Let's Talk MND

Emeritus Professor Surindar Cheema PhD   Honours and PhD degrees. Since 1978, Professor Cheema has held research and teaching appointments at Monash University, The University of North Carolina at Chapel Hill USA, The University of Melbourne, The Walter and Eliza Hall Institute of Medical Research and The Howard Florey Institute. He spent approximately 10 years engaged in MND research as well as a...

Bec Daniher was living her best life. Bec represented Victoria in both junior and senior level rowing, winning two Queen's Cups during her time. She had the honour of being selected to represent Australia culminating in the World Championships in 2013 in South Korea.  Bec studied business and pursued a career in accountancy, working in the field of finance as an accountant for several years. Then,...

Sophia Levin has been a freelance food and travel journalist for more than a decade. You will have read her in Lonely Planet, The Age and Sydney Morning Herald's Good Food, SBS Food, Domain Review, National Geographic, The Guardian, delicious, in-flight magazines, Broadsheet, Time Out and more. She has co-authored travel guidebooks and reviewed for Australia's best food guides.   Her website "Seas...

Carla France lost her husband Neale to MND after a battle they all fought. She wants to share thier story. This one may be a little hard to listen to. 

Within one month Woz and his daughter Belinda, and thier supporters made the arrangements and drove 800kms from country Victoria to Canberra to meet the PM. In this epidode they give us an update. You can also watch on the "Let's Talk MND" You Tube chanel

Hayley and Cameron McNeill are brother ans sister, they lost thier dad to MND recently.  Earlier they lost thier aunt. They are both from Warnabool. Hayley is lving in Ballarat where she is studying biomedical science and goal is to become a bio technician to aid in MND research. Her brother Cameron is a town planner married with 2 little children and still lives in Warnabool. They speak with such...

Maxine Gee was diagnosed in July of 2023 - she has some extremely powerful words to share with us 

Warren wants to MAKE A DIFFERENCE. If there is anyway you can help contact him on 0428378395

Professor Dominic Rowe is the Foundation Professor of Neurology in the Faculty of Medicine and Health Sciences at Macquarie University; Chairman of Macquarie Neurology, and Consultant Neurologist at Macquarie University Hospital.  Dom was my husband Robert's Dr. For ten years he was Chairman of the MND Research Institute of Australia, taking this funding body from minor influence to the major sour...

Mim Simpson lost her dad to MND, she is also my daughter. It is really interesting to hear her perspective on MND and losing her loved dad. We should all interview our kids, it was illuminating,  

Prof Bedlack is a Professor of Neurology at Duke University in Northern Carolina He is the Stewart, Hughes and Wendt Distinguished Professor. Faculty Network Member of the Duke Institute for Brain Sciences. Associate of the Duke Initiative for Science & Society Rick is going to discuss the phenomenon he has witnessed and studied of MND reversals. He also tells us about ALS Untangled, which rev...

John Hanley was diagnosed with MND about 10 years ago. John's attitude to life is inspiring, always giving first. As he says "When God closes a door he opens a window" John has always loved music, now he is following his passion, writing and recording songs......that make you sing and dance around the house, John gifts joy. You can listen to his songs on Spotify  https://open.spotify.com/artist/1D...

The sound on this Podcast is pretty terrible - Carl and I were going to re-record in the New Year. He said all he wanted to achieve in life was to be a fater nad play professional football - well you did that mate. RIP Carl. Carl Webb   is a former Australian professional   rugby league   footballer who played as a   prop,   second-row   and   lock   in the 2000s and 2010s. He has played for the  ...

Adam Walker is a Ross Maclean Senior Research Fellow, the Bill Guest Fight MND Mid- Career Research Fellow. He works from the Walker Lab at the Queensland Brain Institute Adam has focused on uncovering the mechanisms of MND and FTD for over 15 years. He obtained his BSc(Hons) in biochemistry from the University of Tasmania, PhD in neuroscience from the University of Melbourne, and was a postdoctor...

James Smith is a 38 year old married dad of 3. James had MND. He is also squeezing the best out of life. He also has his own Podcast in the UK called "Beyond MND" initially recording his own journey but has now expanded intot he MND Community - your going to like him a lot.

Dr Salma Charania completed her PhD on the impact of dysarthria on people with MND over a 12-month period within the School of Health and Rehabilitation Sciences at The University of Queensland. Salma's MND research experience has assisted in her development and implementation of the Speech Pathology and Voice Banking services for MND Queensland where she is currently a practicing clinician.

Mike Poynter is a lawyer. Mike chats to us about Estate Planning, Wills, Powers of Attorney, all the things we tend to put off.   Mike Poynter Principal Lawyer MCP Legal Mobile: 0414 969 942  Direct: (03) 9448 8915  Office: (03) 9620 2001   F: (03) 9620 2002 www.mcpgroup.com.au

Andrew is 58 years old , recently separated, he has a 20 year old son, 19 year old identical twin daughters that are partly living with him. Andrew's past passions that this terrible disease has taken away were a drummer in rock band, cycling, gym. He worked in multinationals Coca-Cola (30 yeras), Woolworths and Unilever in management roles. He was diagnosed first April 2022 and is still waiting f...

Gethin Thomas has been the Executive Director, Research at MND Australia since 2019. He oversees the research grant program and manages national and international partnerships. Gethin has over 20 years of experience as a biomedical researcher, having published widely and secured almost $4M in research funding. Over the last 10 years as a senior research manager, he has directed a University Resear...

Phil 64, is married to Lenore. They   have two married daughters and four grandchildren. He served 40 years as a minister, he worked in Africa (DR Congo, Nigeria, Kenya, Rwanda) as well as NZ and Australia. He has been living with MND since 2013. He has raised $500K through his local community Big Freeze slides.  

Dr Greg Levin was diagnosed with MND in 2022, he and his wife Abby are a formidable team living with MND. They are appraching this journey with courage, love, honesty and laughter.

Leanne Sklavenitis is absolutley AWESOME Leanne Sklavenitis is an award winning, registered Personal Trainer, Gym & Group Exercise Instructor with over 32 years in the health and wellness industry.  Her passion for helping people has seen Leanne travel the world as a Speaker, Trainer, Consultant and Coach. She continues to successfully help her clients achieve their health, weight loss and wel...

Bruce and Natalie Parke are a dynamic duo. Bruce has been diagnosed with MND and it is inspiring how they are working together. The are finding thier new normal Bruce and Nat don't have a bucket list they want to spend their time walking and holding hands, and being with family and friends. Bruce is excited for BBQ season he can't use his arms or eat but he is going to pass his skills to his daugh...

Peter Clarke has had MND for 10 years. He also tells really bad dad jokes :) Peter and his wife Rhonda have not let MND slow them down, enjoying retirement, travel and family and friends - Peter and Rhonda love a good laugh.

Tim Eggert is 50 years old. He was officially diagnosed with MND in December 2022 after a few years of symptoms. Tim is married with 5 children and   a serving police officer for over 20 years.  He was previously involved in playing rugby league and maintained a good level of fitness and continued to keep physically active. He has no links to family related MND. He is now participating in a clinic...