PH Insights

Guests: Steven H. Abman, MD, professor, Department of Pediatrics, director, Pediatric Heart Lung Center University of Colorado School of Medicine and Children's Hospital Colorado Greg Elliott, MD, MACP, professor of medicine, University of Utah, emeritus professor of medicine, Intermountain Health Karen A. Fagan, MD, chair, Department of Medicine, interim chair, department of family and commun...

Guest: Neal McDermott, pulmonary arterial hypertension and scleroderma patient On this episode of PH Insights, Neal McDermott, a patient navigating scleroderma and pulmonary arterial hypertension, shares his journey from diagnosis to managing multiple chronic illnesses. McDermott’s story offers hope and encouragement, emphasizing resilience and the potential for improved quality of life through tr...

Guests: Steven H. Abman, MD, professor, Department of Pediatrics, director, Pediatric Heart Lung Center University of Colorado School of Medicine and Children's Hospital Colorado Greg Elliott, MD, MACP, professor of medicine, University of Utah, emeritus professor of medicine, Intermountain Health Karen A. Fagan, MD, chair, Department of Medicine, interim chair, department of family and commun...

Guest: Michele Freeman, licensed professional counselor and PHA support group leader.   On the next episode of PH Insights, we continue our focus on mental health awareness with licensed professional counselor and support group leader Michele Freeman. Freeman discusses the mental health challenges faced by those living with pulmonary hypertension and their caregivers. She explores the differences...

Guest: Dan Lier, Amyloidosis patient and founder of Elevate Amyloidosis and co-author, The Rare Disease Playbook On this episode of PH Insights, host Jolie Lizana speaks with Dan Lier, a rare disease patient and advocate. Lier shares his inspiring journey navigating an amyloidosis diagnosis and discusses how changing his mindset and choosing positive thoughts aided in overcoming the challenges of...

Guest: Dawn Grandell, PAH and Sjögren’s patient, PHA peer mentor and support group leader Sjögren’s is an autoimmune disease that can lead to PH due to damage caused to the lung tissue. On this episode of PH Insights, peer mentor and support group leader Dawn Grandell shares her inspiring journey of living with pulmonary arterial hypertension and Sjögren's while discussing the importance of advoca...

Host: Jolie Lizana, PAH patient and advocate Guests: Matt Granato, LL.M., MBA, PHA's President and CEO; Kevin Heyen, PHA's Vice President, Development & Industry Relations; Jaeger Spratt, MSW, PHA’s advocacy and treatment access program manager; Eric Borstein, PAH patient and advocate; and Roopa Radhakrishnan, PH patient and advocate On this episode, the Pulmonary Hypertension Association take...

Host: Jolie Lizana, PAH patient and advocate, PHA’s Patient and Caregiver Education Committee member Guest: Mary Jo Farmer, MD, PhD; board certified pulmonary, critical care and sleep medicine physician, Mass General Brigham- Salem Hospital, associate professor of medicine at Tufts University School of Medicine Sleep-disordered breathing is far more common in pulmonary hypertension than most peopl...

Host: Meghan M. Cirulis, MD, MS, medical director, Intermountain Health Pulmonary Hypertension Center, assistant professor, pulmonary and critical care medicine, Intermountain Medical Center, adjunct assistant professor, University of Utah Pulmonary and Critical Care. Guest: Roberto Bernardo, MD, MS, ATSF, clinical assistant professor, Adult Pulmonary Hypertension Service, Vera Moulton Wall Center...

Host: Jenna Olitsky, PAH and HHT patient, PHA’s Patient and Caregiver Education Committee member Guest: Silvana Saleme Mooney, MSN, APRN, nurse practitioner with the Pulmonary Vascular Disease Program at the Medical University of South Carolina On this episode, host Jenna Olitsky, a PAH patient and estate planning attorney, and nurse practitioner Silvana Mooney discuss how advance health care dire...

Guest: Katharine Clapham, MD, assistant professor of cardiology and co-director of the Pulmonary Hypertension and Dyspnea Program, University of Utah  On this episode, host Megan Cirulis sits down with cardiologist Katherine (Katie) Clapham to discuss methamphetamine-associated pulmonary arterial hypertension. They explore the increasing prevalence of methamphetamine use, particularly in the weste...

Guests: Paul Critser, MD, PhD, pediatric cardiologist, Heart Institute Cincinnati Children's Hospital Medical Center; and Priya Pillutla, MD, associate chief, Division of Cardiology, director, Adult Congenital Heart Disease Clinic chair, Pharmacy and Therapeutics Committee Harbor-UCLA Medical Center On this special episode, cardiologists Paul Critser and Priya Pillutla, discuss congenital heart di...

Guest Host: Courtney Durham, PHA’s director of individual giving Guests: Judy and Ed Simpson, PHA co-founders On this episode of PH Insights, Courtney Durham, PHA’s director of individual giving, speaks with PHA co-founders, Judy and Ed Simpson. They discuss the challenges and milestones of establishing PHA, the importance of connecting patients with physicians, and the significant advancements in...

Host: Jolie Lizana, PAH patient and advocate Guests: Debbie Kittel, BSN, RN, CCRN, nursing program manager, PAH program, Richard M. Ross Heart Hospital; and Tiffani Brown, PH patient, Ohio State University-Columbus support group co-leader.   Just in time for the holidays, the Pulmonary Hypertension Association shares the extraordinary impact of a simple, thoughtful gift. Host Jolie Lizana talks wi...

Guest Host: Elizabeth Joseloff, PhD, vice president, Quality Care and Research, Pulmonary Hypertension Association Guests: Ripla Arora, PhD, developmental geneticist and associate professor, Michigan State University; and Katelyn Enzer, MD, assistant professor of pediatrics, University of Colorado   On this episode of PH Insights, we highlight the women innovators who are transforming how we under...

Hosts: Jenna Olitsky, PAH and HHT patient, PHA’s Patient and Caregiver Education Committee member; Jolie Lizana, PAH patient and advocate; Meghan M. Cirulis, MD, MS, medical director, Intermountain Health Pulmonary Hypertension Center, assistant professor, pulmonary and critical care medicine, Intermountain Medical Center, adjunct assistant professor, University of Utah Pulmonary and Critical Care...

Guests: Jenna Olitsky, PAH and HHT patient, PHA’s Patient and Caregiver Education Committee member Jolie Lizana, PAH patient and advocate Meghan M. Cirulis, MD, MS, medical director, Intermountain Health Pulmonary Hypertension Center, assistant professor, pulmonary and critical care medicine, Intermountain Medical Center, adjunct assistant professor, University of Utah Pulmonary and Critical Care....

Guest Hosts: Sarah Smith, PHA’s director of fundraising events, and Courtney Durham, PHA’s director of individual giving.   In this episode, PHA fundraising team members Sarah Smith and Courtney Durham discuss the role and impact of charitable giving. They highlight the value of broad-based donor support, how fundraising events like the O2breathe Walk series empower community members to make a sig...

Guest: Jaeger Spratt, MSW, PHA’s advocacy and treatment access program manager   In this episode, Jaeger Spratt shares what you need to know to prepare for the 2026 open enrollment period. They explain how cuts to Medicaid and other social safety net programs in the recently passed budget bill will affect the PH community and what to expect from 2026 Health Insurance Marketplace plans. Listen now...

Guests: Traci Stewart, RN, MSN, CHFN, PHA Board of Trustees chair and PH nurse coordinator at the Heart and Vascular Center of University of Iowa; Guest stories from: Doug Taylor, PHA Board of Trustees member, support group leader and PH patient; Kimberlee Miller, PH patient; Amy Burant, PH patient; Casey Perez, PH patient; Priya Bavalia, PH community supporter; Shirley Duggan, family member of pe...

Guests: James H. Tarver III, MD, cardiologist at AdventHealth Medical Group – Central Florida Division; and Nicole Creech, PHA Board of Trustees member, SCD and PH patient, and support group leader   On this episode of PH Insights , guests Nicole Creech and James Tarver explore the connection between sickle cell disease and pulmonary hypertension. They discuss the complexities of diagnosis, the ch...

Guests: Patti Tripathi, ATS Breathe Easy host; Susan Jacobs, RN, MS, research nurse manager at Stanford University; and Jaeger Spratt, MSW, advocacy and treatment access program manager The Supplemental Oxygen Access Reform Act is pending legislation that would establish requirements for the payment and provision of supplemental oxygen and related services under Medicare. But how would this legisl...

Guest: Keisha Jackson, PH patient and support group member In this episode, we celebrate PH Insights’ one-year anniversary with Keisha Jackson, who shares her inspiring journey of resilience while living with pulmonary hypertension, scleroderma and lupus. She reflects on the daily challenges of managing her health, raising a family and coping with the often-unseen toll these conditions take on her...

Guests: Jaeger Spratt, advocacy and treatment access program manager; Amy Burant, pulmonary arterial hypertension patient of 12 years; and Colleen Connor, PH patient of 18 years. This episode of PH Insights is the second in a two-part series about the Supplemental Oxygen Access Reform Act, created in collaboration with the American Thoracic Society’s Breathe Easy podcast. Visit “ How the SOAR Act...

Guests: Elise Whalen, DNP, MSN, APRN, FNP-C, CPN, nurse practitioner at Texas Children’s Hospital, assistant professor at Baylor College of Medicine and PHA PACE committee member; Jess MacLean, MSN, FNP-BC, Children's Hospital Colorado, Heart Institute - Pulmonary Hypertension   Emergencies don’t wait. For people living with pulmonary hypertension, preparedness isn’t just peace of mind — it is ess...