I'm Dying to Tell You

Send us Fan Mail In this episode, it's just ME talking about LOVE :) Here I mix it up a little and talk about what's on my heart.  This releases on Valentines Day, so talking about LOVE ... specifically 4 Easy Ways To Spread More Love.  I talk about the first few things that came to mind, Listen, Words, Time and Action.  I thought to myself, these seem so simple but realized I always nee...

Send us Fan Mail Here I chat with Brian Wallach and his wife Sandra Abrevaya, co-founders of  I AM ALS and Synapticure.  At 37, Brian was diagnosed with ALS—on the same day he and he and Sandra brought their second daughter home from the hospital.  In an instant, everything changed.  They went from being a couple only a few years removed from both working at the White House to not knowing if Brian...

Send us Fan Mail Here I talk to Kylan Morris, 25, who recently lost her mother to ALS about how she's already following her mama's marching orders to help those battling ALS.  "Please take my baton & run faster & farther."  That was Sandy Morris's last twitter message to her fellow advocates fighting for ALS cures with her.  Sandy Morris passed away on August 28, 2...

Send us Fan Mail I knew I wanted to do an episode about HOPE, heading into the new year.  On December 8th we lost our friend Scott Smith and quickly I knew his words were all I needed to share.  This episode is an inspired replay.  In memory of our dear friend Scott Smith, I added a new intro,  a message from Jamie and then share my original chat with Scott and Jamie Smith.   Originally released i...

Send us Fan Mail So happy to talk to 17 year old Michael C. Platt, a teen baker, social entrepreneur, food-justice advocate and author.  He inspires me with his giving spirit and passion to help others.  Michael recently released his first cookbook to bring awareness to food and poverty.  His book, Michaels Desserts, Sweets for a Cause aims to build skills in the kitchen, celebrate history, and in...

Send us Fan Mail In this episode I chat with those who created Luka, the first robot to have ALS and hear the inspiration behind it all.   I chat with the team that is bringing the  first robot with ALS to the big screen.  The film, Luka & the Lights, is inspired by the real-life of Sascha Groen and her husband Anjo Snijders who is battling ALS.   Sascha created the robot character Luka and wr...

Send us Fan Mail In this episode, hear 21 year old Michael Cramer who was given just eight months to live share his journey on beating a rare and aggressive blood cancer.  At age 19, Michael had been an athletic, healthy teenager.  He was a surfer and sailor, rarely sick and had never been hospitalized.  A routine blood test led to a life-changing cancer diagnosis.  After Michael was diagnosed wit...

Send us Fan Mail Here I am on location in Boston to bring you a behind the scenes look and my  weekend experience with the ALS Therapy Development Institute (ALS TDI) the world's foremost ALS drug discovery lab focused solely on ALS.  I was so grateful to tour the lab and attend the ALS TDI Summit which was a day of updates on the progress of ALS Research.  I wrapped up the weekend by attendi...

Send us Fan Mail In this episode, I talk to Emma Terry who is a an ALS caregiver and a participant in the Miss America organization with her platform being ALS.    I catch up with this college student at the University of Alabama at Birmingham who is an ALS advocate, caregiver and granddaughter of ALS warrior, Stewart Simpson.   Emma recently turned 20 and her grandfather "Grandy" was di...

Send us Fan Mail Hear my conversation with Lori Larson Heller as we talk about love, loss and moving forward instead of moving on.   Lori is a writer, speaker, fierce ALS advocate, and a widow.   She was in a season where life was going better than she could of planned.  Lori had a husband who was her best friend and soul mate, the absolute love of her life.  Then without warning, her plan changed...

Send us Fan Mail Here I chat with ALS advocate and boa flouncer Katrina Byrd about her experience as a caregiver and what led her to write, "The Language of Forgiveness."  Katrina is a writer, playwright and ALS advocate, of Jackson, Mississippi.  She's an inspiration to many as she is a perfect example of courage, love, acceptance and forgiveness.  Katrina is legally blind and is n...

Send us Fan Mail This month is the 25th anniversary of the American classic book, "Tuesdays with Morrie."   Here I'm resharing my precious conversation with the author Mitch Albom.  We talk about love, faith, living and dying and the life lessons from his professor, Morrie Schwartz.  In this episode Mitch Albom shares the backstory of how he met his former professor Morrie Schwartz...

Send us Fan Mail Listen in to my conversation with David Richman who rode his bike 5,000 miles to explore the emotional journey of cancer.  After losing his sister to brain cancer, David was led to do something incredible that can inspire us all.  In this chat we talk about his intense and unique fundraiser in his sister's memory which was writing a book, Cycle of Lives.  This book is the res...

Send us Fan Mail Listen in to my conversation with former Kansas City police officer, Sarah Nauser as we chat about  life and love while living with a terminal illness.  For eight years, Sarah earned high praise as a young, vibrant, rising star within the Kansas City Police Department.   She was living her dream until she was told she had ALS at the young age of 29.    Sarah, also a former body bu...

Send us Fan Mail Here I chat with  13 year old Samirah Horton, aka DJ Annie Red who uses her music to spread an anti-bullying message.   This award winning DJ  is also a  rapper, author, motivational speaker and anti-bullying activist from Brooklyn, New York.   From the age of 6, Samirah was picked on by her peers for the things that made her different—her raspier voice, her unique sense of style,...

Send us Fan Mail Here I catch up with David & Scott Lloyd, the brothers who created Racing for ALS.  Growing up, David and Scott loved racing and always talked about racing cars together.  As life happened, that desire got put to the side,  yet they kept putting off their dreams of auto racing.  That all changed in 2017, when David was diagnosed with ALS.  They realized quickly that their drea...

Send us Fan Mail In this episode, I chat with college student John Sexton, CEO and Founder of LifeDrive.  What started as an idea to help his dad who has ALS, John now creates adaptive technology for people with disabilities in order to give them more independence.   John is an upcoming senior at the University of Notre Dame and next drum major for the Notre Dame Band.  All while being a full-time...

Send us Fan Mail In honor of ALS Awareness Month, I asked the listeners, "What do you want to know about ALS & living with a terminal illness, but you're afraid to ask? "   More questions than I could imagine came in, so I asked a few friends living with ALS to help answer these tough questions.  So in this episode, I chat with  Sunny Brous, Kate Nycz, Maceo Carter and Kevin Row...

Send us Fan Mail In honor of ALS Awareness Month, I asked the listeners, "What do you want to know about ALS & living with a terminal illness, but you're afraid to ask? "   More questions than I could imagine came in, so I asked a few friends living with ALS to help answer these tough questions.  So in this episode, I chat with  Sunny Brous, Kate Nycz, Maceo Carter and Kevin Row...

Send us Fan Mail In this episode, I talk to Kim Nuxhall who created the Joe Nuxhall Miracle League so that everyone with any challenge can play the game of baseball.  Kim is the Chairman of the Board of Directors for the Joe Nuxhall Miracle League.  He joins the podcast to tell the powerful story and mission behind his father's legacy projects.  Kim's dad,  Joe Nuxhall, was the youngest...

Send us Fan Mail Here I chat with Alison Burell and David Stanley, who each lost the love of their life way too early.  Alison's husband Cory Burell, passed away from ALS at the age of 35 after a valiant fight with familial ALS.   David's wife Angela Stanley, died from ALS at a young  50 years old.   Through the ALS community, Alison and David met after they each lost their person.   Wit...

Send us Fan Mail In this episode, I talk to Tracy Croxen and her daughter, Jocelyn who are surviving cancer and helping others navigate their journeys.  In September 2017, Tracy was diagnosed with ovarian cancer.   Almost exactly to the day two years later, in 2019, her 7-year-old daughter Jocelyn was diagnosed with a rare form of cancer called T-Cell Acute Lymphoblastic Leukemia.  Tracy said, “I...

Send us Fan Mail In this episode, I chat with three amazing women who are all involved with Hope Loves Company, a non-profit that provides support to children who have had or have a loved one battling ALS.  Hope Loves Company is the result of raising three children who had to learn about ALS (or Lou Gehrig's Disease) as young children.   Hope Loves Company's (HLC) founder, Jodi O'Do...

Send us Fan Mail To wrap up Season 2, I asked my listeners for questions and here I answer each of them in this "Host Ask Me Anything" episode.  This was created by YOU, the listener with questions from light to serious.  So many listeners asked what they were curious about.  I'm so grateful for all the questions that came in, some that really made me reflect and others that made me...

Send us Fan Mail Here I talk to Maria Aleandra and Julian Rodriguez about how they're navigating all the different shifts of life including ALS.  Maria Aleandra and Julian are a young married couple navigating life through entrepreneurship, ALS, parenthood, and all the ups and downs of life together.  Julian, 37, has a terminal disease, ALS, so together they have faced difficult and intensely...