Soft Bones, Inc.

Bonafide HPP

Business EN ↓ 15 episodes

Learn more about HPP with this educational podcast series hosted by Deborah Fowler.

Author

Soft Bones, Inc.

Episodes

Episode 15: Physical Therapy & HPP from a Patient and Provider Perspective 07.04.2026 35:28

What happens when a seasoned physical therapist becomes the patient? For Adam, that question became deeply personal after being diagnosed with hypophosphatasia 4.5 years ago. As a physical therapist for over 27 years, Adam shares his perspective on the purpose of physical therapy and how it can help patients manage their care. In this episode, Adam joins guest host Cindy Reasor and shares what it’...

Episode 14: Mindfulness in the Face of ADHD, Anxiety, and Needle Phobia 30.12.2025 32:28

ADHD, anxiety, and needle phobia, oh my! Join guest host Cindy Reasor as she interviews HPP caregiver and Licensed Professional Counselor (LPC) Christine McGowan. What is ADHD and anxiety? How is it diagnosed? When to seek professional help. Tune in to learn more. Follow us on social media: Instagram: @softboneshpp Facebook: Hypophosphatasia: The U.S. Soft Bones Foundation X: @SoftBonesHPP

Episode 13: Why YOUR Voice Matters 14.05.2025 27:14

Join Deborah Fowler as she talks with Dr. Anthony Yanni, Senior Vice President of Patient Centricity at Astellas Pharma, to explore how patient engagement can transform lives. Learn why your voice matters and how it is key to advancing research, improving treatment options, and shaping the future of medicine. Dr. Yanni's Book: A Bandana and A Bluebird: The Path to a Patient-Centric Healthcare Syst...

Episode 12: A Taste of Mindfulness with Alison S. 30.04.2025 39:36

💚 May is Mental Health Awareness Month. For many patients living with a rare disease, stress, anxiety, and other mental challenges can manifest in different ways. Join guest host Cindy Reasor as she interviews certified health coach and HPP patient Alison S. What is stress? How can we manage it? Why is it important? Tune in!

Episode 11 - HPP Clinical Trials: What Are They and Are They Right for Me? 23.12.2024 33:00

Dive into the world of HPP clinical trials with Soft Bones. Host Deborah Fowler chats with Dr. Kathryn Dahir, Professor of Medicine at Vanderbilt University, about the basics of clinical trials and the current HPP trials. Don’t miss this insightful and informative episode—tune in now!

Episode 10 - A Conversation with Guest Host Cindy Reasor and Sue Krug 05.12.2024 14:57

Join guest host Cindy Reasor as she chats with patient and Soft Bones Patient Liasion, Sue Krug.

Episode 9 - A Conversation with Guest Host Aaron Blocker and Deborah Fowler 28.10.2024 28:37

In this special episode, Aaron Blocker is guest hosting to discuss hypophosphatasia (HPP), a rare genetic bone disease that they live with. They interview Deborah Fowler, the founder of Soft Bones, a foundation that provides support, resources, and advocacy for those affected by HPP. Together, they explore the journey of living with HPP, advances in treatment, and the critical work Soft Bones is d...

Episode 8 - Be Involved: A Conversation with Patient, Caregiver, and Advocate, Janni K. 26.07.2024 11:18

Featuring guest host Cindy Reasor and patient Janni K.

Episode 7 - Commonly Asked Questions About ELISA Testing with Dr. Steven Petak 27.06.2024 16:59

Featuring Dr. Steven Petak, former Head of Endocrinology at Houston Methodist Hospital and a former Associate Clinical Professor at Weill Cornell Medical College and Texas A&M.

Episode 6 - A Conversation with Lindsey W. And How HPP Has Shaped Her Life 08.03.2024 21:59

Featuring guest host Cindy R. and Region Lead and Patient Lindsey W.

Episode 5 - PFDD 10.11.2022 10:09

PFDD (Patient-Focused Drug Development)

Episode 4 - The Meg Foundation 07.09.2022 40:26

Featuring Jody Thomas

Episode 3- Physical Therapy 04.08.2022 30:50

Featuring Donna Griffin, PT

Episode 1- Questions About HPP and Dental Health 19.05.2022 29:15

Featuring Timothy Wright, MS, DDS

Episode 2- Pain Management 17.05.2022 32:58

Featuring Chris Sobey, MD