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theMSguide

theMSguide podcast

This is a podcast where an expert MS patient of 31y (and counting) with the disease talks all things Multiple Sclerosis from a patient perspective. Keeping other patients informed and up to date on the topics that affect them and their care. is the aim of the podcast. theMSguide.com is beholden to no one so we are happy to tackle the hard topics and apply the patient lens to them. theMSguide.com started life as a YouTube channel . Many people, including me, listen to more and more podcasts these days. Building on the success of the channel is what brings us together here. Hosted on Acast. See...

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Auteur

theMSguide

Catégorie

Health

Site du podcast

shows.acast.com

Dernier épisode

19 août 2024

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Épisodes

Testing the use of AI in MRI for MS 19.08.2024

The use of Artificial Intelligence to help in medicine is a massive topic in Multiple Sclerosis. Hear how AI is making the interpretation of MRI faster, more accurate, and more thorough. Time after Time. Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you. https://www.patreon.com/...

Another New AI Tool That Will Transform Your MS Care 26.05.2024

All the promised trial details are here: Boston, US Brigham and Women's Hospital Principal Investigator: Tanuja Chitnis, MD tchitnis@bwh.harvard.edu Ottawa, Canada The Ottawa Hospital Principal Investigator: Gauruv Bose, MD gabose@toh.ca London, UK The Royal London Hospital Principal Investigator: Sharmilee Gnanapavan, Dr. s.gnanapavan@qmul.ac.uk Inclusion criteria: Participants must have a diagno...

Sex in MS : the things you need to know from Dr Brown 05.05.2024

ex is a fundamental human desire and pleasure but MS can really spoil things for us. In this first of this two-part episode we discuss the top 3 issues identified in research then in the second episode Dr Brown discusses ways to manage and overcome these difficulties. Here are the promised resources we discussed. https://mstrust.org.uk/a-z/sexual-problems-women-ms https://mstrust.org.uk/a-z/sexual...

Sex in MS : the things you need to know from Dr Brown 28.04.2024

Sex is a fundamental human desire and pleasure but MS can really spoil things for us. In this first of this two-part episode we discuss the top 3 issues identified in research then in the second episode Dr Brown discusses ways to manage and overcome these difficulties. Here are the promised resources we discussed. https://mstrust.org.uk/a-z/sexual-problems-women-ms https://mstrust.org.uk/a-z/sexua...

Digital and Social changed the MS world. Meet the man behind it and hear his incredible story. 21.04.2024

If you haven't become part of the Shift MS community then go to www.shift.ms to explore an incredible array of resources. If you are in London then the best lamb chops are at Tayyabs in East London near the Royal London Hospital. www.tayyabs.co.uk Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon su...

Men get better MS treatment than women. 06.04.2024

Join us to learn more as Professor Vicky Leavitt of Columbia University joins me and Scottie to talk us through her latest paper. We discover that it raises more questions than it answers. Learn more about Vicky here: https://mr.research.columbia.edu/content/victoria-m-leavitt and delve into her vast amount of research here: https://scholar.google.com/citations?user=D8B_Oq8AAAAJ&hl=en If you'd...

Joe Bush is running the London Marathon and Raising £££ for MS Research 01.04.2024

Joe is an incredible young man who is taking his passion for running and using it to help support MS Research via the MS Society. I was put in touch with him as he is the son of the best friend of a pal of mine. Please help support his efforts by donating through his Just Giving page here: https://justgiving.com/page/joebush Follow Joe on Twitter/X here: @joebushy1 - https://twitter.com/joebushy1...

The Amazing MS Charity That Few People Have Heard Of MS-UK 21.03.2024

Please check out the incredible resources at https://ms-uk.org Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you. https://www.patreon.com/theMSguide theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my l...

How patients benefit when their Neurologist/Nurse attends medical conferences 08.03.2024

Have you ever wondered what your doctor does when they flit off to exotic (and not so exotic) locations for medical conferences? They are important and you can benefit tremendously from having a doctor who works hard to stay up to date with the latest ideas in the field. Ask your doctor what the last conference they attended was and what they learned that affected your treatment and why. Contrary...

Changing your Neurologist is easier than you may think - your referral rights in the NHS - how to go about it 24.02.2024

This podcast deals with changing your neurologist (in the UK) but also has a ton of good tips that are generally useful. Wendy is a senior manager in the NHS (we can't say where!) and really understands the system. Since recording this episode Wendy has been to see her new neurologist and has been bowled over by how good a good MS neurologist can be. We'll follow-up soon. An NHS leaflet detailing...

Coping with mobility loss caused by Multiple Sclerosis 17.02.2024

Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you. https://www.patreon.com/theMSguide theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you. After 31y of #MS I h...

Nerve Remyelination & Regeneration in Multiple Sclerosis 03.02.2024

Professor Stefano Plucino - a leader in this field who is a working MS Neurologist and researcher at the University of Cambridge in the UK helps us understand what is coming, when it will be here and how you can get involved with Clinical trial of these amazing new therapies. Always ask your doctor - press them on this - what6 trials are running and how you might get involved. As ever, much of the...

Let's Talk About Sex - in MS 23.01.2024

Please Subscribe to the channel, ring the bell to be notified of new content, and if you really enjoy it then please support me by becoming a Patreon supporter. Thank you. https://www.patreon.com/theMSguide theMSguide.com is nothing without your help. Please get in touch and let me know what you need to know. I'll reach out and do my level best to get the best answers for you. After 31y of #MS I h...

theMSguide talks with Professor Bart Van Wijmeersch an MS Neurologist who is a bit different 20.01.2024

Prof Bart van Wijmeersch practices in Belgium and he has a very enlightened view on how to treat patients. I just loved talking to him and hearing how he goes about everything. Ypou are v lucky to be one of his patients. We cover the use of Evoked Potentials to aid in predicting the course of our MS and how these form part of the diagnostic and managing process. Read what the MS Trust says about E...

Scientists crack mystery of how MS gene spread - Exclusive interview with the Lead Researcher 17.01.2024

Prof Fugger is the lead researcher on this incredibly important paper. It has been established how the 'MS Gene' came to be. Hear Lars talk in depth to theMSguide.com about his discovery and where the EBV we hear so much about fits. You#'ll be very surprised at some of the things you'll learn. Read more here: https://www.bbc.co.uk/news/health-67917294 Please Subscribe to the podcast and if you rea...

#TimeIsBrain - Brain health: time matters in multiple sclerosis. 04.01.2024

, Brain health: time matters in multiple sclerosis . Emily Stock joins us to talk about a global initiative tio ensure that MS has an appropriately rapid intervention protocol in the same way that styoke or cancer have. The sooner an MS diagnosis is acted on the more brain (function/quality of life) is saved. Hosted on Acast. See acast.com/privacy for more information.

Clinical Trial Failure in MS: What does the big BTK trial failure mean for patients? 10.12.2023

On this patient focused podcast I get together with one of the leading MS Neurologists in the US - Aaron Boster MD - to discuss the implications of the trial failure of evobrutinib. Aaron helps break down what it all means and more importantly, what does it mean for patients? Please help support the channel by subscibing and on Patreon. patreon.com/theMSguide Thank you for your help. I appreciate...

Cathy Chester : The Doyenne of MS 08.12.2023

In this episode Cathy (in the USA) and I (in the UK) combine our 60+y of living with Multiple Sclerosis to observe how far things have come, what the positive changes are and what still needs to be done. Please support theMSguide on Patreon at: patereon.com/theMSguide Thank You. Hosted on Acast. See acast.com/privacy for more information.

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