Beyond the Diagnosis

Welcome to Episode 042 of the Beyond the Diagnosis Podcast. In this episode we invite the parent’s perspective into the conversation about histiocytosis and hear about a histio mom’s journey with this rare disease and her advice for those currently going through it. Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at podcast@histio.org....

Welcome to episode 041 of the podcast.  In this episode of 3-Minute Thursdays, 25th Histio Ambassador, Nate Milam talks about the taking your care into your own hands and the power of the patient voice. Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey. Nate is the 25th Histio Ambassador and an HLH survivor.  We'd love to hear your...

Welcome to episode 040 of the Beyond the Diagnosis podcast. In this episode of 3-Minute Thursday, Histiocytosis Association Outreach Program Coordinator Melinda Atnip celebrates some very important people – nurses! It’s National Nurses Week so be sure to thank your nurses next time you see them! Join us every Thursday and escape for 3 short minutes into a place of hope and encouragement on your hi...

May 4, 2023 3-Minute Thursday Host – Michelle Meadows Welcome to episode 039 of the Beyond the Diagnosis podcast.  It’s Star Wars Day and in this episode of 3-Minute Thursdays, histio mom, fundraising host and Histiocytosis Association Ambassador Michelle Meadows shares how your knowledge truly is your force.   Join us every week and escape for 3 short minutes into a place of hope and encouragemen...

Welcome to episode 038 of the Beyond the Diagnosis podcast.  In this episode of 3-Minute Thursdays, Histiocytosis Association Executive Director, Deanna Fournier introduces the concept of self-empathy and how the things that we say to ourselves matter. Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey. Deanna is the Executive Director o...

Welcome to Episode 037 of the Beyond the Diagnosis Podcast. In this episode we highlight an incredible study on caregivers, a very important piece in the puzzle of histiocytosis.  Join Kathy as she speaks with Drs. Allison Applebaum and Eli Diamond about their recently completed caregiver study, the benefits and meaning that come from caregiving and the needs that exist in this very important role...

Welcome to episode 036 of the podcast.  In this episode of 3-Minute Thursdays, 25th Histio Ambassador, Nate Milam talks about the power of pharmacogenetics and how you can take pain management into your own hands. Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey. Nate is the 25th Histio Ambassador and an HLH survivor.  Resources mentio...

Welcome to episode 035 of the Beyond the Diagnosis podcast.  In this episode of 3-Minute Thursday, histio mom, Histio Ambassador and Association Fundraising and Events Coordinator, Allie McFadden, talks about how our choices can change our outlook on our circumstances! Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey. We'd love to...

Welcome to episode 034 of the Beyond the Diagnosis podcast.  In this episode of 3-Minute Thursday, Histiocyte Society Secretariat and Beyond the Diagnosis Podcast host, Kathy Wisniewski, talks about the power of positive thinking and how you can exercise that positive thinking muscle! Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey. W...

March 30, 2023 3-Minute Thursday Host – Melinda Atnip Welcome to episode 033 of the Beyond the Diagnosis podcast. In this episode of 3-Minute Thursday, Histiocytosis Association Outreach Program Coordinator Melinda Atnip shares some thoughts on how we need to shift our mindset around self-care and some great ideas on how to do just that! Join us every Thursday and escape for 3 short minutes into a...

March 23, 2023 3-Minute Thursday Host – Peter Yanefski Welcome to episode 032 of the Beyond the Diagnosis podcast. In this episode of 3-Minute Thursdays, Histiocytosis Association Strategic Communications Associate, Peter Yenefski, shares his thoughts about how laughter is great medicine - and even shares a couple of jokes along the way! Join us every Thursday and escape for 3 short minutes into a...

Welcome to Episode 031 of the Beyond the Diagnosis Podcast. In this special 2nd Anniversary podcast, we celebrate this milestone by bringing you clips from the top 10 most listened to episodes.  Join us as we count down from 10 to 1 and maybe you’ll find an episode that you want to go back and listen to! Let us know what you think! Leave us a review, drop us a comment or share an idea for a future...

March 16, 2023 3-Minute Thursday Host – Deanna Fournier Welcome to episode 030 of the Beyond the Diagnosis podcast. In this episode of 3-Minute Thursdays, Histiocytosis Association Executive Director, Deanna Fournier shares her thoughts about the benefits of taking time out to think of the things in your life that you’re grateful for. Join us every week and escape for 3 short minutes into a place...

March 9, 2023 3-Minute Thursday Host – Nate Milam Welcome to episode 029 of the podcast. In this episode of 3-Minute Thursdays, 25th Histio Ambassador, Nate Milam talks about the challenges with ethnicity and matching and how his own match saved his life. Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey. Nate is the 25th Histio Ambassa...

March 2, 2023 3-Minute Thursday Host – Kathy Wisniewski In this debut episode of 3-Minute Thursdays, Kathy introduces this new “burst of hope” that we want to offer to our community. Join us every week and escape for 3 short minutes into a place of hope and encouragement on your histio journey. Kathy is a staff member at the Histiocytosis Association. Her roles include managing the Association’s r...

Welcome to Episode 027 of the Beyond the Diagnosis Podcast. The first in a 3-part series, in this episode Kathy speaks with Allie McFadden, Association Fundraising Events Coordinator as we introduce you to our research grant process, starting at the very beginning – raising the money to fund the grants. Let us know what you think! Leave us a review, drop us a comment or share an idea for a future...

Welcome to Episode 026 of the Beyond the Diagnosis Podcast. Listen in as Dr. Michael Henry, Chair of the Histiocyte Society Education Committee, shares with us how education is at the forefront from pilot programs to abstract scoring and so much more! Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at podcast@histio.org. Take a screens...

Welcome to Episode 025 of the Beyond the Diagnosis Podcast. Come along with us in this episode as we share a replay of the HopeCast, originally broadcast on Giving Tuesday. Learn all about the accomplishments of 2022 and what’s on board for 2023. Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at podcast@histio.org. Take a screenshot a...

Welcome to Episode 024 of the Beyond the Diagnosis Podcast. In this episode Kathy talks with Dora Moustaka from Histio Hellas in Greece and Fernando Gotz from the OR Asociacion in Spain about their experience at the Histiocyte Society Annual Meeting in Stockholm and their hopes for the ongoing international family group collaboration. Let us know what you think! Leave us a review, drop us a commen...

Welcome to Episode 023 of the Beyond the Diagnosis Podcast. In this episode Kathy talks with Dr. Kim Nichols, the new President of the Histiocyte Society, and learns about her visions and goals for the next 3 years. Are you looking for an opportunity to connect with other patients and families, as well as have access to essential medical and research information presented by leading histio physici...

Welcome to Episode 022 of the Beyond the Diagnosis Podcast. In this episode Kathy talks with 3 of the Association’s 2021 grant recipients about how they came up with their projects, what the grant application process was like for them and where their research stands today. Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at podcast@hist...

Welcome to Episode 021 of the Beyond the Diagnosis Podcast. In this episode Kathy talks with 3 of the Association’s new Ambassadors about the events they are planning for Awareness Month. Come roll and run into September with us! Let us know what you think! Leave us a review, drop us a comment or share an idea for a future podcast with us at podcast@histio.org. Take a screenshot and tag us @histio...

Welcome to Episode 020 of the Beyond the Diagnosis Podcast. In this episode Kathy has a conversation with Rachel Becker, Deputy Director of Cancer and Careers, about the many useful resources the organization can provide to help with the issues that live at the intersection of a cancer diagnosis and work. Let us know what you think! Leave us a review, drop us a comment or share an idea for a futur...

Welcome to Episode 019 of the Beyond the Diagnosis Podcast. In this mini-episode Kathy welcomes back Deanna Fournier, Executive Director of the Histiocytosis Association a mid-year update on what the Association has accomplished so far in 2022. If you’re curious about the exciting things that Association has been working on so far this year, then you don’t want to miss this episode! Let us know wh...

Welcome to Episode 017 of the Beyond the Diagnosis Podcast. In this episode Kathy speaks with Michelle Phay, wife of Dave Phay, who lost his life to HLH in 2018. Michelle talks about their experience with the disease, how she navigated through tests, treatments and over 27 different erroneous diagnoses, and how her grief fuels her to fulfill Dave’s 3 parting wishes. Let us know what you think! Lea...