Help 4 HD Live!

Hello everyone and Happy Holidays to all. Tonight we are re-running Celebrating The Advocates. These four amazine women who are JHD/HD advocates and caregivers deserve gold medals in my book. We wish to honor them and encourage them in this lifes journey. We all need to help and support eachother, especially at this time of year. Enjoy the show! Super incredible JHD/HD advocates tonigh: Roberta Br...

Tuesday, December 16, we are celebrating all of our amazing JHD/HD advocates who give of their time and energy so willingly and freely to make a difference for their loved ones and for our community members who are suffering from Juvenile Huntington's disease and Huntington's disease. Tonight we will be speaking with four incredible special guests: Stacey Sargent, Roberta Brink, Sharon Thomason, a...

Tuesday, December 9, 2014 3:30 pm PST/6:30 pm EST With suprise guest HD researcher Dr. Leslie Thompson from the University of California at Irvine and Super HD Advocate Warrior, Frances Saldana, will be here to give us an update on HD research at UCI and the 10th annual WSCS (World Stem Cell Summit) that just happened in San Antonio, TX, December 3-5, 2014. Every year GPI (Genetics Policy Institut...

Tuesday, December 2, 2014 - 3:30 pm PST/6:30 pm EST Tonight we will be discussing Dr. Goodman's latest article "2014: A Yin-Yang year for HD". She writes: "Particularly during this past year, living with Huntington's disease (HD) has been full of its ups and downs. First there was the hope in ongoing clinical trials of both coenzyme-Q-10 and creatine. Then there was sadness and fear that came with...

This show was pre-recorded. We wish to play this show today as Help 4 HD Director of International Affairs, Daniel Medina is in Mexico City right now visiting Margaret and her center.  Margaret D’Aiuto Martarano de Gallardo was born in California she become a nurse, meet and married her husband Dr. Luis Gallardo Ayala, and moved to Mexico. She has seven children and at the age of 61, her husband i...

Tuesday, November 18, 2014 – 3:30 pm PST/6:30 pm EST Our incredible special guest is Dr. Andrew McGarry from Cooper University NJ, who is Co-PI for the PRIDE-HD study in the USA, which is sponsored by Teva Branded Pharmaceutical Products R&D and coordinated by HSG (Huntington Study Group). We will be talking about the ongoing global research study, which is a Phase II clinical research study o...

Help 4 HD News Channel has been in contact with Louise Vetter CEO and has offered HDSA a forum to give our community an update on its progress on programs, research initiatives, Centers of Excellence, Diplomat Program and more.   We will be discussing the following information: I.             HDSA Overall Implementation of Strategic Plan guides everything we do with clear goals and practices to su...

TUESDAY, NOVEMBER 4, 2014 Dr. Goodman writes, “Bummed" was what this author felt after the recent announcement of (HD).  We can put some positive spins on recent trial failures; we have learned how to run large clinical trials, we can learn from negative outcomes, and best of all hundreds of HD individuals are freed up to participate in other (potentially better) trials.  But the reality is that t...

PRE-RECORDED - TUESDAY, JUNE 17, 2014 Our incredible special guest is Claudia Testa, MD, PhD, Associate Professor of Neurology, and Associate Director of Clinical Research and medical director of the new VCU Parkinson's and Movement Disorders Center. The Center aims to integrate research, clinical care, and education and outreach missions in an interdisciplinary collaborative approach to making a...

PRE-RECORDED TUESDAY, MARCH 29, 2014 3:30 PM PST Our incredible special guests today are: Joan F. Schanck, MPA William Hinman, CFRE, MBA Kelly Milukas, RMF Commissioned Artist  Katie Jackson, VP, Help 4 HD International SUBJECT Tonight we have four amazing and incredible guests here to talk about Regenerative Medicine Foundations upcoming Conference and Gallery Opening event which will be held at...

  TUESDAY, OCTOBER 14, 2014 We are very pleased to have Dr.’s Daniel Van Kammen and Speid with us tonight. Lorna Speid, PhD, is a pharmacist. She works in the pharmaceutical industry as a regulatory affairs and drug development consultant. She will be interviewing Dr. Daniel Van Kammen, a researcher in the area of Huntingdon’s Disease research. We heard from Lorna a few weeks ago when she discusse...

  Tonight our topic for discussion is “Gastrointestinal Problems in Huntington's disease” Also read Dr. Goodman’s article http://hddrugworks.org/index.php?option=com_content&task=view&id=341&Itemid=30 Dr. Goodman writes, “Human study shows that inflammation in the esophagus (swallowing tube) and stomach is common and occurs more frequently in Huntington's disease (HD) as it progresses....

Tonight our incredible special guest is none other than the famous and super powerful Kristen Powers, creator of “Twitch” the documentary about her journey with Huntington’s disease, the possibility that she has inherited the same fate as her mother and the struggle about whether or not to test. Kristen is junior at Stanford University, created her first documentary, Twitch, following her genetic...

Tonight we welcome back to the show, Dr. Lorna Speid who works in the pharmaceutical industry as a regulatory affairs and drug development consultant. We will be talking about the role of the PI (Principal Investigator) in clinical trials. After working in the pharmaceutical industry for many years, Dr. Speid saw a need to provide information to patients about clinical trials that would allow them...

Pre-Recorded I am extremely honored and excited to introduce our incredible special guest/s tonight Dr. Vicki Wheelock/and Teresa Tempkin RNC, MSN, ANP… Dr. Vicki Wheelock, UC Davis Department of Neurology: Clinical Professor, Director Neurology Residency Program, Director Huntington’s Disease Clinic, Site Investigator, Huntington Study Group and Co-director, Northern California Kaiser Pallidotomy...

PRE RECORDED ON 3-5-12 Ask Dr. Goodman is back... tonight we ar going to talk about why a healthy life style is important in HD.  A big part of the answer include factors that promote the process of neuroplasticity. The "plasticity" part of neuroplasticity refers to capacity to change, similar to how plastic is malleable and can be made into many shapes.  Similarly, neuroplasticity describes the a...

Today, our incredible special guest is Carla Muller, Eldercare Advisor at A Place For Mom, connecting families to senior care and dementia care. A Place For Mom is the Nation's largest senior care information service. Learn about assisted living facilities, nursing homes, residential care homes and facilities that care for folks who suffer with dementia. With resources about home care, Alzheimer's...

TUESDAY, AUG 19, 3:30 PM PST/6:30 PM EST - Call in: 310-982-4227 or toll free: 877-497-4103 Tonight our incredible special guest is the intelligent and beautiful Mona Gable, a freelance writer in Los Angeles and the author of “Blood Brother: The Gene That Rocked My Family.” The book is available on SheBooks.net. It’s a short read, but it’s very power packed with accounts of her personal journey wi...

TUESDAY, AUG 5, 2014 - 3:30 PM PST/6:30 PM EST Swallowing difficulty and Huntington's disease Posted August 3, 2014, by LaVonne Goodman, M.D. Dysphagia, or difficulty swallowing, is a big problem in Huntington's disease (HD), but surprisingly little is known about it.  It is not known how early it begins, or how symptoms and swallowing dysfunction progress over the stages of HD.  Further, even les...

We are very pleased to have Dr. Speid with us tonight. Lorna Speid, PhD, is a pharmacist. She works in the pharmaceutical industry as a regulatory affairs and drug development consultant. She has a practice in the development of new treatments for rare diseases. After working for Sanofi Winthrop in the United Kingdom, Ciba Geigy at headquarters in Switzerland, and Novartis in Switzerland, she move...

Tonight we will talk about preimplantation genetic diagnosis or (PGD) for Huntington’s disease with Dr. Goodman. Read her article on www. HDDrugworks.org titled: PGD for the Prevention of HD. http://hddrugworks.org/index.php?option=com_content&task=view&id=336&Itemid=30         She writes… “For more than a decade, couples at risk for Huntington's disease have had the option to conceive...

TUESDAY, JUNE 17, 2014 Our incredible special guest is Claudia Testa, MD, PhD, Associate Professor of Neurology, and Associate Director of Clinical Research and medical director of the new VCU Parkinson's and Movement Disorders Center. The Center aims to integrate research, clinical care, and education and outreach missions in an interdisciplinary collaborative approach to making a difference in m...

Happy Tuesday everyone! Tonight we are going to get an update on the HSG Clinical Trial for Huntington's disease called First-HD and ARC-HD. Our incredible special guests are: Samuel Frank, MD – First-HD and ARC-HD PI Claudia Testa, MD, PhD – First-HD and ARC-HD co-PI David Stamler, MD – CMO Auspex Pharmaceuticals Sarah Janicki, MD, MPH – Site Investigator, Columbia for First-HD We will be discuss...

PreRecorded 2-11-2014 Our incredible special guest: Dr. Vicki Wheelock, UC Davis Department of Neurology: Clinical Professor, Director Neurology Residency Program, Director Huntington’s Disease Clinic, Site Investigator, Huntington Study Group and Co-director, Northern California Kaiser Pallidotomy Program. Vicki Wheelock is a neurologist with special interests in pallidotomy (neurosurgical proced...

Tonight our incredible special guest is: Suzanne Pontow, PhD, is a cell biologist focusing her research on neonatal stem cells at the Institute for Regenerative Cures within the UC Davis Health System in Sacramento.  Dr. Pontow received her BS in General Sciences from University of Iowa in 1985, and her PhD in Cell and Molecular Biology from Washington University School of Medicine in 1995. After...