Help 4 HD Live!

Carlos Briceño has started a new podcast that focuses on the caregiver journey and having a healthy emotional outlet¨ through creativity. This includes original poems, music and more. You can learn more about the podcast and submit content at: https://sharingaboutcaringpodcast.wordpress.com/ You can also read Carlos' column about caregiving at: https://huntingtonsdiseasenews.com/category/a-family-...

Let's talk about Kinect-HD trial with Dr. Erin Furr-Stimming and Dr. Dan Claasen

Dr. Tamara Maiuri works as a Research Associate in Dr. Ray Truant’s lab at McMaster University in Hamilton, Canada, where her research is focused on the role of the huntingtin protein in DNA repair. Tam is also an active member of the HD community who regularly participates in fundraisers, education events, and knowledge translation through HDBuzz.net.

Tune in to hear about Nancy Sweets horrible situation with a rehab facility that was supposed to be caring for her son living with HD and tested positive for COVID.

HD Mythbusters - Passing on HD

Katie Jackson and Dr. Sam Frank talk about the stages of Huntington's Disease.

First episode of the "HD Mythbusters" series with Dr. Thomas Bird. We discuss "CAG" in HD.

Physical therapy in HD

Dr. David Reynolds and Dr. Caroline Benn of LoQus23 share what they are doing in regards to HD research. This show was done on Zoom. You can see the recording soon.

Marie Clay and Lauren Holder talk about the holidays with a pandemic going on.

To order Jimmy's book, please visit lulu.com

Please visit www.huntingtonstudygroup.org or www.clinicaltrials.gov for study locations

Telehealth

BJ Viau (view) has been a Huntington's Disease advocate for the past 20 years in multiple roles.  After his mom was diagnosed in the mid-90s his family hosted a  basketball fundraising event for 15 years that raised funds supporting the Huntington's Disease Society America.  His fundraising led him to meet many other young people impacted by HD which led to being a co-founder and 10-year board cha...

We talk with Lauren Yaeger about how COVID-19 is impacting the holidays

Dr. Julie Stout and Cory Wasser join us from Australia.

Katrina Hamel and Lauren talk about home health care

Let's Talk about SIGNAL with Christie and Chad.

For more info, visit http://campaignformybrain.co.uk You can purchase "Harry Needs a Hug" here: https://www.amazon.com/Harry-needs-hug-children-Huntingtons/dp/B08FNJK2BN  

Help 4 HD Symposium

Huntington's Disease Alters Human Development in the Fetal Stage

To see the Facebook Live and see the resources I posted: https://www.facebook.com/585948945/videos/10157636988738946 For an amazing resource dealing with assistance for durable medical equipment: https://www.payingforseniorcare.com/durable-medical-equipment/state-assistive-tech  

JHD Tips and Tricks with Michelle

Dr. Stephan is an industry veteran who is considered one of the fathers of the field of precision medicine, having trained with the leadership of the Human Genome Project at the NIH and then going on to lead discovery research at the Translational Genomics Research Institute and serve as professor and chairman of the Department of Human Genetics at the University of Pittsburgh. Stephan has identif...

Dr. Ratna and Lauren Holder talk about Dr. Ratna's research and inadequate care in the HD community in India "I am a doctor, pursuing clinical care and research in HD for the past 5 years. I met approximately 150 HD patients and about 50 families are in regular consultation with me. This sensitized me to the misery created by HD in various contexts such as social, economic and cultural besides the...