Ben and Lindsey Massengale
HC&U
HCandU is a podcast dedicated to the metabolic disorder, homocystinuria. This podcast is meant to be a resource for anyone who has HCU or has been affected by HCU. Topics to be discussed on the show include patient stories, research updates, recipes, and interviews with experts in the field of homocystinuria. Whether you or someone you know were just diagnosed or have been a patient for years, we hope you find this podcast helpful!
Author
Ben and Lindsey Massengale
Category
Podcast website
Latest episode
Jul 11, 2026
Where to listen?
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Episodes
Episode 16 with Pam Penrose 22.03.2020 44:22
In the sixteenth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the podcast! In this episode, we interview Pam Penrose. We discuss her journey in being diagnosed and dealing with HCU. We wrap up with Lindsey's Low-Pro Bites. We discuss vegetarian Zuppe Toscana and rate it on our random veggie scale! We hope you enjoy! **FREE...
HC&U Episode 15 20.06.2019 51:29
In the fifteenth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the podcast! In this episode, we interview Breun and Jeremy Smeltser. We discuss their journey in raising kids who have been diagnosed with HCU. We wrap up with Lindsey's Low-Pro Bites. We discuss shredded carrot BBQ and rate it on our random veggie scale! We ho...
HC&U Episode 14 05.05.2019 48:38
In the fourteenth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the podcast! In this episode, we interview Amber Gibson, recipe coordinator for HCU Network America. We discuss low protein recipes and managing a low protein diet for adults and kids. We wrap up with Lindsey's Low-Pro Bites. We discuss eggplant vegetale (inser...
HC&U Episode 13 16.03.2019 31:03
In the thirteenth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the podcast! In this episode, we interview Frank Glavin (CEO) and Jeanie Price (Executive Director of Clinical Operations) of Orphan Technologies. We discuss OT-58 and the natural history study. We wrap up with Lindsey's Low-Pro Bites. We discuss cauliflower cu...
HC&U Episode 12 05.02.2019 41:14
In the twelfth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the podcast! In this episode, we interview Amanda Nethery, an HCU patient, and she shares her journey with HCU. We wrap up with Lindsey's Low-Pro Bites. We discuss cauliflower gnocchi and rate it on our random veggie scale! We hope you enjoy! **FREE SWAG ALERT** W...
HC&U Episode 11 09.01.2019 37:23
In the eleventh episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the podcast! In this episode, we talk about New Year's resolutions concerning HCU. We also talk about surgery prep with HCU, and eating at restaurants on a protein budget. Yes, a protein budget. Ben coined that phrase. We wrap up with Lindsey's Low-Pro Bites. We...
HC&U Episode 10 05.12.2018 38:14
In the tenth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the podcast! In this episode, we interview Ben's sister, Breanna (Phil)! She talks about following a low protein diet for a week. We wrap up with Lindsey's Low-Pro Bites. We discuss Lindsey's veggie casserole and rate it on our random veggie scale! We hope you enjoy...
HC&U Episode 9 21.11.2018 44:31
In the ninth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the podcast! In this episode, we discuss emergency preparedness, famous vegetarians, and vegetarian Thanksgiving probs! We wrap up with Lindsey's Low-Pro Bites. We discuss Lindsey's veggie casserole and rate it on our random veggie scale! We hope you enjoy! **FREE S...
HC&U Episode 8 28.10.2018 1:05:27
In the eighth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the podcast! In this episode, we continue to discuss HCU Awareness Month! We also have a very special guest, pediatrician, biochemical geneticist, and all around HCU rockstar, Dr. Harvey Levy of Boston Children's Hospital! We wrap up with Lindsey's Low-Pro Bites. W...
HC&U Episode 7 09.10.2018 37:42
In the seventh episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the podcast! In this episode, we discuss HCU Awareness Month! We talk about the timeline of homocystinuria, the calendar of awareness "challenges," and ALL THE FALL THINGS! We wrap up with Lindsey's Low-Pro Bites. We discuss not so chicken pot pie and rate it on o...
HC&U Episode 6 25.09.2018 43:14
In the sixth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the podcast! In this episode, we also have a set of three guests! Ben's parents share what it was like raising a child with HCU. Also, Ben's sister makes an appearance to save any complaining that may have occurred otherwise. We wrap up with Lindsey's Low-Pro Bites....
HC&U Episode 5 11.09.2018 39:58
In the fifth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the podcast! In this episode, we also have our third guest, a very dapper fellow who shares his experience with HCU. Hint hint, it's Ben! Danae Bartke! We wrap up with Lindsey's Low-Pro Bites. We discuss zucchini boats and rate them on our random veggie scale! We ho...
HC&U Episode 4 26.08.2018 38:56
In the fourth episode of HC&U, we have our regular "Tell Me Something Good" segment where we share several bits of good news regarding the podcast! In this episode, we also have our second guest, Danae Bartke! She discusses experiencing pregnancy while having homocystinuria. We wrap up with Lindsey's Low-Pro Bites. We discuss stuffed bell peppers and rate it on our random veggie scale! We hope you...
HC&U Episode 3 12.08.2018 31:00
In the third episode of HC&U, we discuss the first ever HCU Conference which was held in Westford, Massachusetts. It was called Taking the Lead for HCU, and it was a blast! In this episode, we also talk about traveling with homocystinuria and provide some tips for managing medication while traveling. We wrap up with Lindsey's Low-Pro Bites. We discuss jackfruit "pulled pork" sandwiches and rate it...
HC&U Episode 2 29.07.2018 47:14
In the second episode of HC&U, we discuss low protein food providers. These providers include Cambrooke Therapeutics, Taste Connections, PKU Perspectives, Loprofin, Lil's Dietary Specialty Shop, and Mevalia. In this episode, we also welcome our first guest, Sarah Chamberlin! We discuss the Medical Nutrition Equity Act with Sarah and tell listeners how to get involved! Visit howmuchphe.org to see u...
HC&U Episode 1 15.07.2018 12:50
In the pilot episode of HC&U, we give a basic overview of the condition. We talk about the four main systems that HCU can affect, and we also mention some less serious symptoms. Then we discussed the treatment methods for HCU. We talk about vitamin B6, low protein diets, and cystadane/betain powder. We wrap up with Lindsey's Low-Pro Bites. We discuss carrot "notdogs," and rate them on our random v...
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