Livingwithxxy

Born in Sydney, Australia Seamus Denison recognized he had a pretty good childhood. He struggled in some subjects in school, particularly math and reading so attended a reading program. He was an athletic child who played sports and made friends fairly easily. Seamus had bouts of erectile dysfunction (ED) at a young age, something that was not easy to deal with. In his late twenties, he started to...

Sarah Winner is a mother whose son was diagnosed with Klinefelter Syndrome while she was pregnant. A yoga instructor, Sarah lives with her husband, 12-year-old daughter Rylan, and Julian in Naples, Florida. To help raise awareness about 47 XXY and prenatal diagnosis,  she is sharing her family's story to bring more awareness to XXY.  Her written story can be found here . 

Kristin is the mother of Cass, a 15-year-old boy living in Canada who was recently diagnosed with Klinefelter syndrome. Kristin talks about Cass as a child and his many struggles.  From not talking till four years old, dealing with the public education system, watching her child slip thru the cracks, to extreme bullying and countless doctor visits with no answers.  Despite all their fami...

Dylan Mathis is a 26-year-old man living in Chicago, Illinois. Dylan found out he had Klinefelter syndrome in high school around 16-17 years old. After graduating from high school, he went to college with a unique education program and excelled with an art major. After dating the love of his life, he recently got married to his wonderful wife and works as a cable installer. Dylan talks about...

Greg is the father of Koa who is an adventurous 2-year-old who loves to skateboard, mountain bike, and be active in nature.  Greg talks about his experiences with raising a son who was diagnosed with Klinefelter syndrome and focusing on the things his son can do.  Greg's story is inspirational and paves the way for other fathers to reach out and tell their own stories about raising a son...

Tyler is a 34-year-old man who is currently living in San Diego, CA with his wife.  Tyler was diagnosed with Klinefelter syndrome at the age of 33 after 1 year of trying to have kids with his wife.  After Tyler's diagnosis, he tried Micro-Tese and was unsuccessful. Tyler talks about how he found Living With XXY's podcast and how the stories of others helped him with acceptance and moving...

Have you ever wondered what someone's life might be like being on Testosterone Replacement Therapy for the past 23 years and counting?  Ryan shares all of his experiences with you from tips about traveling, insurance, pharmacies, and the trial and errors throughout his life. The purpose of this podcast is to help with education and self-advocacy, so others understand what to possibly expect w...

In this episode, Ryan talks about his life battling the ups and downs with personal hygiene. Ryan goes far back to his early years in grade school when his parents used a star chart to build a routine, to now at the age of 36. This in-depth 50-minute podcast might give you a look into some of those boys and men who are Living With XXY and how to overcome their own personal battles with Hygiene. &n...

Hello everyone, welcome to 2022 where anything is possible.  This is a solo podcast talking about how I've come to learn about what executive functions are and how they have impacted my life. I only learned what they were from googling them after hearing about it at a conference 5 years ago.  I talk about my personal perspectives and how I've learned to adapt to make my life easier. &nbs...

We had another incredible opportunity to speak to a college class at Hunter College University NYC. The focus of this interview was about self-acceptance with Klinefelter syndrome and engaging with the classes questions. This is how we continue to change the stigma and teach more people about the spectrum of those affected by XXY.  Chelsea is a mother to Noah who is three years old and Ryan w...

We had the wonderful opportunity to speak to a college class at New York University this last week. The focus of this interview was about self-acceptance with Klinefelter syndrome. Chelsea is a mother to Noah who is three years old and Ryan who was diagnosed in utero 35 years ago and told at the age of 9. You can watch this on YouTube as well.  We hope you enjoy it! Living With XXY 

Anna McLeod is the wife of Gareth Landy who was diagnosed with Klinefelter syndrome while trying to have kids. Anna talks about what it was like to learn about her husband's diagnosis, her own struggles with the diagnosis, and the difficulties of infertility thru IVF. Anna and Gareth are from Ireland and they ventured over to the United Kingdom for their fertility treatments. In the end, they...

Angela Fuller Heyde is the mother of Adam, who was diagnosed with Klinefelter syndrome. She talks about what it is like to go from being secret about her son's diagnosis to open and sharing information about her son on TikTok. She talks about her fears and how she knew opening up could give back and change other people's lives.  We hope she inspires you to build up the courage to give back an...

Jacqueline Lightcap is the mother of a 17-year-old boy diagnosed with Klinefelter syndrome at 14. After a routine physical their family physician thought their son might have Klinefelter syndrome and recommended they see a pediatric endocrinologist.  She went to google when she found out her son possibly had Klinefelter syndrome to do some research in 2017. She said, "That can't be my son, it...

Koben Meausette is a 23-year-old man living in Victoria, British Colombia, Canada. He was diagnosed in utero with Mosaic Klinefelter syndrome and was told around the age of 13. Koben has hiked half of the Pacific Crest Trail. He has an extreme love for the outdoors and mother nature. Since his passion for camping, hiking, and adventure is deeply rooted, he makes his own packs with his sewing machi...

Jared Pike is the Husband of Christin Pike who was on our show last week. Jared was diagnosed with Klinefelter syndrome after trying to build a family for many years. After Jared's doctor gave him the news using horrible bedside manner. Jared was very confused and went into a deep dark depression over the idea that he wasn't able to father biological children.  Jared talks about the rise to a...

In this very unique podcast, we offer a new perspective we have never had on our show before.  Christin Pike is the wife of Jared Pike, who was diagnosed with Klinefelter syndrome while trying to have kids after more than three years of trying.  She talks about what it was like to learn about her husband's diagnosis, supporting him thru difficult times, the difficulties of infertility, a...

Russell Martin is a 47-year-old man diagnosed with Mosaic Klinefelter syndrome 46XY/47XXY. He lives in Tampa, Florida with his wonderful wife and 2 biological sons.  Russell was diagnosed when he was 45 years old after he learned about possibly having Klinefelter syndrome at 13 years old.  Russell did lots of research on mosaic Klinefelter syndrome and he knew he had it despite the docto...

Shelby Herrle is the mother of 1-year-old Paxton who was diagnosed with Klinefelter syndrome 47 XXY at 3 months old. Shelby explains how her NIPT test said she was having a girl and her ultrasound tech then told her she was having a boy. After Paxton was born he had a rare bone infection in his foot that was missed by many ER visits and doctors.  One of the last doctors they saw wanted to do...

Eli Bucksbaum is a 21-year-old college student living in Denver, Colorado. He was diagnosed with Klinefelter syndrome 47 XXY, right after he was born. Today in this episode, Eli talks about what it was like being told at 6 years old and about his life growing up.  Eli talks about how acceptance with having Klinefelter syndrome has helped him live a much happier life, not dwelling on what he c...

Daniel Hellinger is a 30-year-old man living in Seattle, Washington. Daniel has traveled the globe over his lifetime and has also been a part of peace core. Daniel found out about having Klinefelter syndrome when he was diagnosed at 24, right before he was going on a trip to India.  Dan talks about what life was like before and after his diagnosis and how testosterone replacement therapy has...

Gerald Maynard is a vibrant, fast-talking, social media savvy man living with Klinefelter Syndrome. He resides in St. George, Utah with his wife and mother, where he works as a youth leader and creates content for his widely-followed TikTok accounts. Gerald shared his story about learning about his diagnosis in adulthood, and what it’s like to live with 47XXY.

Charles Plaisance is a 35-year-old man living with Klinefelter Syndrome , or 47 XXY. He resides in East Bethel, MN, with his family. Charles learned about his diagnosis when he and his wife Angela started trying to have a family. After a successful micro TESE withdrawal, they had three biological children. As a devout Catholic, Charles believes in the importance of all life. He wanted to share his...

Jordan is a 29-year-old man living in Hughesville, Pennsylvania. While currently experiencing unemployment due to the COVID-19 pandemic, Jordan previously worked as an electrician’s helper with his uncle. Jordan is an outgoing man with short blond hair and a quick smile. He is very open about his diagnosis and ready to share about his life with Klinefelter Syndrome.

When he was a young boy, Drew knew what he wanted to do with his life. While most young people may not be sure of their path to a career, Drew knew he wanted to be a pilot in the Navy. With dogged determination, he began to forge his path with a single-minded ambition; to sit in the cockpit of an F-14 Tomcat. However, the journey to this goal took many unexpected twists, with a surprise diagnosis...