The Rare Life

Alyssa was told her son William would die shortly after birth. He is now 4 years old, and Alyssa shares her incredible birth story, her deep connection with him despite his inability to speak, and the transformation Alyssa has experienced because of William. Alyssa and her perspective on life is totally and completely inspiring. William has several diagnoses and symptoms, some of which are seizure...

Get an overview of how the first season will all go down. Whet your appetite with extended clips from Season 1 and get a better explanation of the theme. In this episode, we also learn about the sequence of episodes: 1. Parent Story 2. Parent Special Topic 3. Professional 4. Solo 5. Repeat

A devastating ultrasound, a misdiagnosis of down syndrome, an incredible birth, and a whole lot of complicated feelings make up Madeline’s entrance into the special needs world. Just listened to the trailer? Come here next. This episode covers a more in-depth road map of the show, and a chance to get to know Madeline as she shares her origin story as Kimball’s mama. --- TRANSCRIPT: (full transcrip...

New to The Rare Life? Start here to find out what types of episodes are featured in the show and enjoy a few audio clips from Season 1. Comments and additional details at https://therarelifepodcast.com/show-notes/trailer

Season 13 is here, and this time the focus is on our children’s disabilities themselves. This season, we’ll be talking about things like navigating surgeries and procedures, trachs and vents, behavioral diagnoses, schooling options, sexual health and safety, feeling judgment, and more. As always, there will be story episodes woven throughout the season, featuring parents sharing their experiences...