Behind the Episode: An Advocacy Podcast by Cure AHC

Spotlight Family Social Media Account: Abilities First Texas, by Katy Pipak Williams, Mom to EK who has AHChttps://www.instagram.com/abilities.first.tx/# FAMILY MEETING INFO:Virtual attendance is available again this year. Virtual attendees will be able to watch presentations live and participate in live Q&A sessions throughout the weekend. Virtual registration is $50. If cost is a barrier, em...

Welcome to Behind the Episode, a rare disease advocacy podcast by Cure AHC.  This podcast is about the families, the people, the science, the advocacy, the stories, the hope, and the strength that exists behind the AHC episodes. Behind the Episode is meant to be a living resource for families—new and seasoned alike.  This month we are thrilled to share our first Family Diagnosis episode, featuring...

Welcome to  Behind the Episode , a rare disease advocacy podcast by Cure AHC. Months ago, we gathered your questions as a community — and this conversation is where those answers live. This is a longer episode, because we didn’t want to cut any of the information that feels so important and so hopeful for families. But we also know your time is limited, so we’ve added chapters and time stamps in t...

In Episode 1, host Izzie Duval speaks with former Cure AHC President and RARE Hope co-founder Simon Frost and newly elected Cure AHC President Stephen Henderson about how their children’s AHC diagnoses sparked their journeys into advocacy, leadership, and building momentum toward new breakthroughs in AHC research.