PEP Talks ISPEP

In this episode, Emma interviews Rasmus, the head of communication at James Lind Care, a clinical trial research organization. Rasmus discusses the challenges of patient recruitment for clinical trials, emphasizing the need for increased awareness, education, and simplified communication. He shares insights on his role in bridging the gap between patients and the pharmaceutical industry, highlight...

In this episode of Pep Talks, Emma interviews Steve Clark, a cancer survivor and patient advocate. Steve shares his journey from diagnosis to founding Strive for Five, a non-profit focused on providing hope to others with cancer. He discusses the importance of effective communication between patients and doctors, the nocebo effect, and the bio-psychosocial model of care. Steve emphasizes the power...

Stacey Hurt, Chief Patient Officer at Parexel, shares her journey and role in a PEP Talk podcast sponsored by Medscape. As a stage four colorectal cancer survivor and caregiver to her son with profound disabilities, Stacey brings authenticity and a unique perspective to her position. She emphasizes the importance of patient engagement in clinical trials, advocating for the inclusion of patient voi...

In this PEP Talk we hear from multi academic award winning cancer researcher, Victoria Harvey-Jones, about the three 'Rs' that we must address to improve communications between doctors and patients; and why the white paper she co-authored with other leaders is a game changer to humanise healthcare communications.  Patient centricity to Integration: enhancing Cancer outcomes - To drive improve...

Hear how Lara Bloom became the first Associate Professor of Patient Engagement Practice and built the Ehlers Danlos Society courtesy of a chance meeting in an art gallery. In this episode of "Pep Talk," Lara shares her journey from a career in photography to becoming a leading advocate for Ehlers-Danlos syndrome (EDS) and patient engagement. She discusses the challenges of living with EDS, the imp...

In this episode of the Pep Talks podcast, Emma interviews Rachel Giles, an associate professor of internal medicine and president of VHL Europa. Giles shares her journey from a career in internal medicine, nephrology, and oncology to patient advocacy, driven by her personal experiences with a family affected by a tumour suppressor syndrome.  She discusses her work as a medical journalist...

In this episode of the Pep Talks podcast, hosted by the International Society for Patient Engagement Professionals (PEP), Robert Mitchell Thain, CEO of the PBC Foundation, shares his insights on patient advocacy. Thain discusses the challenges and rewards of leading a patient organisation, emphasising the importance of patient experiences in shaping advocacy efforts. He also highlights the need fo...