5p- Society
5p- Society: BREATHE
The Breathe Series is an upcoming podcast from the 5p- Society, created to offer heartfelt support, shared experiences, and practical guidance for families impacted by 5p- Syndrome (Cri du Chat Syndrome). Originally founded by Janie Guy, a dedicated board member and parent of a child with 5p- Syndrome, the series began as a safe space for connection and encouragement. Now evolving into a podcast format, the Breathe Series will bring inspiring stories, expert insights, and honest conversations directly to your ears—helping listeners feel seen, supported, and empowered on their unique journey. W...
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You know them best. What if others could, too? How a new caregiver app (Mindris) helps share the little things that matter and find guidance when needed. 19.10.2026 43:58
A quick update: since this podcast was recorded, Neurovero has been renamed to Mindris! While you'll hear us use the original name during the conversation, the app we're discussing is now called Mindris. www.mindris.app
Episode 6: The one with the Presidents 15.05.2026 1:05:48
Happy awareness month and happy 40th anniversary to the 5p- Society
Episode 2: Family Conference with Jolene Towers 03.06.2025 32:54
In this special episode of the BREATHE Podcast, Janie is joined by Jolene Towers to discuss one of the most anticipated events of the year for the 5p- community—the upcoming 5p- Society National Conference in Salt Lake City, Utah. Jolene shares exciting details about the location, planned sessions, family activities, and the unique opportunities for connection, support, and celebration. Whether yo...
Episode 1: the BREATHE Podcast 01.05.2025 1:17:34
Episode 1: 5p- Society is Bigger Than Just a Membership Host: Janie Guy Guests: Robert Brookman, Laura Castillo, Nick Wallace Welcome to the debut episode of The Breathe Series—a new podcast by the 5p- Society designed to bring real conversations and meaningful connection right to your earbuds. In this first episode, host Janie Guy sits down with 5p- Society Board Member Robert Brookman to explore...
5p- Society: BREATHE Series Intro 26.04.2025 1:32
Welcome to the BREATHE Series — a heartfelt journey of hope, resilience, and community for families impacted by 5p- syndrome and other rare diagnoses. In this introduction, discover how every story shared here reminds us to pause, breathe, and find strength in connection. Join us as we lift each other up through real conversations and shared experiences.
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