BloodStream

We've got SNL screwups, the mainstream acronyms continue to butcher rare blood diseases. Plus, we've got a new ELITE ATHLETES segment with Anthony Pezzillo (who recently became an uncle; or expanded his uncledom) and I'm Fine, this time with a focus on the caregiver experience with Jessica Bombardier. We'll get into it all, AND MORE, on this episode. Show Notes: Subscribe: The BloodStream Podcast...

The World Health Organization made a decision that has heads scratching that could seriously impact hemophilia patients across the globe and a new I'm Fine segment with blood brother, Justin Levesque. Plus, Worlds AIDS Day with Maya Bloomberg and Patrick is pain-free (or close to pain-free) for the first time in a long (!!) time. Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: T...

Hear what Patrick and Amy are grateful for as we play The Gratitude Game, because 'tis the season, y'all! Also, A new (and fantastic!) I'm Fine segment on the dark side of resilience and Ph. D. Olav Versloot on the latest Elite Athletes segment.    Show Notes: Subscribe: The BloodStream Podcast   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.  

Amy turns the table on the latest I'm Fine and puts Patrick in the hot seat as he shares how and why he resists change and the effect that has on his loved ones. Plus, Maya Bloomberg, @thehemenp, is back with a segment on family dynamics and holiday logistics with a bleeding disorder. Check it out on the latest episode of BloodStream. Show Notes: Subscribe: The BloodStream Podcast   Presenting Spo...

The BloodStream Podcast is off this week but we have something very special for you. Introducing PNH: Facts, Fiction & FYI .  Dive deep into the critical history, medical background, and foundational insights of Paroxysmal Nocturnal Hemoglobinuria (PNH) in our inaugural episode. Join us as we set the stage for a comprehensive exploration of this rare blood disorder. Content Independently Created b...

Mosi Williams, blood brother and social worker at an HTC in Northern California joins Patrick for the latest I'm Fine segment with a candid discussion about treatment transitions. And we have UK rugby player, Jess Page, who is living with hemophilia on our Elite Athletes with Hemophilia, the companion segment to the new film REDEFINING IMPOSSIBLE from Believe Limited.  Show Notes: Subscribe: The B...

We're back with another episode of BloodStream featuring Maya Bloomberg's 5 tips for sexual health with a bleeding disorder and AI in Healthcare with Kevin Mills and Pat Mancini. Plus a new SHEmophilia segment and a I'm Fine segment with Mark Skinner.    Show Notes: Subscribe: The BloodStream Podcast   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   To support CHES's progr...

Dr. Akshat Jain, Director Inherited Bleeding Disorders at the Loma Linda University Children's Hospital, is here with a wide-ranging conversation, including gene therapy access and affordability in low resource areas. Plus, a new Elite Athletes segment featuring San Jose Sharks Head Coach, David Quinn and another installment of I'm Fine with a spotlight on–leadership. Be careful, leaders, we're co...

Amy is with guest co-host Joshua Sterling Bragg with Back to School & Sickle Cell Awareness Month resources and a new I'm Fine segment about embracing change in hemophilia care. Plus Maya (@theHEMENP!) is back with thoughts on sports and fitness and author Tim Ryan join us! Show Notes: Subscribe: The BloodStream Podcast   Back to School Resources at Steps for Living   Sickle Awareness Month Resour...

Patrick and Amy recap all the happenings at the recent Bleeding Disorder Conference in DC live from The Science Fair! We'll discuss the rebrand to The National Bleeding Disorder Foundation (NBDF) and several sessions that caused interest, including two gene therapy patients with wildly different experiences. Also, we'll premiere the first Elite Athletes segment that highlights community members fr...

Don't worry, Amy was given only 3 minutes to share her experience of The Eras Tour and then we get to the good stuff! Maya Bloomberg, the @TheHemeNP, shares four specific pillars of successful disclosure and we debut our new segment, I'm Fine. This new segment aims to challenge our "normals" and truly consider the possibilities.    Show Notes: Subscribe: The BloodStream Podcast   Presenting Sponso...

The National Hemophilia Foundation has a major rebrand coming up and we spoke with outgoing CEO and President Len Valentino about that AND SHEmophilia is back with a story from community member Priscilla Oren. We also share some important Medicaid information - don't miss this one! Show Notes: Subscribe: The BloodStream Podcast   You can do three practical things to help further the campaign for b...

Patrick calls in to discuss the first gene therapy for Hemophilia A approved in the United States, while Amy chats with Chris Bombardier and Dru Johnston about season 2 of The Final Summit and Maya Bloomberg shares 5 Tips for a Safe and Fun summer with a bleeding disorders.   Show Notes: Subscribe: The BloodStream Podcast   Listen to T he Final Summit Season 2 Podcast !   Presenting Sponsor: Taked...

Jessica Lauren Richmond, co-host of the popular FLOW podcast, joins us to discuss all things menstrual health and Amy finally gets to ask –So, how's your FLOW? We also have James Maple back with a music and self-expression segment that spotlights on community member, Max Feinstein.   Show Notes: Subscribe: The BloodStream Podcast   Listen and Subscribe to the FLOW podcast! Share your FLOW story wi...

Join us as we celebrate World Sickle Cell day on June 19th with contributor Maya Bloomberg, the HemeNP and a conversation with hematologist Dr. Mike Callaghan. Great stuff about equity in healthcare, clinical trial participation, the Sing Me a Story organization, and the Denver Nuggets in the finals. Don't miss it! Show Notes: Subscribe: The BloodStream Podcast   Presenting Sponsor: Takeda, visit...

We've got a new "SHEmophilia" audio segment brought to us by CHES, as well as Saverio Cimino featured in today's music and expression segment. Then, Patricks catches up with community member, Michael Bishop. A great episode!   Show Notes: Subscribe: The BloodStream Podcast   Saverio Cimino's Instagram   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more.   To support CHES's prog...

Dr. Guy Young joins us for an overview on the newest non-factor replacement therapy for hemophilia A and B, still in clinical trials–Fitusiran. Maya Bloomberg, the HemeNP, is back and so is James Maple with a segment featuring community member and musical artist, Shelby Smoak. We'll also get a sneak peak of a brand new documentary featuring members of our community!   Show Notes: Subscribe: The Bl...

Gunnar Esiason, son of NFL legend Boomer Esiason, shares his story of living with cystic fibrosis and becoming the advocate he is today. We also speak with Rich Gorman: ethicist (!) on the ethics of gene therapy. Josh reflects on the connection between physical and mental health on Let's Talk. A packed episode!   Show Notes: Subscribe: The BloodStream Podcast   Learn more about Gunnar Esiason and...

A stacked episode with a new Maya Bloomberg (@TheHemeNP !) segment, music from community member Tamar Mitchell, and Patrick sits down with Dr. Z (Zolotnitsky !) to discuss his PT work it the hemophilia community. All that, and more, on this World Hemophilia Day episode of BloodStream Podcast!   Show Notes: Subscribe: The BloodStream Podcast   Celebrate World Hemophilia Day on social media!   Check...

Patrick and Amy discuss the reaction to Patrick's viral Warning to the Community and we can all agree that we struck a nerve! Also, our first segment with Maya Bloomberg, the @HemeNP where she discusses anemia. Plus, Blood Brother John Christen sharing his work, Bleeding China and the latest installment of Let's Talk.    Show Notes: Subscribe: The BloodStream Podcast   Check out Bleeding China on...

What does taking ownership of your bleeding disorder look like? Patrick shares his thoughts and NHF's education staff, Brendan Hayes and Heather Hicks join us to debut a new program that could change the game. Also, we introduce Maya Bloomberg, a certified nurse practitioner, who is addressing blood disorders through social media. A can't miss episode!    Show Notes: Subscribe: The BloodStream Pod...

We recognize and celebrate Rare Disease Day on BloodStream! A day to raise awareness, share your story, and appreciate the community we find ourselves in. We'll also get an interview with community member, Murai Johnson, to honor of Black History Month and Josh is back with another Let's Talk: Living in the Almost.  About The Infected Blood Inquiry - The Haemophilia Society Show Notes: Subscribe:...

On this bonus episode, we continue to honor Black History Month with interviews with blood brother, Bobby Wiseman, and Dima Henricks, sickle cell advocate and founder of #ThroughThePain. Plus, a warning for the hemophilia community with care from Patrick and Amy. Show Notes: Subscribe: The BloodStream Podcast   Presenting Sponsor: Takeda, visit bleedingdisorders.com to learn more. Connect with Blo...

BloodStream welcomes back NHF Vice President of Public Policy, Nathan Schaefer to talk everything Washington Days and advocacy! Plus, an interview with community member and social worker, Mosi Williams and a new segment of The Well. Oh, and Amy and Patrick share some personal advocacy wins and bummers too! Show Notes: Subscribe: The BloodStream Podcast Presenting Sponsor: Takeda, visit bleedingdis...

BloodStream honors Black History Month with a series of interviews with community members and KOL's Join us for this pop-up episode with Connie Montgomery as she shares her perspective with James Maple. Plus, Josh Bragg is back with another Let's Talk featuring community member, Mike Hargett. Show Notes: Subscribe: The BloodStream Podcast   Presenting Sponsor: Takeda, visit bleedingdisorders.com t...