I'm Dying to Tell You

Send us Fan Mail So grateful to have this conversation with Kerry Goode, former NFL (National Football League) player who was diagnosed with ALS in 2015.  Kerry was a running back at the University of Alabama, Tampa Bay Buccaneers, Miami Dolphins and later a strength and conditioning coach also in the NFL.  So he knew something was wrong when he couldn’t pick up a box. Here, Kerry shares what he&a...

Send us Fan Mail In this episode, I sit down with ALS advocate Bob Scannell, whose personal journey through his wife's battle with ALS has fueled his mission to raise awareness about the disease. After enduring a series of misdiagnoses before finally receiving an ALS diagnosis, Bob is now at the forefront of a campaign to educate both the healthcare industry and the public on the critical imp...

Send us Fan Mail In this compelling podcast episode, I delve into an inspiring conversation with Sam Telgkamp, a resilient 27-year-old battling ALS. Despite her inability to speak due to the progressive nature of the disease, we explore her journey and outlook on life with grace and gratitude at the forefront. Sam's unwavering positivity and resilience shine through as she discusses the chall...

Send us Fan Mail In this episode of  ""I'm Dying To Tell You,"" I meet up with the resilient Sara Bennett, from Columbus, Ohio.  At just 36 years old, Sara was confronted with a devastating diagnosis: ALS.  In a candid and deeply moving conversation, Sara opens up about her extraordinary journey, bravely navigating the intricate balance of life as a mother to two young son...

Send us Fan Mail In the first episode of Season 5, I delve into the inspiring outreach of ALS Family of Faith with guests Dawn Delaloye and Tanya Hageman. Listen in as they illuminate the profound impact of their nonprofit organization, dedicated to providing free emotional and spiritual support to individuals and families living with ALS. From patients battling the disease to their devoted caregi...

Send us Fan Mail When I was initially diagnosed with ALS, I was given the typical prognosis of 2-5 years to live. That was 20 years ago.  Today, alongside my two sons, Paul and Christian, we reflect on this journey, answer listener questions, and explore the lessons learned along the way.  I answer your questions about life with ALS, my thoughts on the future and advice to others finding themselve...

Send us Fan Mail In this episode I chat with Juliet Taylor & Tim Abeska who each lost spouse to ALS. They met in a virtual support group for widow & widowers.   Realizing they lived in the same area and had common interests, they met for coffee and their relationship grew from there.  Today they encourage each other to love & honor their late spouse, enjoy life and be active ALS advoca...

Send us Fan Mail Here you’ll meet Tony and Karen Vick.  Tony, a brave U.S. Veteran, has been living with ALS for the past 6 years.  Karen, his dedicated wife, serves as his full-time caregiver, showcasing the strength of their bond.  Despite facing the challenges of ALS, Tony and Karen lead a fulfilling life and share their journey on Karen's Instagram account, https://www.instagram.com/theka...

Send us Fan Mail In this episode, I talk about having gratitude even during hard times.  I recorded this on Thanksgiving Day.  Thanksgiving encourages us to pause and express gratitude for the positive aspects of our lives.  For me, It always fosters a sense of gratitude, reflection, and appreciation for the blessings and relationships in my life.  This morning I woke up being extra grateful for a...

Send us Fan Mail Here I chat with Amanda Stevens, wife & caregiver to Eric Stevens – former NFL player & L.A. Firefighter, both introduced to us on The Ellen DeGeneres Show in 2019.   Amanda and Eric were married only one month when Eric was diagnosed with ALS at a young 29 years old.  We fell in love with this young couple as they appeared on the Ellen show three times and even were on to...

Send us Fan Mail In this episode I talk to Lance Alexander, a teen Hollywood actor from my hometown in Ohio.  You might know Lance from his role as Elvis, a recurring role on the award-winning Netflix show “Family Reunion.”   Like many, during the Pandemic of 2020, he was isolated and fighting depression and decided to fight back.  Lance had a public struggle of being overweight and bullied most o...

Send us Fan Mail Here my husband Paul & I talk to long-time radio personality Jim Scott from Cincinnati.  He has been heard all over the country during his 55+ years on the air, mostly on 700 WLW Radio.  He simply is one of the most giving & positive people I know.  Although most of his life has been spent using his voice in his radio career, he is now battling a disease that is affecting...

Send us Fan Mail Here I chat with military veteran of both the U.S. Marine Corps and the U.S. Navy, Kate Peters.  She served in the USMC 2007-2015, USN 2015-2020 and served in Operation Iraqi Freedom.   Kate is a mother of two boys, three and five and was medically retired from the military after being diagnosed with ALS, a fatal disease that has no cure.    She was diagnosed with ALS in 2020 a fe...

Send us Fan Mail Here I chat with a young woman living with ALS, who defies all odds by finishing fifty marathons and, in turn, inspires people to “go on, be brave.” I'm absolutely thrilled to catch up with Andrea Lytle Peet again and meet Meredith Atwood in this chat.  Andrea and Meredith coauthor Andrea's new memoir titled, "Hope Fights Back."  Andrea was thirty-three years o...

Send us Fan Mail This episode is just me answering YOUR questions.  I had a lot of requests for this format again, so I asked listeners to send in questions about anything and I answered them here.  I'm so grateful for all the questions that came in, about life, perspective, my ALS longevity, family and advice.  I love that my listeners feel comfortable asking me anything.  This was a super s...

Send us Fan Mail Here I continue my talk with Amy, Jim and Matt who are living with ALS about having the toughest conversations of their lives.  When you’re living with a terminal illness that doesn’t have a cure and typically gives you just a few years to live, like ALS, the most difficult conversations come up quick.  In this Part 2 episode, I continue chatting with  Amy Stiens, Jim Plews-Ogan a...

Send us Fan Mail When you’re living with a terminal illness that doesn’t have a cure and typically gives you just a few years to live, like ALS, the most difficult conversations come up quick. In this episode, I bring together 3 others who are living with ALS to talk about their experiences with these tough conversations.  Here, I’m talking to Amy Stiens, Jim Plews-Ogan and Matt Klingenberg.  I am...

Send us Fan Mail In this episode you'll hear my chat with Courtney Cirabisi, a 30 year old who lives in Bakersfield, California.  She became reliant on a wheelchair for everyday mobility after she was child abused by her dad when she was 9 months old, resulting with a spinal cord injury.  I've been following her journey as she shows us that life doesn’t stop after you have been abused an...

Send us Fan Mail May is ALS Awareness month.  So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I continue my chat with 3 others living with ALS.  We answer the questions sent in by listeners of this podcast about what it's like being a young adult and living with a terminal illness.  My guests, Ashley Rivera and Mira Hudson were diagnosed at 24 and James Smith...

Send us Fan Mail In this special Q&A episode, 3 young adults answer questions you sent in about ALS and living with a terminal illness.  May is ALS Awareness month.  So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I chatted with 3 others living with ALS.  We answer the questions sent in by listeners of this podcast about what it's like being a young adult...

Send us Fan Mail On this episode of  I'm Dying To Tell You Podcast, I talk to Rob Schwartz son of Morrie Schwartz from the classic book Tuesdays with Morrie.  We chat about the newly released book, “The Wisdom of Morrie.”   The book was written by Morrie Schwartz, recently edited and released by Rob.  The number one bestseller Tuesdays with Morrie was written from conversations with author Mi...

Send us Fan Mail  Here I sit down with Zac Brown Band founding member, John Driskell Hopkins who is using his stage to help bring awareness to ALS, also known as Lou Gehrig’s Disease.  John was diagnosed with ALS, a terminal illness with no cure in 2021.  John, also known as Hop, decided to go public with his ALS hoping his reach could result in awareness, action and ultimately support for an ALS...

Send us Fan Mail Here I talk to 34 year old TikToker, Brooke Eby who is using humor and social media to navigate life after being diagnosed with a fatal disease.  Brooke was diagnosed with the terminal illness, ALS, at a young 33.   With the support of her family, friends, and co-workers, Brooke's been able to laugh in the face of ALS by using humor on social media..  Brooke created a TikTok...

Send us Fan Mail Here I talk to someone who has  ALS for over 25 years.  I reconnect with a former colleague from Kraft Nabisco, John Carthum.  It was a few decades ago when I heard John left the company for medical reasons.  I never knew what hand he was dealt that made him have to leave his career at such a young age until I was diagnosed with ALS in 2004.  That’s when I learned that it was also...

Send us Fan Mail Here I chat with award-winning director/producer, Jared Callahan.  He shares the inspiration behind the film, SOMETIMES I SHAKE.  The documentary film follows PLNU music professor and jazz conductor Dan Nelson as he navigates his life and profession around an ever-increasing shake caused by his Parkinson's disease.  Then suddenly, Dan is devastated by the additional, and term...