Foundation Fighting Blindness

Individuals sit in front of a black background and share about how others can best help them as part of our #ShareYourVision campaign. Learn more about how you can #ShareYourVision at www. FightingBlindness.org/ShareYourVision

Jake shares his #ShareYourVision story about being diagnosed with Usher syndrome.

Chad shares his #ShareYourVision story about being diagnosed with retinitis pigmentosa.

What's one question you're tired of being asked?

Raquel shares her #ShareYourVision story about being diagnosed with retinitis pigmentosa.

Ya gotta do what ya gotta do! Now it’s your turn – what do YOU do?

JJ Martinez shares her #ShareYourVision story about being diagnosed with retinitis pigmentosa.

"If you never had to do anything hard, you would never learn how creative, strong, assertive, resilient you are." What have you learned about yourself?

Brett Knight shares his #ShareYourVision story about being diagnosed with retinoschisis.

Martha Steel shares her #ShareYourVision story about being diagnosed with Usher syndrome.

To help spread awareness during October Blindness Awareness Month, we’re inviting you to share your vision-loss journey through written word, audio or video as a part of our October “Share Your Vision” campaign. You can choose whether to share your story with a small select group of people you know or to share your story more broadly. We are here to help either way! Visit www. FightingBlindness.or...

To help spread awareness during October Blindness Awareness Month, we’re inviting you to share your vision-loss journey through written word, audio or video as a part of our October “Share Your Vision” campaign. Visit www. FightingBlindness.org/ShareYourVision to learn more. To see the video for this audio, please visit our YouTube channel at https://youtu.be/ywe64utKr5Q.

October 7, 2022. Podcast host Ben Shaberman talks with Jacque Duncan, MD, a retinal specialist and clinical researcher at UCSF and chair of the Foundation's Scientific Advisory Board (SAB), about her work with adaptive optics for hi-resolution imaging of the retina, her challenging but rewarding role on the SAB, and how the research pipeline enables her to convey hope to all patients and families...

The company is planning to move the emerging treatment into a pivotal trial

To help spread awareness during October Blindness Awareness Month, we’re inviting you to share your vision-loss journey through written word, audio or video as a part of our October “Share Your Vision” campaign. Visit www. FightingBlindness.org/ShareYourVision to learn more. To see the video for this audio, please visit our YouTube channel at https://www.youtube.com/watch?v=68Mhyh8o1PI.

Michelle Glaze shares her #ShareYourVision story about being diagnosed with retinitis pigmentosa.

September 23, 2022. Dr. Sandy Greenberg talks to host Ben Shaberman about his incredible life's journey of going blind suddenly at the age of 19 to earning advanced degrees from Columbia and Harvard, receiving a White House Fellowship, serving on the Council of Foreign Relations, and founding the company which developed the computer system for the lunar excursion module that transported the first...

September 9, 2022. Jean Bousquet, a certified orientation and mobility specialist with the Office of Rehabilitation Services in Rhode Island, talks to podcast host Ben Shaberman about navigational canes, guide dogs, phone apps, and many other orientation and mobility resources for people with low vision.

The company’s drug is designed to reduce accumulation of toxins that cause vision loss.

Host Ben Shaberman talks with Steven McCoy, who overcame early challenges as a kid with Usher syndrome, to become the first black, deaf-blind journalist. Steven found his way forward through an impressive career with Disney and his own projects including his "Sessions with Steven" podcast and forthcoming memoir and television film about his remarkable personal journey.

August 5, 2022. Stem cell expert David Gamm, MD, PhD, talks with host Ben Shaberman about his innovative work in stem cell therapy development for retinal diseases, including his research at the University of Wisconsin-Madison and the company Opsis, which he co-founded. Their conversation covers a variety of topics including induced pluripotent stem cells, the benefits of scaffolds for cell orient...

July 22, 2022. Brian Strem, PhD, CEO of Kiora Pharmaceuticals, talks to Ben Shaberman about his company's emerging gene-agnostic small molecule for restoring vision for people with advanced retinitis pigmentosa and potentially other retinal diseases. Kiora recently received authorization in Australia to launch a trial for the treatment.

July 8, 2022. Jeff Stern, MD, PhD, and Sally Temple, PhD, co-founders of the Neural Stem Cell Institute, talk with host Ben Shaberman about their discovery of stem cells in the human retinal pigment epithelium and their newly launched clinical trial for the cells in people with dry age-related macular degeneration.

Speakers: Bill and Colleen Carty

Speaker: Cathy Bowes Rickman, PhD and James Handa, MD