Cafe' LBD

With Dementia, they are in a different place in their mind during confusion or tiredness. Somehow, we need to join them there when these moments happens. For me, it is a hard road to navigate, for you don't know when things changes for them.

We all need a place to go, to get away from life situations, good or bad. Our front front porch has been that for me. I would like to continue doing do, but who knows what the future holds.

I don't know about you, but I have a hard time lyjng to my mother. Not saying that I never have in my lifetime, but now it is becoming a necessity to do so, and I am not comfortable with it! Some calls it " therapeutic lies", but I got to find a way to do it and mot feel guilty afterwards.

It's one thing to eat leftovers, and the things with leftovers, you eat them for a few days, freeze them or throw them out. But with Dementia and sundowning, you have no control as to how often you will hear the same thing over and over and day after day. #Dementiasucks

To live life, going through the same thing everyday is crazy. So you make changes to solve that issue. Unfortunately, you cannot do that with someone who has dementia, and living in their world as they know it, is exhausting.

As caregivers we will make mistakes along the way, but we learn to correct and do our best to not make it again. This is more important when caring for a person with Dementia. You can feel trap at times and believe you can trust everything will be alright, until it's not...

I am so glad to be having better days with mom. Yes, there is still sundowning, but at least I can handle them much better. We also had a few days wo no sundowning!! But I know it won't be like this forever, but it gives me a chance to learn to rein in my emotions when the heavy ones happens.

We do have moments where sleeping all night has interruptions. I do handle those moments well now, but I still need to work on how I handle sundowning...

If you know about caring for some with Dementia, sleep, good quality sleep is hard to come by. I am bless to be able get an average of 6.5 hours of sleep. Recently I was able to get 8.75 hours of sleep one night. Only problem was that night, it took forever to go the sleep. 😅

A normal person would get tired repeating the same thing over and over again, so we change things. Not the case with those who has dementia, for they don't realize or remember the things they say and do everyday.

What can I say, each day is like a box of chocolate and yes, you don't know what is going to happen! Just maybe if each day was really the same, maybe the caregiver wouldn't be so tired, do stressed...

The same thing, over and over again!! Yes, I am tired of it! However, I can't leave and I got to find ways of dealing with it too. #Dementiasucks

I pray for every caregiver that is going through this journey with a love one who has dementia! This disease will break you, but you have to find ways to keep going and protect your mental health.

With Dementia , I was hoping some behavior would change, but not the case, in fact it has intensified!! Her one behavior I thought would change is, not sleeping the night before an appointment. Not good! 😔

I knew fresh air is good for those with Dementia, as well as exercise. However, it can be hard to get a 94 year old with Dementia to do somethings. This weekend, I manage to get my mother to sit with me on our front porch. To my surprised, we enjoyed the fresh air for 5 hours!!! Sundowning was almost non existent and she went to bed with no problem. Got to get more of that fresh air!

Every night we go through the same thing, I should say being ask the sam question, "are we going home?". Yes we are home and matter what I say, she has a meltdown of confusion, agitation, and more...

I am all moved back in with my mother. No one want to move back home, but in this case, it is necessary! Dementia is such a horrible disease, and yes, I hate it for her and for me...

It's like a runaway train, but you can't get off. She is stuck and I hope I can get her out of this, "are we going to your house"? Funny thing, she didn't come to my house thatvoften in the first place, but now, in her sundowning state, my soon to be sold home, is where she wants us to go.

It has now been 13 nights of sundowning. It is partly my fault. I didn't know me moving my things to my mother's house and the back and forth, was going to mess with her mind so badly. However, I am not sure how long it will take for her to detox from all of this.

I see now with this disease, I will be learning how to deal with it everyday! Each day therevis something different, or something you haven't experienced before or in a long time. Yes, you have to stay on top of it...if possible

Nobody wants to wake up each day, not knowing what or who you're waking up too. That is the world of Dementia. Sometimes you feel like your walking on egg shells, and other times you move in fear. You just have to wake up with a determined mind to not allow it to control you!

so much with Dementia is repetition. Just like the movie "Groundhog Day", you make get the same behavior the next day, or few days. It is frustrating for us caregivers of a love one, but they need us to help and keep them safe, each and every day!

It has been emotional of late for me. I am not sure if this disease is progressing or what. It just amazes me how one moment she knows who I am, then the next she doesn't, and it happens without any warning.

This roller-coaster ride has no ending. However, we do make stops, but not enough of them for me. I am doing my best to handle what comes, but I can say this, caregiving is not for the week!

Every day IS like a box of chocolate when it comes to Dementia. Now I pray that my mother will recognize me when I get up in the mornings. She did a few mornings ago. So will take that and praying for more days.