Help 4 HD Live!

Tonight Dr. Goodman is back with us… we will be talking with her about the role we take as caregivers… the hazards and the rewards. Read her newest article “Caregiving: A Risky Profession?” posted on May 4th on www.hddrugworks.org. Direct Link to The Article: http://hddrugworks.org/index.php?option=com_content&task=view&id=335&Itemid=30 In this article she talks about “Caregiving for a...

TUESDAY, MARCH 29, 2014 3:30 PM PST Our incredible special guests today are: Joan F. Schanck, MPA William Hinman, CFRE, MBA Kelly Milukas, RMF Commissioned Artist  Katie Jackson, VP, Help 4 HD International SUBJECT Tonight we have four amazing and incredible guests here to talk about Regenerative Medicine Foundations upcoming Conference and Gallery Opening event which will be held at the Claremont...

PRE-RECORDED TUESDAY, July 9, 2013 Tonight our incredible special guest is Emily Fisher, MSc Medical Genetics, Centre for Molecular Medicine and Therapeutics at the University of British Columbia. In 2012, Emily Fisher completed her Master's degree in science specializing in Medical Genetics at the University of British Columbia. Emily's thesis project focused on the epidemiology of HD. This is ve...

Chris Furbee and Matt Austin are here with us to talk about their recently finished independent films about their lives and perspectives living with Huntington's disease. Robert Rippberger produced and finished Matt Austin's film "Breaking the Cycle" and is now promoting both films as a double feature. Chris Furbee's film is titled "Huntington's Dance".

Tonight our incredible special guest is Margaret D’Aiuto Martarano de Gallardo. Born in California she becomes a nurse, meets and marries her husband Dr. Luis Gallardo Ayala, and moves to Mexico. She has seven children and at the age of 61, her husband is given the news that he might have HD and he passes in 1992. We are priviledged to interview this amazing woman of 90 years young about her trial...

Tuesday, April 1, 2014 - It's time for the Ask Dr. Goodman Show! Tonight we will be discussing these articles with Dr. Goodman: What is Cysteine? And what does it have to do with Huntington's Disease? Posted March 27, 2014 by LaVonne Goodman, M.D. Raptor's Clinical Trial for Cysteamine in Huntington's: Cause for Optimism? Posted March 1, 2014 by LaVonne Goodman, M.D. Call into the show, ask Dr. Go...

Wednesday, March 25, 2014 Tonight's incredible special guest is Dr. Albert Yu from Omeros here to talk about their Phase II clinical trial with OMS824 a PDE10 inhibitor for Huntington's disease. Phase II is for tolerability, safety and pharmacokinetics. Omeros is looking for 120 patients with Huntington's disease who will be randomized to receive placebo or one of three doses of OMS824 for the tre...

Tuesday, March 11, 2014 Our incredible special guest today is Dr. Ellen Feigal from CIRM. Tune in for an update from California Institute for Regenerative Medicine.

Pre-recorded We are talking about body discomfort in Huntington's disease. Like my sweet Jimbo, many of our HD and JHD individuals suffer from body pain. We must study this in order to find treatments and therapies. Listen to Dr. Goodman speak about new studies concerning this horrific conditon in HD.

Pre-recorded Dr. Deverman from Cal Tech is offering our listeners a series of educational shows outlining gene therapy and what science is happening right now for Huntington's disease. Tune in for Part 1 of Gene Therapy 101...  

MONDAY, February 17, 2014 Dr. Mary Edmondson is back! We love her wisdom and care of our Huntington's families in North Carolina. She is working on a model Family Education Program and we will get to hear all about that today. Tune in for some amazing information from our incredible special guest. Find Dr. Edmondson at: http://hdreach.org/  

TUESDAY, February 11, 2014 Special incredible guests tonight are Dr. Vicki Wheelock and Teresa Tempkin RNC, MSN, ANP from UC Davis HD Clinic. Tonight's topic is PRE-CELL, an observational study and precurser to HD-CELL. For more information about PRE-CELL visit clinicaltrials.gov http://clinicaltrials.gov/ct2/show/NCT01937923?term=Pre-Cell&rank=1  

It's time for Ask Dr. Goodman! Get your questions ready... Tonight we will be talking about antipsychotic medications for individuals suffering from symptoms of Huntington's disease. Read her latest article: http://hddrugworks.org/index.php?option=com_content&task=view&id=332&Itemid=30

Today’s incredible special guests are Ron Bartek, Co-Founder and President and Jen Farmer Executive Director, coordinator, of FARA /, The Friedreich's Ataxia Research Alliance a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceut...

WEDNESDAY, January 29, 2014 - 1:30 pm PST/4:30 pm EST Gene Veritas aka Ken Serbin will be here to talk about the World Stem Cell Summit from December 2013.

SATURDAY, January 25, 2014 - 9:00 am PST/11:00 am Mexico City time Brenda Vega from Fundacion Huntington Mexico will be our incredible special guest. Co-Host Daniel Medina will be speaking to our Espanol compadres and translating en Ingles. Stay tuned...

TUESDAY, January 21, 2014 - 3:30 pm PST/6:30 pm EST Join us for a 3-part series on gene therapy for Huntington's disease. Our incredible special presenter is Benjamin E. Deverman, Ph. D. from California Institute of Technology who is going to give us some very interesting insight and education about what exactly is gene therapy. What are the goals of this therapy and what genes can be used for gen...

THURSDAY - January 16, 2014 - 3:30 pm PST/6:30 pm EST It's time for an update from the CREST-E clinical trial with Bonnie Hennig. THE MISSION: To provide patients and families with information about CREST-E. The discussion today will be focused on providing a brief overview of the study allowing for an informal discussion about study participation and providing information about how individuals wi...

TUESDAY January 14, 2014  -  3:30 pm PST/6:30 pm EST Jimmy Pollard is back with us to share with us his travels and lectures around the country speaking to our amzaing Huntington's families. He has been lecturing in California, South Dakota, and has plans of meeting our H'Dears in Fargo, ND and many other places. Tune in for a Jimmy Pollard update and lots of fun!

SATURDAY/SABADO, 11 DE ENERO 2014 Help 4 HD International está feliz y orgulloso de estrenar su primer programa de radio en vivo en Español / Inglés que sera transmitido este Sábado, 11 de Enero 2014 a las 9:00 am Tiempo Del Pacifico/11:00 am Tiempo de la Ciudad de México Why is this new program extremely important? Help 4 HD International believes this bilingual program will reach a population of...

January 7, 2014 - We welcome you to another amazing year of the Ask Dr. Goodman Show. Practical and compassionate advice from an incredible physician treating our loved ones suffering with Huntington's disease in Washington and now reaching patients, families and caregivers, through Help 4 HD Radio, on a global scale. You may find Dr. Goodman at www.hddrugworks.org and as one of Help 4 HD Internat...

This month of December 2013 we are celebrating our HD advocates and this Saturday is no exception. Dr. Scott Guess and his better half, Misdee L. Kornder-Guess, RN are my favorite pharmacists in the world and today you are going to find out why. They founded Pain Management Pharmacy, Inc. in Santa Maria and En Soleil Pharmacy, Inc in Atascadero California. We are going to be talking about what is...

Welcome to this December 17 show. Help 4 HD Radio has designated the month of December for celebrating our amazing HD advocates. Tonight we are happy to introduce Papa Mike, Raima and The Wilderness Kids as our incredible special guests. Best known as the Wilderness Kids Firewood and Maple Syrup of Saco Maine, the Wilderness Kids are Mike and Raima's grandchildren, Brandon Irving, age 13, and his...

Help4HD - The HD View - Celebrating the Advocates: Matt Ward! Join us as we continue to celebrate our amazing international advocates for Huntington's disease.  We are excited to have the amazing "HD Warrior" Matt Ward from Nottingham, United Kingdom joins us tonight!  Matt Ward has decided to share his experiences living with HD via a video diary on YouTube.  His bravery and willingness to share...

Tuesday, December 3, 2013 I am so excited about the month of December shows. This is the time of year for giving. We give to our family; to our friends and to others without expecting much in return. Tonight we are going to talk about the spirit of giving with a woman who puts this to practice all year-round. We begin with a story about an extraordinary woman and a remarkable homeless man. Elizabe...