Foundation Fighting Blindness

Belite Bio submits new drug application to FDA for its Stargardt treatment by Foundation Fighting Blindness

New host Maddie Mossman interviews retinal surgeon Dr. Staropoli, the first medical doctor to win a NASCAR race.

Promising oral treatment moves closer for Stargardt patients.

2020 Llura Liggett Gund Award recipient honored for pioneering gene therapy that transformed vision research

Data monitoring committee recommends proceeding with registration-enabling study for ATSN-201

MeiraGTx Announces the Acquisition of Botaretigene Sparoparvovec (bota-vec) for the Treatment of X-linked Retinitis Pigmentosa (XLRP) by Foundation Fighting Blindness

Strategic funding extends cash runway through 2029 and advances multiple inherited retinal disease programs

VG801 shows sustained vision improvements through 12 months with favorable safety profile

Potential cell therapy, DSP-3077, gains special regulatory status to support development for inherited retinal disease.

First-of-its-kind small molecule therapy targets protein misfolding at the root of RHO-adRP

First patient shows vision improvements with a good safety profile.

To celebrate episode 100 of Eye on the Cure, host Ben Shaberman features highlights from conversations with some of his previous guests including: Dr. Dean Bok from UCLA, Dr. Michel Michaelides from Moorfields Eye Hospital, actor Ben Mehl, triathlete Michael Stone, and jazz keyboardist Matthew Whitaker. This "Best Of" episode is Ben's final for Eye on the Cure, but the podcast will continue on wit...

Novel neuroprotective approach could benefit RP patients regardless of genetic mutation

Listen to the latest episode of the Blind & Beyond radio show featuring Foundation Fighting Blindness CEO Jason Menzo. Jason discusses the Foundation's mission and the remarkable progress achieved over the past 55 years in advancing diagnostics, treatments, and cures for blinding diseases. He also shares insights into ongoing advocacy efforts on Capitol Hill to preserve critical vision research fu...

Dr. Prem Subramanian, of the University of Colorado Sue Anschutz-Rodgers Eye Center and School of Medicine, talks with host Ben Shaberman about thyroid eye disease (TED), a condition that is often misdiagnosed and can cause a range of symptoms including discomfort and vision loss. Dr. Subramanian discusses potential causes, symptoms, and therapeutic approaches. This episode is sponsored by Amgen.

Marking an important milestone for this rare form of retinitis pigmentosa (RP)

Milestone brings hope to patients with rare inherited retinal disease

First patient treated in Part B of ASTRA trial evaluating SB-007.

Josh Steinberg and his father, Jon, talk with host Ben Shaberman about their close-knit family's journey with Josh's vision loss and eventual diagnosis of retinitis pigmentosa, as well as their volunteer leadership roles in driving the Foundation's mission. Jon is Chair of the Foundation's Science Committee and Vice Chair for Science on the Board. Josh is the former Chair of the Strategic Council...

Lindsey Rambo, a special education teaching assistant, mom, and wife, talks to host Ben Shaberman about her journey with Leber congenital amaurosis 5 (LCA5), participation in Opus Genetics' LCA5 gene therapy clinical trial, and her appearance on Good Morning America to tell her story about meaningful vision improvements. 

The company has also fully enrolled the Phase 2/3 VISTA clinical trial for its XLRP gene therapy.

Dr. Deniz Dalkara, a research director at INSERM in France, talks to hose Ben Shaberman about her emerging gene-agnostic, gene therapy designed to restore cone-mediated vision in people with advanced retinitis pigmentosa. Known as SPVN20 and clinically developed by SparingVision, the treatment recently moved into a clinical trial in Europe. Dr. Dakara also discusses her earlier work in retinal gen...

Tinlarebant slowed disease progression by 36 percent in the Dragon Phase 3 clinical trial.

The Foundation funded preclinical studies for the approach and launched Opus.

Greta Streimikyte, a blind para-athletic running champion from Ireland, talks to host Ben Shaberman about growing up with substantial vision loss from retinopathy of prematurity and her competitive running career. Greta has won gold in the women's 1500 meters at the 2018 and 2021 European Para Athletic Championships and is a three-time Paralympian. This episode is sponsored by Boehringer Ingelheim...