Sarcoma Sisters

SARC (Sarcoma Alliance for Research through Collaboration) is a non-profit organization dedicated to the development and support of research for the prevention, treatment, and cure of  sarcomas – a cancer of the bone and connective tissue of the body. Dr. Kopp and Dr. Allen-Rhoades join Dr. Scott Okuno, SARCs Chief Medical Officer, for a conversation about the history of the Sarcoma Sisters and ho...

Dr. George is a medical oncologist and Associate Professor at Harvard Medical School. She is the Clinical Director at the Center for Sarcoma and Bone Oncology at Dana-Farber Cancer Institute with over 20 years experience of treating patients throughout the world with sarcoma. She is actively involved in the clinical research and works to develop new clinical trials focusing on therapy for metastat...

Kate Ueland, MS ,RD, CSO is an Assistant Professor at Bayster University where she teaches and mentors students and she practices as a dietitian at Seattle Cancer Care Alliance in Seattle, WA. Kate also works at Fred Hutchinson Research Center in Seattle, WA as the nutrition advisor and editor for the Cook for Your Life website providing science-based guidelines, recipes, and tips to those who hav...

Dr. Dan Steventon is a Doctor of Physical Therapy and practices at The Sanford Children's Castle of Care Hospital in Sioux Falls, South Dakota. He specializes in pediatric cancer physical therapy. However, outside of the amazing care he gives his patients, he has a robust social media educational platform and is known as PT Dan The Kids Cancer PT ! We encourage you to check him out on twitter And...

Dr. R. Lor Randall is an Orthopedic Oncologic surgeon who is a world renowned expert in sarcoma orthopedic surgery. He is the David Linn Endowed Chair for Orthopaedic Surgery; Chair, Department of Orthopaedic Surgery and Professor, Department of Orthopaedic Surgery at the University of California, Davis in Sacramento. Dr. Randall's clinical practice and research focus on musculoskeletal surgical o...

Dr. Janeway is a pediatric oncologist and senior physician at Dana-Farber/Boston Children's Cancer and Blood Disorders Center. She is the Director of Clinical Genomics at Dana-Farber Cancer Institute and her research is focused on genomics, precision oncology and bone sarcomas. She leads clinical trials in osteosarcoma and Ewing sarcoma both as an independent investigator and as the Chair of the C...

Dr. Aaron Weiss is a board certified pediatric hematologist/oncologist practicing in Maine. He is an associate professor and the Division Director of Pediatric Hematology-Oncology at Tufts University School of Medicine and he holds the Sam L Cohen Medical Director Endowed Chair at Maine Children's Cancer Program. As part of Children's Oncology Group he is the Vice-Chair of the Soft Tissue Sarcoma...

Dr. Allen-Rhoades and Dr. Kopp discuss the results of the recently published Ewing Sarcoma clinical trial - Phase III Trial Adding Vincristine-Topotecan-Cyclophosphamide to the Initial Treatment of Patients With Nonmetastatic Ewing Sarcoma: A Children's Oncology Group Report. We mention in the episode that the full article is accessible, however, it is only if you purchase individually - bummer. H...

Dr. Ishwaria Subbiah is a palliative care physician and medical oncologist in the Division of Cancer Medicine at MD Anderson Cancer Center in Houston, TX. She is uniquely qualified for this role, having completed training at MD Anderson, not only in medical oncology but also in Phase 1 drug development and Palliative Medicine. With all this training she sees patients in the palliative care clinic...

Dr. Wilky  is the Director of Sarcoma Medical Oncology at the University of Colorado. She cares for patients over the age of 18 with every type of sarcoma and is an expert not only in traditional chemotherapy treatments for sarcomas, but also at using modern technology such as gene sequencing and molecular profiling to identify out-of-the-box treatments particularly in targeted therapy.  Dr. Wilky...

Dr. Allen-Rhoades and Dr. Kopp discuss the topic of second opinions for your sarcoma.  Discussing common questions and concerns of second opinions: Tips on deciding if you need/want one Types  Issues with too many Unnecessary concerns - you're not cheating on your oncologist why it is important to discuss with your oncologist Tips to getting the most out of it How the pandemic has made them more a...

We talk with Dr. Safia Ahmed a radiation oncologist who specializes in caring for adults and children with sarcoma - she works with our sister Wendy at the Mayo Clinic! Dr. Ahmed is a Senior Associate Consultant in the Department of Radiation Oncology at the Mayo Clinic in Rochester, Minnesota. And she is an Assistant Professor of Radiation Oncology - Mayo Clinic College of Medicine and Science. S...

Dr. Fitzhugh is an associate professor and interim chair of the Department of Pathology, Immunology and Laboratory Medicine at Rutgers New Jersey Medical School and the Department of Pathology and Laboratory Medicine at Rutgers Robert Wood Johnson Medical School. She is an expert in the pathology of sarcomas. Dr. Fitzhugh also has interests in the recruitment, retention, and promotion of Black and...

We talk with our sarcoma brother and world-renowned sarcoma genomics scientist and pediatric oncologist Dr. Brian Crompton. Dr. Crompton is an Assistant Professor at Harvard Medical School and an Attending Physician of Pediatric Hematology/Oncology at Dana-Farber/Boston Children's Cancer and Blood Disorders Center. He is the Principle Investigator of the Crompton Lab where he and his team are harn...

We talk with Dr. Andrea Hayes-Jordan a world renowned pediatric sarcoma surgeon and a professor of pediatric surgery and surgical oncology at the University of North Carolina Children's Hospital.   Dr. Hayes-Jordan is the Surgeon-in-Chief of the UNC Children's hospital and the division chief of pediatric surgery at UNC. If you want to know how a world class surgeon thinks this is the episode - tak...

We talk to the amazing Dr. Corrie Painter  Dr. Painter is the Associate Director of Operations and Scientific Outreach for the Broad Cancer Program and the Associate Director of Count Me In. Corrie shares with us her own Angiosarcoma story and how her diagnosis ultimately led her to her current position at the Broad Institute where she is leading the charge on the Count Me In patient driven projec...

Lisa is joined by Donna Bell in episode 5: Fertility 101. Donna Bell is a Nurse Practitioner at MD Anderson Cancer Center and an expert in onco-fertility. She cares for pediatric, adolescent and young adult patients in the pediatric leukemia/lymphoma division and she helped to start and leads the onco-fertility consultation service.   We dive deeper into the meaning of the fertility terminology us...

We are joined by Dr. Abha Gupta in episode 4: Sarcoma and Fertility. Dr. Gupta is a sarcoma and onco-fertility expert. We discuss female and male fertility and: Do you even want to be a parent? And if yes – is it important if your future baby is related to you? What's the rush – why fertility question needs to be asked when someone is first diagnosed with cancer and is there a rush? Balloons/marbl...

Hanneke and Jim share with us their families' sarcoma story beginning when their daughter was diagnosed with Osteosarcoma at 7 years old. This episode is relatable to all people and families with sarcoma, including advice for what to tell well intentioned people who give unsolicited advice: "Just stand in my puddle with me. That's all I need right now. It's raining everywhere. Don't try to give me...

In this short episode we continue the conversation with Hanneke and Jim. They share with us their experience in survivorship land with their daughter who completed therapy for Osteosarcoma 4 years ago. Music: Rospigg Artwork: Jonathan Borba

Our first episode letting you know our why for starting a podcast about sarcoma.