Coffee & Community: Cutaneous Lymphoma Conversations

summary In this episode of Coffee and Community, Rich shares his personal journey with cutaneous lymphoma, detailing his diagnosis, treatment options, and the importance of building a support system. He emphasizes the need for realistic expectations regarding the disease, the impact of treatment on daily life, and the significance of mental health. Rich also offers valuable advice for newly diagno...

Summary In this episode of Coffee and Community, Scott shares his personal journey with cutaneous lymphoma, detailing his diagnosis, treatment, and the emotional impact of living with a chronic condition. He discusses the importance of finding specialists, managing family life, and the support he found through the Cutaneous Lymphoma Foundation. Scott emphasizes the need for self-advocacy and the v...

summary In this episode of Coffee and Community, host Holly Priebe speaks with Allison Fitzgerald, Director of Operations for GlobalSkin, about the GRIDD and PRIDD projects aimed at improving quality of life for individuals living with skin diseases, including cutaneous lymphoma. They discuss the importance of patient-centric data, the development of an app for tracking the impact of skin diseases...

summary In this episode of Coffee and Community, the Cutaneous Lymphoma Foundation discusses the newly developed guidelines for pediatric cutaneous lymphoma with Professor Chalid Assaf. The conversation covers the importance of these guidelines, the unique presentation of cutaneous lymphoma in children, the development process of the guidelines, treatment strategies including the watch and wait ap...

summary In this conversation, Dr. Steven Horwitz discusses the recent Lymphoma Research Foundation's T-Cell Workshop, emphasizing the importance of collaboration among experts in the field. The workshop aimed to address the unique challenges of T-cell Lymphomas including cutaneous lymphomas and explore advancements in research and therapy. Dr. Horwitz highlights the need for ongoing workshops, the...

summary In this episode, Harjeet K. shares her profound journey with cutaneous lymphoma, detailing her diagnosis, treatment, and the emotional challenges she faced. From navigating the healthcare system as an immigrant to advocating for awareness in the South Asian community, Harjeet's story is one of resilience and hope. She emphasizes the importance of communication, support networks, and breaki...

summary In this episode of Coffee and Community, host Holly Priebe speaks with Sabrina, a young adult living with cutaneous lymphoma. Sabrina shares her journey from misdiagnosis to advocacy, discussing the challenges she faced in navigating her diagnosis, treatment, and the importance of community support. She emphasizes the need for self-advocacy, the significance of finding a trusted physician,...

Summary In this conversation, Sheila J shares her journey with cutaneous T-cell lymphoma, emphasizing the importance of patient advocacy, the power of information, and the need for community support. She discusses her experiences navigating the healthcare system, overcoming fear, and living successfully with her diagnosis. Sheila highlights the significance of building trust with healthcare provid...