Jenny Jones
Life's a Polyp
Jenny is a Rare Disease Advocate for Familial Adenomatous Polyposis (FAP) and Short Bowel Syndrome (SBS) and uses her platform of Life's a Polyp (blog, vlog, and shop) focused on raising awareness about FAP, SBS, and patient empowerment. She started the NORD FAP Research Fund in 2015 and donates profits from Life's a Polyp Shop and her FAP Children's Book - Life's a Polyp with Zeke and Katie. Her FAP related surgeries (8 total) started at age 9. She's experienced life-threatening complications resulting in medical PTSD and lived with an ileostomy for 6 years before having it reversed. Support...
Where to listen?
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Episodes
Advocates Panel Talking Familial Adenomatous Polyposis Advocacy 15.06.2026 1:34:07
Jenny talks with 5 other FAP advocates about their advocacy efforts for FAP range from ages 9 to 60s, what led them into advocacy, and how it's impacted their lives. Advocates featured with Jenny: Kevin Myers, Michael Caprio, Rebecca and Ryan Baker, Ann Lamphere Michael Caprio's FAP Experience Book A Bump in the Road: My Medical Journey over Potholes, Detours and the Bridge to Gratitudehtt...
Cognitive Behavioral Therapy for Chronic Pain 01.06.2025 19:59
Jenny shares what she learned in a CBT-CP Seminar for improving quality of life with chronic pain.
Caregiving for Mom - The Last Years 10.04.2025 17:46
Jenny shares how her understanding of her mom changes when she became a caregiver to her mother and what the last years were like.
Post Concussion Syndrome 28.03.2024 17:15
Jenny shares about her experience developing and living with Post Concussion Syndrome
How We Can Use Hardship to Build Our Resiliency 07.12.2023 12:26
Jenny shares an in-depth view of how we can use our hardships to build our resiliency from our own inner strength.
Comfytemp Weighted Heated Vest: AD - A Sponsored Review 30.11.2023 7:19
Jenny shares her sponsored review and her family's reviews of the Comyftemp Weighted Heated Vest. Disclaimer: I have been given Comfytemp Heating Pad for Neck and Shoulder Pain Relief as part of a product review. Although the product was a gift, all opinions in this review remain my own and I was in no way influenced by the company.
3 Self-Care Habits That Can Be Started Today 28.11.2023 5:04
Jenny shares 3 self-care habits that one can start today to for beginning a self-care routine for the betterment of physical and mental well-being.
Changing Our Perspectives to Better Our Well-Being 17.11.2023 6:09
Jenny discusses ways of changing perspective for well-being betterment.
La Mémoire Noire: Part 1 25.09.2023 13:11
La Mémoire Noire or The Dark Memory is a letter series written to Jenny's first surgeon. The man who caused everything ultimately in my life to reach this point today. I was to have 2 surgeries beginning at the age of 9 and his surgical errors altered the course of my life. Ultimately, I instead would require 7 surgeries and experience repeated life-threatening complications resulting in medic...
Living My Best Life 23.06.2023 7:58
Jenny shares in her latest blog post what the last two years have been like for her and through it all, why she says she’s living her best life
When You're Eager for Medical Testing 30.04.2023 8:01
Jenny shares how unexplained vomiting for 10 months has left her eager to undergo medical testing, in spite of medical PTSD
Learning Balance 31.01.2023 5:45
Jenny shares her struggle to balance life, how it affects her physical and mental health and how she's finding balance now
Chronic Pain and Physical Therapy 28.10.2022 10:41
How physical therapy has become an integral part of my chronic pain management. Written format available on Life's a Polyp Blog
What is Familial Adenomatous Polyposis and Life's a Polyp? 20.10.2022 2:40
A brief overview of the rare disease, Familial Adenomatous Polyposis, and Life's a Polyp. This Episode was originally published to Life's a Polyp's Youtube in 2017.
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