Help 4 HD Live!

Please visit https://www.thetreygrayfoundation.org/about-trey for more information!

Anticipatory Grief with Lauren and Sharon

Anne-Elizabeth shares her HD story

HD CAREGIVERS, WE NEED YOUR HELP! To prepare for a clinical trial of a drug that may reduce the disruptive aggressive behavior that some persons or patients with HD suffer from, we would like to interview about 25 caregivers who are parents, spouses, or adult children of patients who have aggressive outbursts. We are specifically interested in trying to build a list of words that can be used to de...

Irina has worked in drug development for over 18 years, with a focus on translational medicine and early development in neuroscience, but also ophthalmology and immunology. She has gained experience with development of small molecules, biologics as well as nucleic acid therapeutics, in a number of global pharma and biotech organizations in the US and Europe. Before joining Triplet Therapeutics, In...

Nessan Bermingham is founder and CEO of Triplet Therapeutics, Inc. He is a serial biotech entrepreneur and investor who has founded several companies including Triplet, Korro Bio and Intellia Therapeutics, “one of the top 10 biotech start-ups in 2014” and a “Fierce 15 biotech company,” taking the company from concept to IPO and large partnering deals with approximately 200 employees. He has nearly...

Kirsten and COVID19

Matt Kapusta from UniQure joins us to provide an update.

Join us as we talk with Kay and her best friend Taylor who has HD

Huntington PARAGUAY

Anne-Elizabeth

Ashley Fajardo

It's not always HD

Katie Simos is a Regional Sales Manager with AFLAC and longtime friend of Lauren Holder.  *Please note: This information is for educational purposes only, not to sell you anything. However, if you would like to get more information about how AFLAC policies could benefit your family with HD, please reach out to Lauren Holder at lauren@help4hd.org 

Paul talks to us about being his wife's caregiver

Maurice Zauderer, Ph. D. has served as Vaccinex’s President and Chief Executive Officer and a member of the board of directors since the company’s inception in April 2001. Prior to founding Vaccinex, Dr. Zauderer was an Associate Professor at the University of Rochester and has also held senior faculty positions at Columbia University. During his academic career, Dr. Zauderer held the position of...

For more information, please visit https://www.asha.org/

Becky Crumpler talks about her daughter being in a facility during COVID-19

ER Visits during COVID-19

Because we are all concerned about COVID-19 right now, we are re-airing our show with Dr. Wheelock and Lisa Mooney. Dr. Vicki Wheelock is a neurologist and the director of the HDSA Center of Excellence at UC Davis Health. The mission of the HD clinic at UC Davis is to provide expert and compassionate care to people and families affected by HD, to provide outreach and education to families and heal...

Lauren Holder and COVID19

Among Dr. Kenechi Ejebe’s responsibilities at Wave is to serve as the clinical lead of the Neurology (CNS) programs which include Huntington’s disease, amyotrophic lateral sclerosis, and frontotemporal dementia. Dr. Ejebe has more than 10 years of translational and clinical research experience focused on developing innovative treatments for patients. Prior to joining Wave, he was a Resident Physic...

Dr. Vicki Wheelock is a neurologist and the director of the HDSA Center of Excellence at UC Davis Health. The mission of the HD clinic at UC Davis is to provide expert and compassionate care to people and families affected by HD, to provide outreach and education to families and health care professionals, and to advance HD research. Dr. Wheelock has extensive experience in HD education and researc...

Terry Tempkin, NP-C, MSN, is an Adult Nurse Practitioner who spent 18 years working with Huntington’s disease families at the University of California Davis Health System. During her time there, she worked with the HD team to build one of the largest HD programs in the country, noted for their expertise in HD/JHD care. She participated in over 18 clinical trials in Huntington’s disease.   Although...

Please visit http://eurohuntington.org/ for more information.