Help 4 HD Live!

BJ Viau (view) has been a Huntington's Disease advocate for the past 20 years in multiple roles.  After his mom was diagnosed in the mid-90s his family hosted a  basketball fundraising event for 15 years that raised funds supporting the Huntington's Disease Society America.  His fundraising led him to meet many other young people impacted by HD which led to being a co-founder and 10-year board cha...

We talk with Lauren Yaeger about how COVID-19 is impacting the holidays

Dr. Julie Stout and Cory Wasser join us from Australia.

Katrina Hamel and Lauren talk about home health care

Let's Talk about SIGNAL with Christie and Chad.

For more info, visit http://campaignformybrain.co.uk You can purchase "Harry Needs a Hug" here: https://www.amazon.com/Harry-needs-hug-children-Huntingtons/dp/B08FNJK2BN  

Help 4 HD Symposium

Huntington's Disease Alters Human Development in the Fetal Stage

To see the Facebook Live and see the resources I posted: https://www.facebook.com/585948945/videos/10157636988738946 For an amazing resource dealing with assistance for durable medical equipment: https://www.payingforseniorcare.com/durable-medical-equipment/state-assistive-tech  

JHD Tips and Tricks with Michelle

Dr. Stephan is an industry veteran who is considered one of the fathers of the field of precision medicine, having trained with the leadership of the Human Genome Project at the NIH and then going on to lead discovery research at the Translational Genomics Research Institute and serve as professor and chairman of the Department of Human Genetics at the University of Pittsburgh. Stephan has identif...

Dr. Ratna and Lauren Holder talk about Dr. Ratna's research and inadequate care in the HD community in India "I am a doctor, pursuing clinical care and research in HD for the past 5 years. I met approximately 150 HD patients and about 50 families are in regular consultation with me. This sensitized me to the misery created by HD in various contexts such as social, economic and cultural besides the...

Please visit https://www.thetreygrayfoundation.org/about-trey for more information!

Anticipatory Grief with Lauren and Sharon

Anne-Elizabeth shares her HD story

HD CAREGIVERS, WE NEED YOUR HELP! To prepare for a clinical trial of a drug that may reduce the disruptive aggressive behavior that some persons or patients with HD suffer from, we would like to interview about 25 caregivers who are parents, spouses, or adult children of patients who have aggressive outbursts. We are specifically interested in trying to build a list of words that can be used to de...

Irina has worked in drug development for over 18 years, with a focus on translational medicine and early development in neuroscience, but also ophthalmology and immunology. She has gained experience with development of small molecules, biologics as well as nucleic acid therapeutics, in a number of global pharma and biotech organizations in the US and Europe. Before joining Triplet Therapeutics, In...

Nessan Bermingham is founder and CEO of Triplet Therapeutics, Inc. He is a serial biotech entrepreneur and investor who has founded several companies including Triplet, Korro Bio and Intellia Therapeutics, “one of the top 10 biotech start-ups in 2014” and a “Fierce 15 biotech company,” taking the company from concept to IPO and large partnering deals with approximately 200 employees. He has nearly...

Kirsten and COVID19

Matt Kapusta from UniQure joins us to provide an update.

Join us as we talk with Kay and her best friend Taylor who has HD

Huntington PARAGUAY

Anne-Elizabeth

Ashley Fajardo

It's not always HD