Iconically Ill

We talk Conradi-Hünermann Syndrome with Cassidy Huff. Cassidy is a disability rights activist, content creator, and performer dedicated to amplifying disabled voices and challenging ableism. As a hard-of-hearing creator with a background in the performing arts, she uses her platform to educate, advocate, and share authentic experiences of disability. Cassidy has built a community of over 400,000 f...

We talk Friedreich's Ataxia with Jennifer Gasner. Jennifer is a member of the International Memoir Writers Association, where she was member of the month in September 2023. Her writing has been published in Shaking the Tree, volumes 3 and 4, and in Six Feet Apart...In the Time of Corona. Her debut memoir, My Unexpected Life: Finding Balance Beyond My Diagnosis, was published on September 7, 2023,...

We talk Congenital Muscular Dystrophy with Kelly Berger and Avery Roberts Kelly and Avery are dynamic, empowered, rare disease warriors and disability champions who share their stories, spark conversations, and build a world that listens and activates real change. Their spirited advocacy is bold, personal, and impossible to ignore. They both live with the ultra-rare form of congenital muscular dys...

We talk Mast Cell Activation Syndrome and screenwriting with Caitlin Rose Arcand. Caitlin is an award-winning screenwriter, producer and script exec. Her directorial debut feature, "Burn Baby Burn" (the chaotic gay mob movie), is currently in development after winning Best Feature Screenplay at Hollywood International Diversity, Best Feature Dialogue at Flight Deck Film Festival and Outstanding Ac...

We Talk Rheumatoid Arthritis with Jennifer Chassman Browne.  Jennifer has been an educator for over 25 years, and has experience working with students ranging from 3rd grade through the university level. Most of her work has been as an English, Creative Writing , and Social Studies teacher and a school leader. The majority of her leadership experience has been at the secondary level as an Assistan...

We talk endometriosis and writing with Samara Breger. Samara is a writer and performer from Sleepy Hollow, New York. Her vampire Gothic, A LONG TIME DEAD, was named "the best Sapphic vampire book since...Carmilla" by the New York Times, as well as one of the best romances of 2023. She regularly performs musical improv in New York as well as around the country at comedy festivals. She lives in a li...

We talk Congenital Central Hypoventilation Syndrome (CCHS) with Jay Trivedi. Jay is a 34 year old individual diagnosed at birth with an invisible disability known as Congenital Central Hypoventilation Syndrome (CCHS). This disability is very rare and it involves a genetic mutation impacting the respiratory system. There are approximately 2000 cases of diagnosis worldwide. Patients diagnosed requir...

We talk bone tumor with Rachel Kenaston. Rachel is an actor, comedian, artist and filmmaker. She earned a BFA in Theatre from Marshall University and studied at Upright Citizens Brigade, the Squirrel and Magnet Theater. She can be found performing and photographing improv, sketch & standup comedy around NYC or working at House of Yes as Artist Liaison. Rachel is a founding member of Maxipad Produc...

We talk OCD and live performing with Steve Whyte. Steve Whyte thought he had it all figured out until he left the womb. He was Elf #2 in the Old Greenwich Elementary School production of Twas The Night Before Christmas. Later, lured by the prospect of big money, Steve joined the improv world, and can be seen performing with The Armando Diaz Experience on Saturdays at 7:30 at the Magnet Theater in...

We talk Functional Neurological Disorder with Nieta Greene. Nieta Greene, a dedicated advocate for inclusivity and a sense of belonging, serves as the Chief Executive Officer and Founder of Disability Community for Democracy, Inc. She also serves as a member of the Cambridge Commission for Persons with Disabilities. She has experienced various disabilities since childhood that influence her daily...

We talk Cerebral palsy and journalism with Erin Tatum. Erin is a Journalist, Copywriter, Project Manager and Entertainment Liaison.  As a multidisciplinary journalist, she gravitates towards stories that illuminate an artist's perspective and highlight the unsung protagonists of the world around us. She is particularly invested in elevating subjects from marginalized communities and amplifying imp...

We Talk ME/CFS and live performing with Dan Fishback. Dan Fishback is a playwright and musician in NYC, with a two-decade body of work exploring the shadows of Jewish and queer life in the United States. His musical about Jewish socialists, The Material World, was called "the best downtown musical in years" by Time Out New York in 2012. From 2013 through 2020, Fishback ran The Helix Queer Performa...

We talk eczema with Farshad Khansari. Farshad Khansari is a fully vaccinated comedian, sketch performer and clown, based in New York by way of New Jersey. So really, he's based in New Jersey. He thought he wanted to be a doctor due to immigrant parental expectations, but was so disappointed with how our healthcare is run in America that he decided to become a clown instead. You can find Farshad pe...

We talk Dwarfism with Jillian Curwin. Jillian is a writer, content creator, and advocate for dwarfism and disability awareness based in New York City. She has written for Culxtured and has collaborated with Betches Media and FEMINIST to discuss disability representation in fashion, sports, and entertainment along with highlighting current events in the disability space. In addition she has consult...

We talk Hyperthyroidism with Molly LaFlesh.  Molly is a writer, performer, and producer based in New York. You can find her work on the Internet and on stages across New York, most recently as part of Boogiemanja Sketch Collective, where she is a board member, as well as Gold Comedy and many other projects.  Follow Molly at @mollylaflesh on Instagram and @peeppeepwhatsthatcheep on eBird Show trans...

We talk Stevens-Johnson Syndrome with Shaz. Shaz is a Steven Johnson's survivor. She is 32 from South Africa born and raised. Shaz is a beauty teacher and wellness coach as she can no longer work as a beautician after having blurred vision from SJS . Follow Shaz at @Shaz_the_beautician on Tiktok, Instagram, and Youtube Show transcript bit.ly/3UKUymI  

We talk right arm upper amputee with Melanie Waldman. As an advocate for disability rights and overall inclusion, Melanie's history & career include presenting her connection(s)—as a woman with both physical and non-apparent disabilities—to a wide range of audiences.  She's a 3-time Easterseals Disability Film Challenge Winner, an adaptive yoga teacher, professional speaker, and works as on-air ta...

We talk rare undiagnosed muscle disease with Danielle Connolly. Danielle Connolly is a disability advocate, content creator, speaker, and business and marketing professional. Born with a rare, still-undiagnosed muscle disease, Danielle has navigated unique life experiences that have shaped her passions and purpose. She shares her perspective through "Daniellevates," a platform dedicated to elevati...

We talk Covid and Ventilators with Ashley Estes. Ashley Estes is a COVID-19 survivor who was hospitalized early in the pandemic, an experience that permanently reshaped her understanding of fear, recovery, and resilience. During her illness and the long recovery that followed, she also experienced domestic violence, a reality that compounded the physical and emotional toll of being sick and isolat...

We Talk Cerebral Palsy and Drag Queens with Ron Hill. Ron is an editor/producer based in Los Angeles. Born with Cerebral Palsy and raised in a small New Hampshire town, his path to working with drag queens on the West Coast has been an unexpected but appreciated experience. Due to the fact that his disability goes largely unnoticed by his peers, he has only recently become comfortable identifying...

We're back January 6, 2026! See you there. 

We talk LGMD 2i and podcasting with Cerys Davage.   Cerys is a 24 year old podcaster and content creator from Cardiff, Wales. Through her podcast, 'Unbalanced', she has created a community of young disabled adults, showing them that they're not alone and that life can still be great regardless of any life barriers. She has Limb Girdle Muscular Dystrophy 2i, and discusses the reality of life with t...

We talk Lyme Disease with Ilana. Ilana has been healing from Lyme Disease and its co-infections since 2016. Undiagnosed for nearly two years after the onset of symptoms, she explored nearly every medical, psychiatric, holistic, and even spiritual intervention available. Along the way, she became deeply engaged in the Lyme patient and provider community, founding a Facebook support group in 2022 th...

Keisha is the Founder & CEO of Girls Chronically Rock, which is adaptive and non-adaptive clothing options with inspiring phrases on them. She is a Board Member at Disability Law Center and Chairperson of Cambridge Comission for Persons with Disabilities. She's also a public speaker and disability advocate.   Follow Keisha at @ownerofgirlschronicallyrock on Instagram. Show transcript: https://driv...

We talk ME/CFS with Dani Hanks. Dani is a disabled writer/director based in New York City. As a kid, Dani grew up elbow-deep in human organs at their mom's pathology lab in Porterville, California. A direct result of inhaling too much formaldehyde in their formative years, they dove headfirst into the entertainment industry. After receiving their BFA in Drama at NYU Tisch, they directed the Banff-...