An Unexpected Fight: A Pediatric Cancer podcast

In this powerful and heartfelt episode, we sit down with Jon and Jenn Wall—co-founders of Zach’s Bridge and parents whose journey has inspired a mission of connection, advocacy, and support for families navigating pediatric cancer. Jon, President of Zach’s Bridge, brings both personal experience and professional expertise to his work. As a member of the Pediatric Patient and Family Advisory Counci...

Donna is a pediatric cancer research advocate. Her son Erik battled neuroblastoma and suffered a late relapse, diagnosed in 1991 at age 6 and died in 2010 at age 24. She has been involved in the pediatric cancer community for decades. She serves on several councils including the NCI Pediatric Central Review Board, NCI Pediatric and Adolescent Solid Tumor Steering Committee, FDA Patient Representat...

In this episode, we speak with Prof. Johannes Gojo, MD, PhD , one of the world’s foremost experts in pediatric neuro-oncology. Dr. Gojo shares groundbreaking research into ETMR and ATRT brain tumors , the promise of liquid biopsies , and how international collaboration through CARE for RARE (established by Solving Kids’ Cancer) is transforming outcomes for children with rare brain tumors. We also...

Susan Latta LMFT, FT is a licensed Marriage and Family Therapist and the Department Head of Clinical Services at the Austin Hatcher Foundation for Pediatric Cancer. Susan holds a Fellow in Thanatology, the study of death and dying, and received her BS from Cal Poly San Luis Obispo University and her MA from Fuller Theological Seminary. Susan brings 35 years of counseling individuals, children, and...

As Principal Investigator of the International PPB/DICER1 Registry and founder of the International OTST Registry , Dr. Schultz is at the forefront of developing novel treatments for some of the rarest and most aggressive pediatric cancers. 🎧 In this episode, we dive deep into:  ✨ The importance of registries in rare cancer research  ✨ What families facing a DICER1 diagnosis need to know  ✨ He...

Tiffany, Kelly and Steve talk about emotions associated with pediatric cancer diagnosis from the perspective of a pediatric cancer survivor, a pediatric cancer parent and a bereaved pediatric cancer parent.  Reintroducing: Steve Garraty was lucky to be graduating high school. He was partying and living a lifestyle that wasn’t sustainable. His priorities were upside down. He was running towards the...

Dr. Satterlee is an Assistant Professor at the University of North Carolina at Chapel Hill and the Director of the Screening Live Cancer Explants Program and Core Facility at Eshelman Innovation — an academic institute focused on translating groundbreaking ideas into real solutions for patients. Since beginning his PhD in 2011 as a National Science Foundation Graduate Research Fellow, Dr. Satterle...

Claire L. Carter, Ph. D., is an Assistant Member of the Center for Discovery and Innovation; Assistant Professor of Pathology at Hackensack Meridian School of Medicine; and Co-Director of the Mass Spectrometry and Analytical Pharmacology Shared Resource at the NCI-designated Georgetown Lombardi Comprehensive Cancer Center. Dr. Carter completed her Ph. D. in Chemistry at the University of Birmingha...

Richard Gaster, M.D., Ph. D., is a Managing Partner at venBio with experience as a physician, entrepreneur, and life science investor. Now, a cancer dad.  He has helped to launch, invest, and serve on the board of or as board observer of a number of venBio companies. Prior to joining venBio, Dr. Gaster served as the head of translational medicine at Pliant Therapeutics. As a key member of the foun...

This week, we're thrilled to have Kellyn Simonson join us for an insightful episode. Kellyn, a passionate storyteller and advocate, brings her rich experiences from both her professional and personal life. As a Family Resources Coordinator and a mother who has navigated the challenges of autism and childhood leukemia within her family, Kellyn embodies resilience and hope. Tune in as we explor...

If you want to donate to Gold Ribbon Kids: https://givebutter.com/gold-ribbon-kids-cancer-foundation to learn more go to: goldribbon-kids.org nationalpcf.org kgoddard@nationalpcf.org - Kelly info@goldribbon-kids.org - Tiffany Support the show

Steve Garraty was lucky to be graduating high school. He was partying and living a lifestyle that wasn’t sustainable. His priorities were upside down. He was running towards the edge of a cliff and unable to stop himself. Then God intervened. He heard the three dreaded words none of us ever want to hear: “You have cancer.” After embarking on chemotherapy and a year of hell, as all his friends head...

Mom of two boys 16 months apart, Vincent and Corey. Fitness/wellness industry for 18 years. I have always tried my best to make good healthy choices for my family. Cancer doesn’t care. We lean on our Faith to get us through every day, especially was important during our cancer journey. Vincent was diagnosed with stage II Rhabdomysarcoma at age 4, has been off treatments for two years..happily in r...

https://www.instagram.com/sharellemendenhall https://www.facebook.com/sharelle.smith.3 For more information, go to goldribbon-kids.org or email info@goldribbon-kids.org follow us on social media: goldribbonkids on all sites! Support the show

Featuring Capt. Red Flowers who took on and set a new record for the fastest completion of the great loop!!  He has been raising money for pediatric cancer research with his venture and is also a cancer survivor himself.  Read more about his story: https://nationalpcf.org/the-great-loop-challenge-2024/ goldribbon-kids.org nationalpcf.org Tiffany- goldribbonkidscf@gmail.com Kelly - kgoddard@nationa...

tiffany and kelly discuss different myths related to cancer  to learn more or to  noraswarriors.com nationalpcf.org kgoddard@nationalpcf.org - Kelly goldribbonkidscf@gmail.com - Tiffany Support the show

Dr. Trisha Larkin is the Director of Pediatric Neuro-Oncology at St. Joseph’s Children’s Hospital. She is dual-board certified in pediatrics and pediatric hematology-oncology. Dr. Larkin earned her medical degree from Florida International University College of Medicine, followed by a Master of Business Administration in healthcare. She completed her postdoctoral training at Nicklaus Children’s Ho...

Discussion on "A Heart that Works" by Rob Delaney nationalpcf.org Tiffany: tmcconathy@nationalpcf.org Kelly: Kgoddard@nationalpcf.org Support the show

Tiffany McConathy: tmcconathy@nationalpcf.org Kelly Goddard: Kgoddard@nationalpcf.org nationalpcf.org  Support the show

Stephanie Tobola is a Texas native, military spouse, mother of two, and is now adding author to that list. Her debut book, Ketchup Sandwiches, is an intense memoir which takes the reader on the emotional rollercoaster of the life of a child enduring abuse and neglect. In sharing her story Stephanie aims to bring the hope of healing to others. In this episode, we dive into the life of trauma. We di...

This episode features brain cancer survivor Jordan and his mom, Jodi. They share their story and what continues to inspire them to continue to help other pediatric cancer patients.  Contact information for Jordan and Jodi JZips.org j@jzips.org Support the show

Discussing innovative quantum radiation research for pediatric cancer Bio for Dr. Kei Iwamoto: I attended the University of California, Berkeley to earn a double AB degree in Physics and in Biochemistry.  I received a PhD degree from the UCLA School of Medicine in Biomedical Physics in the specialty of Radiation Biology and Experimental Therapeutic Oncology.  I then worked at the Radiation Effects...

Nilay Shah, MD is a clinician-scientist and Associate Professor in the Division of Hematology/Oncology/BMT at Nationwide Children’s Hospital. His primary clinical focus is on pediatric solid tumors, including neuroblastomas, tumors of the kidneys, and rare solid tumors of childhood. His research focuses on the molecular drivers of pediatric cancers and how new treatment approaches can be taken to...

National Pediatric Cancer Foundation Website nationalpcf.org   Personal emails to contact us: kgoddard@nationalpcf.org tmcconathy@nationalpcf.org   Health Navigator Form to Contact Kelly https://nationalpcf.org/health-navigator/   Online toolkit - we would also be happy to mail you a copy if desired https://nationalpcf.org/wp-content/uploads/2022/09/Pediatric-Cancer-Toolkit-Your-Guide-National-Ped...

MilliesMiracle. Net • 𝗠𝗶𝗹𝗹𝗶𝗲 𝗙𝗶𝗻𝗱𝘀 𝗛𝗲𝗿 𝗠𝗶𝗿𝗮𝗰𝗹𝗲 – The children’s picture book  • 𝐄𝐦𝐛𝐫𝐚𝐜𝐢𝐧𝐠 𝐀 𝐌𝐢𝐫𝐚𝐜𝐥𝐞: 𝟐𝟏 𝐃𝐚𝐲𝐬 𝐭𝐨 𝐀𝐥𝐢𝐠𝐧𝐢𝐧𝐠 𝐘𝐨𝐮𝐫 𝐅𝐚𝐢𝐭𝐡 𝐰𝐢𝐭𝐡 𝐭𝐡𝐞 𝐇𝐞𝐚𝐫𝐭 𝐨𝐟 𝐆𝐨𝐝  • 𝐄𝐦𝐛𝐫𝐚𝐜𝐢𝐧𝐠 𝐚 𝐌𝐢𝐫𝐚𝐜𝐥𝐞: 𝐂𝐨𝐦𝐩𝐚𝐧𝐢𝐨𝐧 𝐉𝐨𝐮𝐫𝐧𝐚𝐥 𝐍𝐨𝐭𝐞𝐛𝐨𝐨𝐤 𝐰𝐢𝐭𝐡 𝐒𝐜𝐫𝐢𝐩𝐭𝐮𝐫𝐞 𝐕𝐞𝐫𝐬𝐞𝐬 Support the show