Dementia Australia

Hold the Moment

Health EN ↓ 39 episodes

Hold the Moment, a podcast by people living with dementia, is full of real stories about life after a dementia diagnosis.

Author

Dementia Australia

Category

Health

Podcast website

holdthemoment.podbean.com

Latest episode

Jul 7, 2026

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Episodes

Hold on to family – Families reflect on the impact of a loved one’s dementia diagnosis 23.09.2024

When Millie Rogers first discovered her dad, Jim Rogers (co-host of Hold the Moment), had received a diagnosis of younger onset dementia, she felt like a rug had been pulled from beneath her feet.   “I just froze. I just couldn’t believe what he was saying.”  In this candid episode, Millie and her sister Daisy open up to journalist Hamish Macdonald about the initial shock of the diagnosis, Jim’s r...

Helpline: Tips for getting around with dementia 16.09.2024

If you’re looking for new ways to get around town or travel further afield with a dementia diagnosis, this episode is full of tips and resources on how you can do just that.   If you’d like tailored support on travelling with dementia, you can contact the National Dementia Helpline on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email with whatever is...

Hold on to travel - Navigating planes, trains and automobiles with dementia 16.09.2024

Jim Rogers was once ‘captain organised’ when planning overseas trips with his husband Tyler. But after his diagnosis of younger onset dementia, he’s learnt to get Tyler to assist with online check-in, packing and itinerary planning.   And it’s not just setting off overseas that’s changed. Getting around town has become trickier now that Jim’s lost his driver’s licence.   Like Jim, Juanita wishes s...

Helpline: Tips for managing changes in sleep with a dementia diagnosis 10.09.2024

Getting a restful night’s sleep when you’re living with dementia can be an elusive task. This episode contains tips on managing your changing sleep patterns. If you’d like tailored support to tackle sleep issues, you can contact the  National Dementia Helpline  on 1800 100 500. You can call 24 hours a day or request a callback, start a webchat or send an email. Dementia Australia has plenty of res...

Hold on to sleep – Why dementia disrupts sleep and what to do about it 10.09.2024

Ann, a former nurse, struggles to sleep because of the symptoms of her Lewy body dementia. Most nights, Ann experiences intense, multi-sensory hallucinations.   Meanwhile, Jim Rogers takes us through some of the long nights he’s experienced since his diagnosis of Alzheimer's disease.   Sleep is vital to both mental and physical health, and it’s disrupted for many people living with dementia. Assoc...

Helpline: Tips on staying connected and managing relationships after a dementia diagnosis 02.09.2024

Your close relationships enter new territory once you’ve been diagnosed with dementia. Roles change, people might pull away but, for the most part, your loved ones just want to know how to be there for you. This episode helps you navigate these changes. If you’d like tailored support you can contact the  National Dementia Helpline  on 1800 100 500. You can call 24 hours a day or request a callback...

Hold on to relationships – Family, friendships and dating after a dementia diagnosis 02.09.2024

Anthony was by himself when he first learned he had dementia. He didn’t feel like he had a close-knit family or a group of friends to turn to for support.  But now, Anthony’s not only made new friends and become closer with his three siblings – he’s also found love again.   So much changes after being diagnosed with dementia, including your relationships. But it doesn’t mean you have to let go of...

Helpline: Tips for staying active with dementia 26.08.2024

Whether you’ve always been a marathon runner or just love getting out in your garden, staying active is an important way to manage symptoms of dementia.  Here’s your quick guide on building physical activity into your routine in a way that suits your lifestyle.  If you’d like support to stay active with dementia, you can contact the  National Dementia Helpline  on 1800 100 500. You can call 24 hou...

Hold on to exercise – Staying physically fit while living with dementia 26.08.2024

If you take a long walk around Bealiba in regional Victoria, you might spot the occasional water bottle, perched under a tree. Those would be Heather’s.   Heather’s always been a keen athlete and, even now at 80 years old, she loves long-distance running. That hasn’t changed since she was diagnosed with Alzheimer’s disease, but she’s had to adapt her training to make sure she stays safe and on the...

Helpline: Tips on “getting your affairs in order” when living with dementia 21.08.2024

Feeling overwhelmed at the prospect of writing or updating a will? Want to better understand things like power of attorney and enduring guardianship? Help is at hand! This episode breaks it down so you can start planning with confidence.  Dementia Australia also has a webinar on ‘Future Planning’ you can  watch online  and  other resources  to help get your affairs in order.  If you’d like tailore...

Future planning - Where to start with wills, guardianship, power of attorney with dementia 19.08.2024

“I was diagnosed early, so I got what I call my ‘active dying plan’ out of the way. And now I’m on my ‘active living plan’ and my adventure with dementia.”  Pam was diagnosed with primary progressive aphasia in her late 50s. Although the diagnosis at such a young age was a shock, Pam wasted no time making arrangements for her own funeral so that when the time comes, her family can celebrate her li...

Helpline: Tips on dealing with a dementia diagnosis 19.08.2024

A dementia diagnosis can be a shock and it also can be a relief.  If you’re looking for support, resources and guidance on what to do after you or someone you love has been diagnosed with dementia, this bonus episode is your simple how-to guide.  If you’d like personalised support on what to do once you’ve been diagnosed, you can contact the  National Dementia Helpline  on 1800 100 500. You can ca...

Where to from here – What to do after being diagnosed with dementia 19.08.2024

Jim Rogers didn’t see it coming. “It was almost like an out-of-body experience,” he says. “It was as though time stood still.”   Only a few months earlier, life for Jim was as it had always been. He and his husband Tyler were both busy, focused on their careers and very social. But Jim’s colleagues noticed he would occasionally forget important details at work. Little did he know this seemingly in...

Introducing Hold the Moment, a podcast by people living with dementia 06.08.2024

"You could’ve knocked me off my chair. It was like time stood still." Jim Rogers was blindsided by his diagnosis of younger onset Alzheimer’s disease in his 50s. He didn’t see a dementia diagnosis coming, and yet it changed almost everything. The way you sleep, exercise, travel around, and even how you interact with your loved ones will change after a diagnosis. So how do you even start to process...

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