CSNK2A1 Foundation Podcast
The Roadmap to Rare
This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research. This is our rare disease roadmap. Every rare disease journey is different, but no family should have to navigate it alone. On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research breakthroughs, and everything in between. Together, these conversations shin...
N'hésitez pas à visiter le site du podcast et à soutenir son créateur : www.buzzsprout.com
Auteur
CSNK2A1 Foundation Podcast
Catégorie
Site du podcast
Dernier épisode
1 juil. 2026
Où écouter ?
Les podcasts dans l'appli Replaio Radio Bientôt disponibleLes podcasts arrivent très bientôt dans l'appli. Installe-la dès maintenant et découvre en avant-première une toute nouvelle façon de vivre les podcasts
Installe-la gratuitement
Android près de 10 M de téléchargements · note de 4,8
iOS bientôt
Épisodes
Episode 1: Meet Your Host, Eric 01.07.2026 18:59
In the debut episode of Roadmap to Rare , host Eric Finn introduces himself and the mission of the show. Roadmap to Rare aims to shed light on the reality of navigating the rare disease journey through real stories, real challenges, and research. Eric shares his personal story of how his family discovered that his son had Okur-Chung Neurodevelopmental Syndrome (OCNDS), an ultra-rare genetic condit...
Trailer: Roadmap to Rare 19.04.2026 0:55
This is the Roadmap to Rare. Hosted by OCNDS parent Eric Finn, this podcast explores the reality of the rare-disease journey—sharing hope through real stories, real challenges, and research. On Roadmap to Rare, Eric sits down with parents, advocates, clinicians, researchers, and leaders in the rare disease community to talk about what the path really looks like—from diagnosis to advocacy, research...
Podcasts similaires
Écoute le podcast The Roadmap to Rare sur Replaio
La radio et les podcasts dans une seule appli - gratuite, sans inscription. Installe-la dès aujourd'hui et ne rate pas le lancement
Replaio n'est pas éditeur de podcasts ; les noms des émissions, les visuels et l'audio appartiennent à leurs auteurs et sont diffusés via des flux RSS publics
