Cheat Codes: A Sickle Cell Podcast

This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language.    SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers,...

hhttp://On this episode of Cheat Codes: A Sickle Cell Podcast, we speak with Regina Hartfield, CEO of the Sickle Cell Disease Association of America, Inc (SCDAA).  SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education,...

http://On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios' phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questions they may have or break down any myths that the...

On this episode, Dr. Z and Dr. C talk to Dr. Carolyn Rowley and Elle Colle about Cayenne Wellness. Their mission is to increase the quality of life for individuals diagnosed with sickle cell disease in California by ensuring expert, unbiased, and comprehensive care."    Learn more about Cayenne Wellness at https://cayennewellness.org   SHOW DESCRIPTION Cheat Codes is intended for patients, caregiv...

On this episode, Dr. Z and Dr. C talk to "The Avengers" of Sickle Cell Disease aka Teonna Woolford, Cassandra Trimnell and Rae Blaylark about reproductive health in sickle cell disease. SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners wit...

This episode of Cheat Codes is our first bilingual podcasting experience. In the first half of the episode, Dr. Z and Dr. C speak with Professor Clarisse Lobo and Dr. Kleber Fertrin in English about their experience with sickle cell in Brazil. In the second half, we hear from them in their native Portuguese language.    SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers,...

On this episode, Dr. Z and Dr. C talk shop with a rising star in sickle cell disease. Dr. Oladipo Cole is a fellow at Washington University in St. Louis, MO. He also has sickle cell disease. Here he talks about his journey from child living with sickle cell disease to physician working in the disease state.   SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings liste...

Dr. Z and Dr. C welcome "Sickle Cell Legend" Dr. Obiageli Nnodu to the program. Dr. Nnodu is the Director of Centre For Sickle Cell Disease Research & Training at the (CESRTA) University of Abuja in Nigeria. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need...

We're LIVE from New Orleans, Louisiana! Listen to our live podcast panel featuring members of the sickle cell, pyruvate kinase deficiency, and thalassemia communities and leading KOL's in each field. We are proud to introduce the Red Cell Revolution! The Red Cell Revolution is an Agios patient advocacy movement that is driven by a relentless desire to find common ground with these communities and...

On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: "The Momma Bears". Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of t he Sickle Cell Reproductive Health Organization. Originally aired September 6, 2022.   SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings...

On this episode, we're turning our attention to our hosts: Dr. Ahmar Zaidi and Dr. Mike Callaghan. We'll get to know them a little better and learn about their journey into medicine and sickle cell disease.   SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families nee...

Dr. Z and Dr. C are back! On this episode they speak with Biba Tinga, President & Executive Director of the Sickle Cell Disease Association of Canada . They also discuss the care of her son Ismaël who was diagnosed with the rare disease.   SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education...

Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Lametra Scott, Dr. Simone Uwan and Francine Baker.   The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers.  Each year the Convention is hosted by a partnership of sickle cell CBOs, patients,...

Sharonda Sikes of the Sickle Cell Consortium will provide a recap of The Sickle Cell Warriors Convention with guests Dr. Tomia Austin and Mia Robinson.   The Sickle Cell Warriors Convention is a national community gathering, created and organized entirely by sickle cell patients and caregivers.  Each year the Convention is hosted by a partnership of sickle cell CBOs, patients, caregivers and advis...

On this episode, Dr. Z and Dr. C talk to some very important advocates in the Sickle Cell community: "The Momma Bears". Yvonne Carroll, Adrienne Shapiro and Pat Corley. Later in the episode we hear from Teonna Woolford, CEO of t he Sickle Cell Reproductive Health Organization.    SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and...

On this episode, Dr. Z and Dr. C speak with Cassandra Trimnell of Sickle Cell 101, Dr. Charles Jonassaint & Jude Jonassaint. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from the social media "buzz" around...

On this episode, Dr. Z and Dr. C talk to Sickle Cell Legend Russell Ware, MD, PhD   SHOW DESCRIPTION Cheat Codes is intended for patients, caregivers, providers, and the greater community of people who are impacted by Sickle Cell Disease.  Each episode, Cheat Codes strives to provide listeners with critical education, the latest scientific updates, and voices from the Sickle Cell community.     TR...

On this episode, Dr. Z and Dr. C talk to a panel of Sickle Cell warriors who were part of the RISE UP campaign. RISE UP is the name of Agios' phase two and phase three clinical trial for Sickle Cell Disease. The campaign itself was directed by the warriors to help the community know about the trial, to help educate, to help answer any questions they may have or break down any myths that they have,...

On this episode, Dr. Z and Dr. C debut a series about the "Legends of Sickle Cell". They interview Dr. Michael DeBaun and patient legend Shamonica Wiggins. SHOW DESCRIPTION Cheat Codes is a podcast for the sickle cell community that brings listeners a series of segments and interviews packed with critical education that patients and families need to know, as well as updates and clarifications from...

Dr. Z and Dr. C talk shop with Dr. Wally Smith on how Patient Navigators are changing sickle cell disease. Show Notes: Episode Sponsor: Novartis,  For 40 years Novartis has been committed to helping individuals living with sickle cell disease.  Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and caregivers. Dr. Ahm...

Dr. C and guest host Amy Board of BloodStream Media talk to Dr. Lydia Pecker about Reproductive Health in Sickle Cell. Hear Dr. Pecker's thoughts on menstrual cycles with sickle cell, fertility, contraception and more on this important, little discussed topic. A must listen! Show Notes: Episode Sponsor: Novartis. For 40 years Novartis has been committed to helping individuals living with sickle ce...

With the goal of getting a better understanding of Agios and their vision for partnering with the sickle cell community and being "fueled by connections," join us as guest host, with special guest host, and patient advocate Blaze Eppinger returns to the show for a discussion with Agios' and guest Sarah Gheuens, Chief Medical Officer, at Agios Pharmaceuticals.  Show Notes: Guest Host Blaze Eppinger...

Cheat Codes welcomes Dr. Mark T. Gladwin to talk about Pulmonary hypertension in sickle cell disease with Dr. Z and Dr. C. Show Notes: Episode Sponsor: Novartis. For 40 years Novartis has been committed to helping individuals living with sickle cell disease.  Through research, educational resources and access programs, we will continue our efforts to support patients, healthcare providers and care...

On October 29th, 2021, Hertz Nazaire, a prominent sickle cell warrior and prolific artist, passed away at age 48. In honor of Hertz, we're re-airing Dr. Z's interview with him for Cheat Codes, originally published in December of 2020.  Show Notes: Homegoing Expenses for Hertz Sickle Cell Disease: a battle for equality, justice and respect | Ahmar Zaidi | TEDxDetroit Program Notes: Subscribe to Che...

With the goal of getting a better understanding of Agios and their vision for partnering with the sickle cell community, join us as guest host, Blaze Eppinger speaks with Darrin Miles, the Chief Commercial Officer and Holly John, the Head of Patient Advocacy both of Agios Pharmaceuticals.  Show Notes: Guest Host Blaze Eppinger on Instagram Dr. Ahmar Zaidi on Twitter Dr. Michael Callaghan on Twitte...