ALS -To the moon and back

Send us Fan Mail This week, Portia and I sit down with Steve Fearnley to talk about EFT, or tapping. Now, if you're picturing someone gently thumping themselves on the forehead while chanting "I'm calm, I'm calm, I'm calm"—you're not alone. I went into this conversation with plenty of questions myself. But as Steve explains the science, the nervous system respons...

Send us Fan Mail This week’s episode is a big one. We’re joined by Heather Plude for a deep dive into mould, mycotoxins, chronic illness, stress, nervous system responses and the absolutely wild rabbit holes people end up travelling when they’re trying to work out why they’re sick.  Heather shares the extraordinary story of her son becoming critically ill as a child, the discovery of toxic mould i...

Send us Fan Mail This episode starts with us talking rubbish about bin chickens, bad politicians, Barbie dolls, drag queens and whether double-dipping chips should actually be illegal in Australia. Completely normal behaviour. Then, somewhere between laughing ourselves stupid and discussing “important Australian words” that apparently need to be voice banked forever, things get a bit deeper.  We t...

Send us Fan Mail This one kicks off like most of our chats do — a bit of banter, a few sideways comments about the state of the world, and then… we take a proper turn. I share some recent test results that honestly stopped me in my tracks, looking at mould exposure, toxins, and what might be going on behind the scenes with my health. It’s one of those moments where you start joining dots you didn’...

Send us Fan Mail This one starts exactly where you’d expect us to begin… microphones, crockery, and a bit of light chaos before we even get to ALS 😄 From there, we head straight into my trip to Uluru — which, honestly, turned into something far more meaningful than I expected. There’s airport moments (including a very honest rant about accessible toilets), unexpected kindness from strangers that...

Send us Fan Mail ALS to the Moon and Back — Episode 13 This episode kicks off the way all great conversations do… With smugness over a 10-minute morning routine and a deep philosophical question: 👉 Can you feel better after just 10 minutes? Answer: no. But you can feel superior. And honestly, that counts.  Then we get into it… Somehow (as always), we cover:  Teeth, mercury fillings, and why Lisa...

Send us Fan Mail New Episode: ALS to the Moon and Back – Episode 12 Ohhh my… this one’s a bit of a ride. Portia and I kick things off completely off track (as usual), wander through grief, a bit of politics, a few strong opinions, some questionable humour… and then eventually remember we’re meant to be talking about ALS 😅 We get properly stuck into what I’m calling the “why we can’t” attitude — e...

Send us Fan Mail This week Lisa and Portia joined by Katrina Small, and honestly, this episode has everything. Katrina shares her wild health journey — from trekking the Kokoda Track and picking up a gut parasite, to years later getting long COVID and feeling like someone had literally switched her brain off. Not “a bit foggy”. Not “a little tired”. More like: successful professional woman suddenl...

Send us Fan Mail In Episode 10, Lisa shares a hard but important breakthrough with her infusion treatment, after another draining run-in with hospital bureaucracy. There’s also a big win: a new walker that is already making everyday life easier, plus a chat about advocacy, clinical trial confusion, swimming, old Sydney memories, leeches, and the strange art of keeping your sense of humour when lif...

Send us Fan Mail Episode 9 starts with pirate patches and a nostalgic detour into Photios Brothers — Sydney’s legendary costume and fabric wonderland — before Lisa shares some genuinely good news: several key blood markers are finally moving back into normal range. From there it’s the usual Lisa and Portia mix of laughter, frustration with the medical system, and celebrating the small wins that ke...

Send us Fan Mail An eye sty, a half-built microphone, and Lisa recording from an actual zero-G “hospital bed” setup… and then we get into the big one: dead-end moments with ALS . Lisa shares what hit hardest after a visit from MND NSW , why the system can make you feel boxed in, and how perspective can mess with your head (especially when you’re convinced you’re declining and your physio’s like, “...

Send us Fan Mail ALS to the Moon and Back — Episode 7 This one is a classic wandering chat. We start with biblical rain, leaking dams, and a surprisingly detailed conversation about vetiver (yes… the grass 😅), before moving into what’s really been on my mind lately. We touch on the equipment block — that frustrating space where funding might exist on paper, but actually accessing the right consum...

Send us Fan Mail New episode of ALS to the Moon and Back 🎧 This one starts exactly how most of our chats do — with absolutely no plan — and then somehow lands in some pretty honest territory. Portia and I talk about easing back into movement, why water feels so good right now, the weird emotional hangover that can come with New Year, and what happens when you stop brushing things off and actually...

Send us Fan Mail In this episode of ALS to the Moon and Back , Lisa and Portia ease into the post-Christmas slowdown with warmth, humour, and the kind of conversation that only happens between people who truly care for each other. The discussion then turns to the “provider wall” Lisa encountered while trying to access Edaravone treatment close to home. Lisa shares what happened, why she was blocke...

Send us Fan Mail ALS to the Moon and Back — Podcast Intro Recording’s in progress… and before we get into anything remotely sensible, Portia Turbo is over here singing “We wish you a Merry Christmas” and casually wishing everyone a “happy new gonorrhea”, which feels… on brand. I’m Lisa Wright — I live out at Mount Murray Farm in the Southern Highlands, I’ve got dogs that refuse to let anyone have...

Send us Fan Mail In this episode of ALS to the Moon and Back, Portia and I finally get to the thing we were always going to get to… timelines. You know the ones. The point scores. The predictions. The question people ask — sometimes quietly, sometimes not — “How long have you got?” I talk about the timelines I’ve been given since being diagnosed with ALS, why I don’t see them as a fixed truth, and...

Send us Fan Mail Access Denied In this episode of ALS to the Moon and Back , Portia and I get stuck into something pretty raw and, honestly, a bit outrageous — what actually happened when I was prescribed Edaravone and then couldn’t get it, even though it was on the PBS and everyone was telling me how “great” it was going to be. We talk about the quiet side of ALS/MND that doesn’t get spoken about...

Send us Fan Mail To the Moon and Back is a new podcast hosted by Lisa Wright and iconic Sydney drag queen Portia Turbo — two longtime friends exploring life, love, art, perfume, dogs, grief, humour, and the unexpected twists that shape us. In Episode One, Lisa shares her recent diagnosis of ALS and the two talk openly (and often hilariously - we thinks so anyway) about how life changes when everyt...