Something Wasn't Right: Missed Diagnoses & Rare Conditions

What do you do when someone you love is going through something life-changing, but you can't fix it for them? In this episode, I sit down with my sister to talk about what it was like to experience our family's medical journey from the out side. We talk about what it feels like to watch someone you love go through a crisis, how to know when and how to help, and the complicated emotions tha...

When a baby or child is in the NICU, PICU, CVICU, or facing another medical emergency, friends and family often ask the same question: What can I do to help? In this episode, I share some of the things that meant the most to our family during one of the hardest seasons of our lives, along with simple, practical ways you can support someone walking through a medical crisis. From sending a quick tex...

What If We Built a Better System? After everything our family went through to get answers for our son, I've spent a lot of time asking myself one question: What would I change if I could redesign the healthcare system? In this episode, I share six changes I believe could help improve patient care, reduce missed diagnoses, and create a system that is less dependent on individual human judgment...

How Does This Happen? When a serious diagnosis is missed, one of the first questions people ask is: How does this happen? In this episode, I explore some of the factors that may contribute to missed diagnoses—from human error and cognitive biases to the limitations of healthcare systems and processes. This is not about assigning blame to any one person. It's about understanding how well-intent...

One of the biggest lessons our family's journey has taught me is that hard is hard. We spend so much time comparing struggles—trying to decide whose situation is worse, whose pain is more justified, or who has it harder. But the truth is, every person is carrying something. And whatever they're carrying feels heavy to them. In this episode, I share why I've stopped ranking hardship and...

In this episode, I share the “God winks” — answered prayers, God’s timing, and moments that felt like God was there. This isn’t about having perfect faith. It’s about what it looks like to wrestle with fear, hold onto hope, and find meaning in the middle of something you never would have chosen. Because sometimes, even in the hardest seasons, there are moments that remind you you’re not alone. In...

Going home was supposed to feel like relief. But it didn’t. In this episode, I share what life actually looked like after leaving the hospital — managing medications, adjusting to life without monitors, and carrying the constant weight of responsibility for a medically complex baby. From the ups and downs of daily life to the unexpected fear ofcomplications — including a blood clot — this is the s...

Episode 3 is a little different. I was asked to be a guest speaker at the University of Minnesota’s Speech-Language Pathology and Audiology graduation. In this episode I share that speech as well as some more about our favorite provider: our outpatient speech pathologist. When so many concerns were minimized or dismissed, she listened and truly cared about us. She advocated for our son and us even...

One day we were searching for answers… the next, we were preparing for heart surgery. In this episode, I share what it was like to hand my baby over for open heart surgery and spend the next month in the hospital navigating life in the CVICU. From the moment after surgery — seeing him covered in tubes and monitors — to the emotional highs and lows of recovery, this is the part no one can really pr...

Everyone told me he was fine. But he wasn’t. In this first episode of Something Wasn’t Right , I share thebeginning of Kip’s story — the feeding struggles, the subtle symptoms, and the gut feeling I couldn’t ignore… even when multiple providers reassured me everything was normal. From poor weight gain and NG tube feeds to sweating, breathing changes, and tests that didn’t give answers, this is wha...

You know that feeling… when something isn’t right—but no one else sees it. This is the trailer for Something Wasn’t Right , a podcast about missed diagnoses, rare conditions, and the moment a parent realizes they have to fight for answers. I’m sharing my story—and the stories of other families who trusted their instincts, even when they were told not to. If you’ve ever felt dismissed, questioned y...