d-a-d 3Speak Podcast

https://3speak.tv/watch?v=d-a-d/sfkarobs This time around, we founf a playground that has a lot going for it from an accessible point of view. There's a Liberty swing whcih can take a wheelchair, a ramp on the play equipment, and a lot of other features that fit the bill nicely! I'm not overly certain that the equipment was designed to be accessible, as there's not a lot to be done once you reach...

https://3speak.tv/watch?v=d-a-d/fxtgjmck This is our second accessible playground review and we kind of had high hopes for it. We'd been told that the recently renovated playground had been given accesible features. We had high hopes!

https://3speak.tv/watch?v=d-a-d/mbyrfkne If you've followed my account at all, you'll know that I'm all about helping people to understand Duchenne muscular dystrophy, a rare genetic condition that my son has. This year (and well into the future), I realy want to look at inclusivity and, in this series, see how inclusive playgrounds are. So, this is the first of many videos that will review playgr...

https://3speak.tv/watch?v=d-a-d/jojlzdsd My son was diagnosed with Duchenne muscular dystrophy nearly 3 years ago and in recent times, I've begun to notice that most public playgrounds are highly inaccessible for people who use mobility aids. The goal for 2025 is to review playgrounds for accessibility usingthe following five criteria: 1. Are all areas of the park/playground accessible using a mob...

https://3speak.tv/watch?v=d-a-d/aeounbyu This video was taken a few years before we received my son's Duchenne muscular dystrophy diagnosis. I remember, back then, thinking that he had really good calf muscles. Didn't know at the time, that pseudohypertrophy is a clear indication of DMD and that we should've had him assessed.

https://3speak.tv/watch?v=d-a-d/akpnyhcf As I continue preparing for the upcoming awareness/fund raising event, I've been completing early morning walks in the hope that I'll be conditioned enough to finish the 79 kilometres. While I've alwaye been adamant that I'll get through the distance, yesterday, I came to an explosive🤯 realisation.

https://3speak.tv/watch?v=d-a-d/ytbijkzh 🌟 Join Me in Making a Difference! 🌟 That’s right! You haven’t watched wrong! I’m going to be walking 79km on the 7th of September with the intention of raising awareness of Duchenne muscular dystrophy and to raise the funds required to purchase and build an accessible playground at Lockleys North Primary School and then, hopefully, many others. Please con...

https://3speak.tv/watch?v=d-a-d/dlulxejabm Launching 15.02.2024

https://3speak.tv/watch?v=d-a-d/oxwxjvcamh He didn’t really want to go to the park because he thought it was going to be boring. There’s not a lot he can do there because the play equipment is too difficult for him to use, so we improvised a game of basketball that would make it easy for him to participate.

https://3speak.tv/watch?v=d-a-d/pbchwavkrg Having a shot at upskilling my videography techniques - focusing on story telling and composition. My daughter was very helpful in acting, especially since she has never really played basketball before and didn’t even get provided with a proper location!

https://3speak.tv/watch?v=d-a-d/emhivpuqjd Over the past year, we’ve found UNO to be a great distraction from hospital waiting rooms and lengthy delays in various procedures. It’s been a source of immense laughter and helped in times of tension. I think the title says it all!!

https://3speak.tv/watch?v=d-a-d/hfuwcqbu Unfortunately for long term steroid users, bones can quickly become weak, and for a child with Duchenne muscular destrophy, this can easily lead to breakages. For a child with DMD, not walking, or using muscles, for a significant amount of time, such as occurs after breaking a leg, can lead to hastened inability to walk. To avoid this from happenning, bone...

https://3speak.tv/watch?v=d-a-d/zpigoqgp A video that skips from idea to idea a little, however, the primary focus is the idea that a child with DMD is difficult to benchmark. Just like when you're measuring a childs growth, you can have an idea of where they should be, but you cannot know for sure as each child grows at different rates. So to, is true for a child with DMD. There are benchmarks th...

https://3speak.tv/watch?v=d-a-d/hkdtjkej One thing we really noticed was that after the diagnosis, the number of appointemtns we were suddenly required to attend increased exponentially. Before the diagnosis, Dominic presented as a generally healthy child and we only took him to the doctors when he needed to go. Upon discovering he has DMD, we were faced with the reality that he was now required t...

https://3speak.tv/watch?v=d-a-d/jlarxgyl Every year on the 7th of September, the global Duchenne community come together to help raise awareness of Duchenne muscular dystrophy. The 7th of September is symbolic of the number of exons in the dystrophin gene - 79. The dystrophin gene is the one that is mutated and causes DMD. To help raise awareness one of the things we can do is ask local landmarks...

https://3speak.tv/watch?v=d-a-d/cpovdsvd When you have a child with Duchenne muscular dystrophy, there are rarely any good decisions to be made. Each decision you need to make comes with good and bad sides, or often, bad and worse sides. Steroids, for example, can help with remaining ambulant for longer and they can greatly reduce the risk of scoliosis, however, long term steroid use can weaken bo...

https://3speak.tv/watch?v=d-a-d/ekqropns In 2022 we found out that out son had Duchenne muscular dystrophy. It hit us hard. Harder than we ever expected. In the eighteen months since this revelation, we've already gone on a learning journey that should really have taken a lifetime. This is the start of a new journey - one where I hope to share the highs and lows of having a child with Duchenne mus...