a must listen episode!  Elissa Strauss brings to the podcast her deep contemplation of all aspects of caregiving.  Elissa is the author of "When You Care", which is described as an “urgent and necessary book” by Rebecca Traister, New York Times bestselling author and we agree.   How do we see care as the huge profound experience that it is?: Care is just as worthy of storytelling, respect,...

In this re-launch of the podcast, we talk data around caregiving.   Denise Brown is with us to talk about data, why it matters and her tool to help you view some of your own numbers.  Why do we need the numbers around care?  We have some compelling reasons.   Explore your own caregiving stats The Data Story of Caregiving event registration Denise supports individuals managing difficult life experi...

Kitty Eisle, executive producer for podcasts with Texas Public Radio and NPR, as well the host of Twenty-Four Seven: A podcast about caregiving , joins us to discuss caregiving for parents, how to prepare ahead of time for caregiving needs, and why it's important to know your neighbors. Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills-highlighting-the...

We're joined by Emily Kenway, the author of "Who Cares: The Hidden Crisis of Caregiving, and How We Solve It". "Who cares" is a very loving memoir of Emily's own caregiving experience. It also is a great work of advocacy by imagining the changes that would happen throughout our world if we started from the default assumption that all people will be caregivers at some time in their lives. https://w...

Connie Siskowski, President of the American Association of Caregiving Youth, joins us to discuss youth caregivers. Her program recognizes and supports young people who are caregivers Find out more about the A merican Association of Caregiving Youth Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills-highlighting-the-value-of-family-caregiving--5692861/su...

Melinda Kavanaugh describes what her organization YCARE does to support young caregivers. Young caregivers are very frequently overlooked, yet perform many of the same tasks as adults with many of the same responsibilities. Hear how Melinda brings youth caregiving education and a chance to connect to same age peers with similar experiences. https://uwm.edu/ycare/ Become a supporter of this podcast...

We're joined by Kim Evon to discuss California caregivers and the large gap in staffing that leads to reliability issues in caregiving. We discuss why family caregivers may have difficulties working full-time and what happens when there's not enough care to go around to those who need it. transcript Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills-hig...

transcript Elise's letter on healthcare workforce shortages ANCOR's report "The State of America’s Direct Support Workforce Crisis 2022" Elise Augilar, Director of Federal Relations at ANCOR discusses the shortage of (non family) direct support providers. We discuss the need for DSP jobs to be properly recognized and paid. Become a supporter of this podcast: https://www.spreaker.com/podcast/love-d...

Maressa Brown joins us to discuss possible ways that some family caregivers may be able to get paid for work. read the full article on care.com https://maressabrown.com/ Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills-highlighting-the-value-of-family-caregiving--5692861/support . Follow us on Facebook or Bluesky .  Subscribe to Lisa's newsletter on S...

Calli Ross is back to discuss the current state of the movement in OR to allow parent paid caregivers through Medicaid Home and Community Based Services. Just in time for mother's day, hundreds of mothers in Oregon lost their income for meeting the extraordinary needs of their children as the state of emergency which temporarily allowed parent paid caregivers expires without a permanent replacemen...

Nicole Jorwic, chief of advocacy and campaigns at Caring Across Generations, discusses the personal cost borne within families for providing care when there aren't enough care workers for hire, as well as what it would mean to make more of that cost public. https://thehill.com/opinion/congress-blog/3980173-the-care-tax-the-cost-of-the-lack-of-care-for-caregivers/ transcript #family #caregivers #su...

This episode is about the Oklahoma Caring for Caregivers Act which will, if it passes the state sentate, provide a tax credit to reimburse family caregivers who have spent money on the care of their loved one. It's one piece of asstance, dwarfed by the estimated labor value of 6.6 billion dollars annually provided by Oklahoman family caregivers. Still, the bipartisan support of such measures aroun...

Lisa on the on-call aspect of being a family caregiver. Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills-highlighting-the-value-of-family-caregiving--5692861/support . Follow us on Facebook or Bluesky .  Subscribe to Lisa's newsletter on Substack .

Guest Manjari Raman helps define the relationship between caregivers and employers and how to have conversations about accomodations and flexibility in the workplace. Transcript Read the full report Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills-highlighting-the-value-of-family-caregiving--5692861/support . Follow us on Facebook or Bluesky .  Subscr...

Danielle Miura is a family caregiver and certified financial advisor with a focus on helping other family caregivers stay financial stable. We discuss savings, insurance policies, and how caregivers can feel more secure in their budget. https://spark-fin.com/ Transcript: https://docs.google.com/document/d/1uA9LgaiR3kn-ehXWaiO77iooUveb4HdY/edit?usp=sharing&ouid=106863056658610480232&rtpof=t...

Dr. Lucille Carriere is a psychologist and Angie Ruvo Endowed Chair for Caregiving at the Cleveland Clinic Lou Ruvo Center for Brain Health. We discuss stress and impacted mental health amongst caregivers, as well as reducing anxiety amid responsibilites. https://my.clevelandclinic.org/locations/nevada/specialties/caregiver-resources Transcript: https://docs.google.com/document/d/1yLESq3bks9PddkEc...

The Guest this week is Calli Ross who is a family caregiver and leader in the movement in Oregon to allow parents to be paid for providing care to their minor children with disabilities. https://www.facebook.com/groups/1750726871736838 https://www.facebook.com/ADSOregon https://olis.oregonlegislature.gov/liz/mediaplayer/?clientID=4879615486&eventID=2023021052 Become a supporter of this podcast...

Susan Cybele is a caregiver to two family members and a ceramic artist. We discuss the importance of creativity, respite and independence for both caregiver and care recipient. https://labiasculptures.com/ Become a supporter of this podcast: https://www.spreaker.com/podcast/love-doesn-t-pay-the-bills-highlighting-the-value-of-family-caregiving--5692861/support . Follow us on Facebook or Bluesky . ...

Guest Shasta Kearns Moore makes a return to discuss two bills recently addressed in the Oregon State Senate. These bills represent parents advocating to be eligible to work paid positions as caregivers to their children with disabilities. https://www.medicalmotherhood.com/ https://olis.oregonlegislature.gov/liz/mediaplayer?clientID=4879615486&eventID=2023021052 transcript: https://docs.google....

Guest Carlen Maddux, author of A Path Revealed: How Hope, Love, and Joy Found Us Deep in a Maze Called Alzheimer’s , shares the personal experience of caregiving for his wife. We discuss family connections and how to keep them strong when faced with Alzheimer's. http://www.carlenmaddux.com/ https://docs.google.com/document/d/1E_0dsXqav-nYYP48oWIokXqmh_8KIil5/edit?usp=sharing&ouid=1169467061166...

Part 2 of 2: Guests Amanda and Scott Mazdzer share their experiences as parents and caregivers of a child with a disability, as well as a mental healthcare provider's perspective on mental wellbeing for caregivers. We discuss outside support systems and the ways they reduce caregiver stress. amandamazdzer@hotmail.com Transcript: https://docs.google.com/document/d/11HhKo87e8RPCbrO3WKJ1W4O1TEg5wnJh/...

Part 1 of 2: Guests Amanda and Scott Mazdzer share their experiences as parents and caregivers of a child with a disability, as well as a mental healthcare provider's perspective on mental wellbeing for caregivers. We discuss outside support systems and the ways they reduce caregiver stress. amandamazdzer@hotmail.com transcript: https://docs.google.com/document/d/1eoCcgDCyYCo_WWlvjE_9qxfi8dXO-p_9/...

Psychologist, family therapist, and author of "The Emotional Survival Guide For Caregivers" Dr. Barry Jacobs unpacks the importance of community support systems and how to prevent caregiver burnout. transcript: https://docs.google.com/document/d/1EjII-Tu5wWQeKrQ7h-Da8cSO-3Fz6Aqp/edit?usp=sharing&ouid=116946706116646252571&rtpof=true&sd=true *Please note transcriptions are automatically...