Torie Robinson

Epilepsy Sparks Insights

Health EN ↓ 275 episodes

Sparking interest and understanding in the epilepsies whilst bridging the communication gap between epilepsy patients, clinicians, scientists, geneticists – and the world. Hosted by Torie Robinson.**NOT FOR CLINICAL OR PATIENT DECISION-MAKING*Visit www.torierobinson.com & www.epilepsysparks.com.

Author

Torie Robinson

Category

Health

Latest episode

Jul 9, 2026

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Episodes

Why Aren’t More People Having Epilepsy Surgery? - Luke Tomycz 01.02.2024

Why are only a small percentage who’d benefit from epilepsy surgery getting it? Hear from neurosurgeon Luke Tomycz of the Epilepsy Institute of New Jersey. ------------------------------------------ 🔗 Website, transcription, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-why-arent-more-people-having-epilepsy-surgery -----------------------------------...

How Do You Measure Epilepsy Surgery Success? Engel Class? - Luke Tomycz 25.01.2024

Hear about ways of measuring epilepsy surgery success, risks, and managing expectations. With neurosurgeon Luke Tomycz. ----------------------------------------- 🔗 Website, transcript, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-epilepsy-surgery-success-measurement-engel-class   ----------------------------------------- Don’t understand all the ter...

The Safety & Efficacy Of Epilepsy Surgery - Luke Tomycz 18.01.2024

Learn about epilepsy surgery and potential benefits and risks - from epilepsy neurosurgeon of the Epilepsy Institute of New Jersey: Luke Tomycz. ------------------------------------------ 🔗 Website, transcription, and more about Luke: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/luke-tomycz-safety-efficacy-epilepsy-surgery ----------------------------------------- Don’t understand...

Brain Tumour-Related Epilepsy - Mark Cunningham 11.01.2024

Brain tumours commonly cause epilepsy. Learn more about research into this and Brain Tumour-Related Epilepsy, today with Mark Cunningham of Trinity College Dublin. ------------------------------------------ 🔗 Website & more about Mark: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/mark-cunningham-brain-tumours-tumors-epilepsy ----------------------------------------- Don’t under...

SUDEP Caused By Lack Of Air Hunger? - Brian Dlouhy 04.01.2024

Could the amygdala be responsible for lack of air hunger and SUDEP? Learn about the research from neurosurgeon and researcher Brian Dlouhy. ------------------------------------------ 🔗 Website & more about Brian: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/brian-dloughy-lack-air-hunger-sleep-apnea-amygdala-sudep ----------------------------------------- Don’t understand all th...

Being An Epilepsy Nurse - Neil Williamson 28.12.2023

Epilepsy Specialist Nurses provide a key part of the care package for people with an epilepsy. Hear of the value of flexibility and going above and beyond required, by Neil Williamson. ------------------------------------------ 🔗 Website & more about Neil: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/neil-williamson-being-an-epilepsy-nurse --------------------------------------...

A Cancer Drug That Prevents Seizures - Pablo Casillas-Espinosa 21.12.2023

A compound designed to treat prostate cancer appears to be effective in treating temporal lobe epilepsy in rodents - including the cognitive and psychiatric aspects so commonly accompanying seizures! Hear more from Pablo Casillas-Espinosa! ------------------------------------------ 🔗 Website & more about Pablo: 👇🏻 www.torierobinson.com/epilepsy-sparks-insights/pablo-casillas-espinosa-sodium...

Seizure Forecasting Using Machine Learning & AI - Ben Brinkmann 14.12.2023

Hear about developments in seizure forecasting (using AI & machine learning), the benefits to people with epilepsy, trust, and managing expectations. With Clinical Support Scientist at the Mayo Clinic: Ben Brinkmann. ------------------------------------------ 🔗 Transcription & more about Ben: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ben-brinkmann-machine-learning-ai-for...

The Latest Ways To Scan Your Brain! - Ben Brinkmann 07.12.2023

Exciting neuroimaging techniques are getting out there to help more and more people become seizure-free. Hear more about the latest from clinical support scientist Ben Brinkmann. ------------------------------------------ 🔗 Website & more about Ben: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/ben-brinkmann-latest-ways-scan-brain-mri-eeg-mag-magnetoencephalography-7tesla-mri --...

What Are MEG Brain Scans? - Stefan Rampp 30.11.2023

Magnetoencephalographies - or MEGs - are brain scans with a very high sensitivity and are a distinct complement to EEG and MRI scans in preparation for epilepsy surgery. Hear all about them now from the expert in biosignal analysis: Stefan Rampp . ------------------------------------------ 🔗 Website & more about Stefan: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/stefan-rampp-...

Epilepsy Via Somatic Gene Mutations - Karl Martin Klein 23.11.2023

Hear how somatic gene mutations can lead to an epilepsy and how this is being researched by lead clinician scientist of the University of Calgary: Karl Martin Klein. ----------------------------------------- 🔗 Website & more about Karl Martin: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/karl-martin-klein-epilepsy-via-somatic-gene-mutations -------------------------------------...

Epilepsy: The Israel-Palestine Crisis - Omar Danoun 20.11.2023

Hear how the conflict in Palestine is impacting the thousands people with epilepsy in Palestine - but how support from around the world is making a difference - with our return-guest, epileptologist Omar Danoun د. عمر دنون.. ------------------------------------------ 🔗 Website & more about Omar: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/omar-danoun-epilepsy-israel-palestine-...

Epilepsy Specialist Pharmacists: The Value - Trudy Thomas 16.11.2023

Epilepsy Specialist Pharmacist Trudy Thomas explains the incredible value of an Epilepsy Specialist Pharmacist, managing “A wonky stool”, and how and why other non-specialist pharmacists should learn more about the epilepsies. ----------------------------------------- 🔗 Website & more about Trudy: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/trudy-thomas-epilepsy-specialist-pha...

Epilepsy Awareness Month - Be Involved! - Meriem Bensalem-Owen 09.11.2023

Raising awareness of epilepsy amongst everyone for Epilepsy Awareness Month - through events and just chatting! With epileptologist Meriem Bensalem-Owen. ------------------------------------------ 🔗 Website & more about Meriem: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/meriem-bensalem-owen-epilepsy-awareness-month-being-involved ----------------------------------------- Chap...

Epilepsy - Fundraising for Care - Romania - Eugenia Roza 02.11.2023

Learn how funds are generated for the care of children with an epilepsy, fun times, and how it’s crucial to work with the whole family - with peadiatric neurologist and secretary of ILAE YES, Eugenia Roza, Romania. ------------------------------------------ 🔗 Website & more about Eugenia: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/eugenia-roza-epilepsy-fundraising-for-care-ro...

Biochemistry In Epilepsy Research - Lafora Disease - Matt Gentry 26.10.2023

Biochemist Matt Gentry shares with us his extensive research into the ultra-rare epilepsy Lafora Disease, his motivation from working with families, the brilliant work of the Lafora Disease charity Chelsea’s Hope, and support from both the NIH and the Chan Zuckerberg Initiative. ------------------------------------------ 🔗 Website & more about Matthew Gentry: 👇🏻 https://www.torierobinson.co...

Saving Lives: SUDEP Action Day - Sammy Ashby 19.10.2023

Learn about SUDEP (Sudden Unexpected Death in Epilepsy), SUDEP Action Day (18th Oct 2023), minimising risks, and saving lives! With Sammy Ashby of SUDEP Action. ------------------------------------------ 🔗 Website & more about Sammy Ashby: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/sammy-ashby-saving-lives-sudep-action-day ----------------------------------------- Don’t under...

Nature: A “Treatment” For Epilepsy? - Elisabeth Doran 12.10.2023

Exposure to nature: plants, water noises, and more, are proven to be of distinct benefit to human health. Epileptologist, Elisabeth Doran from St. James’s Hospital in Ireland explains the benefits of exposure to nature for those with an epilepsy. ------------------------------------------ 🔗 Website & more about Elisabeth Doran: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/elisa...

Genetic Epilepsy - Lafora Disease - Challenges & Hopes - Berge Minassian 05.10.2023

Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected, with Berge Minassian. ------------------------------------------ 🔗 Website & more about Berge: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/berge-minassian-lafora-disease   -----------------------------------------...

Exciting Research Into The Ultra-Rare Epilepsy: Lafora Disease - Jordi Duran 03.10.2023

Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the exciting research taking place to try and improve and save the lives of the children affected. With global lead researcher Jordi Duran. ------------------------------------------ 🔗 Website & more about Jordi: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/jordi-duran-lafora-disease   -------------------...

Ultra-Rare Epilepsy: Lafora Disease - José Serratosa 01.10.2023

Hear of the ultra-rare, devastating, terminal epilepsy Lafora Disease and the research taking place to hopefully improve and save the lives of the children affected. With lead epileptologist and researcher José Serratosa of the Hospital Universitario Fundación Jiménez Díaz, Madrid, Spain. This is the first of 3 of our episodes re the ultra-rare genetic epilepsy: Lafora Disease. -------------------...

Status Epilepticus: Complexities & Outcomes - Christoph Beier 28.09.2023

Hear of research into complex refractory & super refractory status epilepticus; treatments, outcomes, & how to improve each - with Christoph Beier. ------------------------------------------ 🔗 Website & more about Christoph Beier: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/christoph-beier-status-epilepticus-complexities-outcomes ---------------------------------------...

Seizure Propagation: Identifying How Seizures Spread - Christina Maher 21.09.2023

Learn of studies on the accurate prediction of seizure propagation and how identifying this for each person with an epilepsy can assist in more effective treatment - e.g. in presurgical workup, and more - all with biomedical engineer and neuroscientist Christina Maher from the University of Sydney. ------------------------------------------ 🔗 Website & more about Christina Maher: 👇🏻 https:/...

Focal Epilepsy Onset Later In Life - With Origins In Childhood - Jacob Pellinen 14.09.2023

Signs of focal epilepsy before the seizures start: hear all about it from epileptologist Jacob Pellinen, who shares with us his research and results proving that people can experience things like depression or learning difficulties at school or work before seizure onset. ------------------------------------------ 🔗 Website & more about Jacob: 👇🏻 https://www.torierobinson.com/epilepsy-sparks...

Epilepsy - Part Of An Autoimmune Disorder? - Lucas Gabriel Orellana 07.09.2023

Did you know that seizures and epilepsy can be part of an autoimmune disorder? E.g. Lupus, Coeliac disease, or Crohn's disease? Hear all about it from neurologist & epilepsy specialist Lucas Gabriel Orellana. ---------------------------------------- 🔗 Website & more about Lucas: 👇🏻 https://www.torierobinson.com/epilepsy-sparks-insights/lucas-gabriel-orellana-epilepsy-systemic-autoimmune...

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